Guest guest Posted April 13, 2001 Report Share Posted April 13, 2001 Amy, Your children's problems certainly sound like they might be diet related. One thing you might want to do is keep a detailed food diary for a few weeks before you start the diet. You might be able to pinpoint some common denominators and save yourself some legwork later. Keep up on the diary as you embark on the diet and make sure to note symptoms like the eczema, tantrums etc. Pat in Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2001 Report Share Posted April 13, 2001 Welcome! I'm new at this too but am learning so much! Hey, are you going to get them evaluated at all? I took my daughter to a developmental pediatrician for diagnosis. Also, are you into scrapbooking? I love it! But I've done nothing with it since our diagnosis...one month ago. Hugs, H, mom to 3 yrs, PDD; and 23 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 In a message dated 07/07/2001 6:09:07 AM Central Daylight Time, armywife1993@... writes: << Hi, my name is Lori and I just joined the list. I have a question regarding the dumping syndrome. I understand with the DS procedure you don't have it. I am a big sweets eater right now and think that the dumping syndrome would be a benefit for me post-op. (that might sound crazy but it's true) Can anyone tell me if they loved sweets pre-op and how you are doing post-op? I really prefer the DS procedure but given my love for sweets I wonder if the RNY would be the better procedure for me to have. Any info would be greatly appreciated. You can email me personally if you like. Thanks so much, LORI >> I was a sweets eater pre-op. I did not eat many sweets early post op (first 6 months or so). They did not appeal to me. Now I eat my share of sweets. I probably would get a few more pounds off if I didn't, but I am very happy at the weight I am at WITH my sweets. You have to remember that most of the sweets that appeal to us are a sweet/fat combination. An example is ice cream. I eat the really good stuff that is high in fat. But with the BPD/DS most of the fat doesn't count, so it doesn't turn out to be that calorie ladden for us. My weight is VERY stable and I eat sweets whenever I want which is sometimes several times a day. YMMV Dawn--Chicago metro--south Dr. Hess, Bowling Green, OH BPD/DS www.duodenalswitch.com 267 to 165 5'4 " size 22 to size 10 have made size goal, weight goal may need to be adjusted. no more high blood pressure, sore feet, or dieting! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 Lori: You need to research everything you can to determine which surgery is best for you. Two sites that I can recommend are: Our moderator has put together a wonderful site with a wealth of information: http://www.duodenalswitch.com This is a site that is owned by NYU. Click the link about surgery procedure, it will give you a very good explanation of the three types of surgeries. http://thinforlife.med.nyu.edu/ Most of the members on this list have had the DS procedure or are pre-op. We have chosen this procedure for a variety of reasons and I am sure at the recommendation of our doctors. Many of the doctors do more than one type of surgery. You need to make any decision on your own with the help of your doctor. However, I will tell you that I am very pleased with my outcome. I have never dumped and do not want to dump. I personally believe that the disease of Morbid Obesity has punished and restricted our lives enough. If you at the stage in this journey that you are seriously considering WLS surgery, you know what I mean. I do not need to be burdened with the dumping syndrome to feel like I've done the right thing. When you have WLS surgery many things will change. It is different for each person, but you will have a different perspective about food and what you eat. Immediately after my surgery and for about 5-6 months there were things that I either could not eat or had no desire to eat. I am 9 months out now and I can eat anything. There are still things that I do not want to eat. I also do not consume any carbonated beverages, as they have a tendency to fill me up and make me gaseous. I do not miss them. I just do not eat as much and my weight is coming down. Also, you need to really understand what the dumping syndrome entails. Read as much as you can about it because for some people it can be very debilitating for several hours. When I was doing the research for my surgery I remember reading a post from a guy on another list. He recounted a story where he had taken a church group bus tour to Atlantic City. This person had the RNY surgery. There was a buffet table there and he asked the caterer what was in some of the dishes to be sure he wasn't eating anything with sugar. On the way home on the bus, he was hit with the dumping syndrome. He spent the next several hours curled up in a fetal position on a Greyhound bus because there was something in the buffet he should not have eaten. I knew I did not want to live like that. Some people look at the dumping syndrome as a watchdog, I did not go through this process to be punished like that. You may also read on other surgical list that the DS surgery causes you to be a bathroom hermit and have nothing but odorous gas. This is not true. You will go through an initial period immediately after surgery that you may experience more visits than you are accustomed to having. Much of that is your due to your body making the adjustment from the surgery, the anesthetic as it clears your system and your ability to become accustomed to the way food will react with the changes that have been made with your digestive system. In addition, as with any WLS surgery, you should consume more water to flush out your system (we should do this for our health without the surgery) and thus this prompts more visits. I do have more BMs that I did before, but then I only went once per day before. However, they do not restrict my life in any negative way. Good luck to you in your decision and hopefully your eventual surgery. Kathie from MD Lap DS, Dr Gagner, Mount Sinai, NY New here > Hi, my name is Lori and I just joined the list. I have a question > regarding the dumping syndrome. I understand with the DS procedure > you don't have it. I am a big sweets eater right now and think that > the dumping syndrome would be a benefit for me post-op. (that might > sound crazy but it's true) Can anyone tell me if they loved sweets > pre-op and how you are doing post-op? I really prefer the DS > procedure but given my love for sweets I wonder if the RNY would be > the better procedure for me to have. Any info would be greatly > appreciated. You can email me personally if you like. > > Thanks so much, > > LORI > > armywife1993@... > > > ---------------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 Lori, I am 11 weeks out from my DS surgery and I can say that I not only do not crave sweets, I don't even take them when they are offered. They just hold no appeal for me now. I did have a bite of cake and ice cream once, at about five or six weeks out. I was able to tolerate it well, but it just was no big thrill. I wish I could explain it better than that! That said, if I really wanted something I would have it. But after eating protein, and trying to get in a bit of veggies, etc., I just don't have room for it at this point. But if I really, really wanted something I would have a bite. My mother had weight loss surgery around 25 years ago. Whatever the nature of the surgery, she most definitely came away with dumping syndrome. One of my most vivid memories is that of my mother passing out on the floor of a restaurant after eating pasta. It was terribly frightening. She used to think she just had to " lie down " after eating certain things, and it was only then that she realized she was actually passing out. I don't think I, personally, could handle feeling sick on a regular basis. I could not tolerate that as part of my life for the duration. Now, 11 weeks post DS surgery, I feel perfectly fine 99.9% of the time. I feel great, can eat anything I want (small amounts) and feel satisfied. And I am losing weight! Not as fast as some, but I am losing. I can't imagine anything better than this. Just my 2-cents... Dawna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 HI LORI, MY NAME IS MELANIE TAYLOR AND I WILL BE HAVING THE DS ON JULY THE 10TH.I HAVE BEEN TOLD THE RNY IS BETTER FOR SWEET EATERS AND I WOULD SUGGEST YOU TALK WITH OTHER RNYERS TO GET MORE INFO..HOPE U FIND WHAT U R LOOKING FOR HERE.WE R A GOOD GROUP OF PEOPLE AND LOVE TO HELP ANYONE WE CAN.WELCOME ABOARD AND HAPPY RESEARCHING. MELANIE TAYLOR armywife1993@... wrote: Hi, my name is Lori and I just joined the list. I have a question regarding the dumping syndrome. I understand with the DS procedure you don't have it. I am a big sweets eater right now and think that the dumping syndrome would be a benefit for me post-op. (that might sound crazy but it's true) Can anyone tell me if they loved sweets pre-op and how you are doing post-op? I really prefer the DS procedure but given my love for sweets I wonder if the RNY would be the better procedure for me to have. Any info would be greatly appreciated. You can email me personally if you like.Thanks so much,LORIarmywife1993@...---------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 Hi Lori, Since I'm pre-op for the DS, you know which surgery I think provides better quality of life -- and that's what I'm after. With the DS, after the recovery period you can eat fairly normal small meals that include most foods. Your stomach functions properly, you don't have the problems with getting things " stuck " or dumping - which is an awful experience. With the RnY you can ony eat tiny amounts, and most people say their food choices are extremely restricted FOR LIFE. There is also more of a problem with B vitamin absorption because of the tiny stomach pouch. As someone who has a failed VBG I know how awful it feels to have things get " stuck " and have to throw up. After 10 years, I still have that experience, and can't eat most meats, raw vegetables or fruits. At a recent DS support group meeting I heard that DS patients who lose the most weight are ones who avoid simple sugars and exercise. The DS will not prevent simple sugars from being absorbed. I would really encourage you to look at any WL surgery as a tool, and to talk to as many people as you can about quality of life long term after the surgery. All the WL surgeries require some changes in life style after the surgery. I've heard many people say the dumping syndrome with the RnY will prevent them from eating sugar and fat, but many people who have the RnY never do dump! Research, research, research and talk to lots of people about how they feel, what they can eat, how their health is, etc. longer term. Take your time about making this decision. I also should add that there are many people who come to this group and research this surgery who have had a RNY that failed and who want a revision to DS. I could be wrong, but it is my understanding that revision from rny to DS is quite difficult. Only you can make the decision about what is right for you. I send you all best wishes for making the right decision. Peace, Robyn New here > Hi, my name is Lori and I just joined the list. I have a question > regarding the dumping syndrome. I understand with the DS procedure > you don't have it. I am a big sweets eater right now and think that > the dumping syndrome would be a benefit for me post-op. (that might > sound crazy but it's true) Can anyone tell me if they loved sweets > pre-op and how you are doing post-op? I really prefer the DS > procedure but given my love for sweets I wonder if the RNY would be > the better procedure for me to have. Any info would be greatly > appreciated. You can email me personally if you like. > > Thanks so much, > > LORI > > armywife1993@... > > > ---------------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 Dawn wrote: > I was a sweets eater pre-op. I did not eat many sweets early > post op (first 6 months or so). They did not appeal to me. > Now I eat my share of sweets. I could have written these very words. All true for me too. > I probably would get a few more pounds off if I didn't, but I > am very happy at the weight I am at WITH my sweets. A big ditto here too. I often feel like I'm " cheating " because I truly do not limit myself, except for the limitation imposed by my stomach size. I indulge in sweet treats throughout the day, but usually just a bite here and there -- a Dove Promise or two, or a cookie or two. I was never, and still am not one to overindulge or do the " whole bag of cookies " type of thing. > You have to remember that most of the sweets that appeal to us > are a sweet/fat combination. An example is ice cream. I eat > the really good stuff that is high in fat. But with the BPD/DS > most of the fat doesn't count, so it doesn't turn out to be > that calorie ladden for us. Yep. Delphine told me ages ago that if I wanted to have milk, for example, I'd be better off having whole milk, since it is lower in sugar ounce-for-ounce than skim milk. Same for ice cream -- eat the premium stuff, since the proportion of fat is higher, we won't absorb as much of the premium stuff as we would of a " skimmer " ice cream that is higher in sugar per serving. My whole life, ice cream has been my indulgence, and I ate it every single day without fail. For the first year post-op, I didn't have it as much. But now, I'm pretty much back into my routine of having 2-3 scoops of ice cream as my evening snack, and I do this more days than not. I'm not advocating my way for anyone else! None of the DS docs are going to give us " permission " to be reckless about sugars, and Dr. Rabkin might want to bop me one if I admitted to him how many treats I indulge in. LOL. But from day one, I have been pretty stubborn in my reluctance to " artificially " limit myself, or to adopt a " diet mindset " . I researched the DS and my intent was to have faith in all the clinical data, which shows us maintaining our weight loss over the long term. I'm at the end of my weight loss window now, so I'm in a nervous spot where I'm watching the scale and hoping and praying that all the research will hold true for me! Only time will tell on that one. Never thought getting HERE would be harder than the losing stage, but it kinda is, since I'm in the " waiting for the other shoe to drop " stage right now. It can be unnerving! M. --- in Valrico, FL, age 38 Starting weight 299, now 156 Starting BMI 49.7, now 26.0 Lap DGB/DS by Dr. Rabkin 10-19-99 http://www.duodenalswitch.com Direct replies: mailto:melanie@... _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 I hope that I un-crave sweets post too! Re: New here Lori,I am 11 weeks out from my DS surgery and I can say that I not only do notcrave sweets, I don't even take them when they are offered. They just holdno appeal for me now. I did have a bite of cake and ice cream once, at aboutfive or six weeks out. I was able to tolerate it well, but it just was nobig thrill. I wish I could explain it better than that!That said, if I really wanted something I would have it. But after eatingprotein, and trying to get in a bit of veggies, etc., I just don't have roomfor it at this point. But if I really, really wanted something I would havea bite.My mother had weight loss surgery around 25 years ago. Whatever the natureof the surgery, she most definitely came away with dumping syndrome. One ofmy most vivid memories is that of my mother passing out on the floor of arestaurant after eating pasta. It was terribly frightening. She used tothink she just had to "lie down" after eating certain things, and it was onlythen that she realized she was actually passing out.I don't think I, personally, could handle feeling sick on a regular basis. Icould not tolerate that as part of my life for the duration. Now, 11 weekspost DS surgery, I feel perfectly fine 99.9% of the time. I feel great, caneat anything I want (small amounts) and feel satisfied. And I am losingweight! Not as fast as some, but I am losing. I can't imagine anythingbetter than this.Just my 2-cents...Dawna---------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2001 Report Share Posted July 8, 2001 Hello everyone is there anyone here that has recently had surgery done by Dr, Elariny in Va. > >Reply-To: duodenalswitch >To: " Yahoo Group " duodenalswitch > >Subject: Re: New here >Date: Sat, 7 Jul 2001 15:18:02 -0700 > >I hope that I un-crave sweets post too! > > Re: New here > >Lori, > >I am 11 weeks out from my DS surgery and I can say that I not only do not >crave sweets, I don't even take them when they are offered. They just hold >no appeal for me now. I did have a bite of cake and ice cream once, at >about >five or six weeks out. I was able to tolerate it well, but it just was no >big thrill. I wish I could explain it better than that! > >That said, if I really wanted something I would have it. But after eating >protein, and trying to get in a bit of veggies, etc., I just don't have >room >for it at this point. But if I really, really wanted something I would >have >a bite. > >My mother had weight loss surgery around 25 years ago. Whatever the nature >of the surgery, she most definitely came away with dumping syndrome. One >of >my most vivid memories is that of my mother passing out on the floor of a >restaurant after eating pasta. It was terribly frightening. She used to >think she just had to " lie down " after eating certain things, and it was >only >then that she realized she was actually passing out. > >I don't think I, personally, could handle feeling sick on a regular basis. >I >could not tolerate that as part of my life for the duration. Now, 11 weeks >post DS surgery, I feel perfectly fine 99.9% of the time. I feel great, >can >eat anything I want (small amounts) and feel satisfied. And I am losing >weight! Not as fast as some, but I am losing. I can't imagine anything >better than this. > >Just my 2-cents... > >Dawna > >---------------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 In a message dated 7/9/01 1:15:05 AM, duodenalswitch writes: << I hope that I un-crave sweets post too! >> Hi! I have not craved sweets much post-op. It got to the point where I didn't even like the Viactiv chewable calciums in the first three weeks post-op! LOL Now if I have a 'sugar fix', it's almost always fruity flavored stuff (usually drinks or ice cream), not chocolate. I wasn't a tremendous chocoholic before but I certainly don't enjoy it now. I try to really watch the intake of drinks, having only one glass of juice in the a.m. (not every day even) and watered down halfway (I love grapefruit juice and also orange juice). I have a wonderful flavored iced tea/iced tea milk when I go to Chinatown every week (I'm sure that's LOADED with sugar, man). But, I just don't 'crave' chocolate or sweets to any great degree. :) Good news, right? all the best, lap ds with gallbladder removal January 25, 2001 five months post-op and still feelin' fab! pre-op: 307 lbs/bmi 45 now: 239 (ok - maybe I'm going down South again???? Let's hope so!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 i had surgery with Dr. Elariny on May 15, 2001 --- Sitton Sitton@...> wrote: > Hello everyone is there anyone here that has > recently had surgery done by > Dr, Elariny in Va. > > > > > >Reply-To: duodenalswitch > >To: " Yahoo Group " duodenalswitch > > >Subject: Re: New here > >Date: Sat, 7 Jul 2001 15:18:02 -0700 > > > >I hope that I un-crave sweets post too! > > > > Re: New here > > > >Lori, > > > >I am 11 weeks out from my DS surgery and I can say > that I not only do not > >crave sweets, I don't even take them when they are > offered. They just hold > >no appeal for me now. I did have a bite of cake > and ice cream once, at > >about > >five or six weeks out. I was able to tolerate it > well, but it just was no > >big thrill. I wish I could explain it better than > that! > > > >That said, if I really wanted something I would > have it. But after eating > >protein, and trying to get in a bit of veggies, > etc., I just don't have > >room > >for it at this point. But if I really, really > wanted something I would > >have > >a bite. > > > >My mother had weight loss surgery around 25 years > ago. Whatever the nature > >of the surgery, she most definitely came away with > dumping syndrome. One > >of > >my most vivid memories is that of my mother passing > out on the floor of a > >restaurant after eating pasta. It was terribly > frightening. She used to > >think she just had to " lie down " after eating > certain things, and it was > >only > >then that she realized she was actually passing > out. > > > >I don't think I, personally, could handle feeling > sick on a regular basis. > >I > >could not tolerate that as part of my life for the > duration. Now, 11 weeks > >post DS surgery, I feel perfectly fine 99.9% of the > time. I feel great, > >can > >eat anything I want (small amounts) and feel > satisfied. And I am losing > >weight! Not as fast as some, but I am losing. I > can't imagine anything > >better than this. > > > >Just my 2-cents... > > > >Dawna > > > >---------------------------------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 Hello , Welcome, and sorry you have to be here. As some of the others already wrote in, it is extremely difficult to figure out where the end is in this terrible disease, as it affects different people in different ways. I believe your doctor is as unsure as anyone else, since the disease is so rare. As our internist put it- " I will probably never see another case like this in my lifetime " . Of all the symptoms you mentioned that your wife is experiencing, I would probably say that the two most alarming are the sleep apnea and swallowing problems. Sleep apnea can cause sudden death, as the patient stops breathing. Has she had a sleep study? Many of the MSA patients, including my husband, use a CPAP at night to help with the brething difficulties. The swallowing problems could cause fluid to leak in to the lungs, which in turn can cause pneumonia. This is also one of the more common causes of death in MSA patients, along with respiratory failure. I hope you can glean some help and moral support from this group. They have been a tremendous help to me and have given both me, my husband and our doctor invaluable advice and resources to help fight this terrible disease. Best Wishes, Maciejewski, caregiver to Jeff, age 37, dx 2000 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 Hello , Welcome, and sorry you have to be here. As some of the others already wrote in, it is extremely difficult to figure out where the end is in this terrible disease, as it affects different people in different ways. I believe your doctor is as unsure as anyone else, since the disease is so rare. As our internist put it- " I will probably never see another case like this in my lifetime " . Of all the symptoms you mentioned that your wife is experiencing, I would probably say that the two most alarming are the sleep apnea and swallowing problems. Sleep apnea can cause sudden death, as the patient stops breathing. Has she had a sleep study? Many of the MSA patients, including my husband, use a CPAP at night to help with the brething difficulties. The swallowing problems could cause fluid to leak in to the lungs, which in turn can cause pneumonia. This is also one of the more common causes of death in MSA patients, along with respiratory failure. I hope you can glean some help and moral support from this group. They have been a tremendous help to me and have given both me, my husband and our doctor invaluable advice and resources to help fight this terrible disease. Best Wishes, Maciejewski, caregiver to Jeff, age 37, dx 2000 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2002 Report Share Posted November 12, 2002 hi! my name is ann and my mom had msa. if you need to tlk you can speak to me here. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2002 Report Share Posted November 12, 2002 hi! my name is ann and my mom had msa. if you need to tlk you can speak to me here. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2002 Report Share Posted November 12, 2002 Whew.. I am overwhelmed with the messages.. I made a mistake.. My wife is taking Magnesium and potassium.. Not calcium... Sigh... I guess you are all correct. Most Dr's have no idea what MSA/SDS is. We saw our family Dr. today. He has no idea what this is. She was told by an Electrophysiologist, he has been treating her PVC's for 8 years now, that she has MSA/SDS..And sent her to a Neurologist who confirmed. I now feel I have found a home, where I can share my frustration with this disease, and with the comparatively low amount of research into this disorder. While Gwenna has not had a sleep study done, I plan to get her scheduled in for one as soon as possible. Peace and Love... RE:New Here > > Hello , > > Welcome, and sorry you have to be here. As some of the others already > wrote in, it is extremely difficult to figure out where the end is in this > terrible disease, as it affects different people in different ways. I > believe your doctor is as unsure as anyone else, since the disease is so > rare. As our internist put it- " I will probably never see another case > like this in my lifetime " . > > Of all the symptoms you mentioned that your wife is experiencing, I would > probably say that the two most alarming are the sleep apnea and swallowing > problems. Sleep apnea can cause sudden death, as the patient stops > breathing. Has she had a sleep study? Many of the MSA patients, including > my husband, use a CPAP at night to help with the brething difficulties. > The swallowing problems could cause fluid to leak in to the lungs, which > in turn can cause pneumonia. This is also one of the more common causes of > death in MSA patients, along with respiratory failure. > > I hope you can glean some help and moral support from this group. They > have been a tremendous help to me and have given both me, my husband and > our doctor invaluable advice and resources to help fight this terrible > disease. > > Best Wishes, > > Maciejewski, > caregiver to Jeff, age 37, dx 2000 > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2002 Report Share Posted November 12, 2002 Whew.. I am overwhelmed with the messages.. I made a mistake.. My wife is taking Magnesium and potassium.. Not calcium... Sigh... I guess you are all correct. Most Dr's have no idea what MSA/SDS is. We saw our family Dr. today. He has no idea what this is. She was told by an Electrophysiologist, he has been treating her PVC's for 8 years now, that she has MSA/SDS..And sent her to a Neurologist who confirmed. I now feel I have found a home, where I can share my frustration with this disease, and with the comparatively low amount of research into this disorder. While Gwenna has not had a sleep study done, I plan to get her scheduled in for one as soon as possible. Peace and Love... RE:New Here > > Hello , > > Welcome, and sorry you have to be here. As some of the others already > wrote in, it is extremely difficult to figure out where the end is in this > terrible disease, as it affects different people in different ways. I > believe your doctor is as unsure as anyone else, since the disease is so > rare. As our internist put it- " I will probably never see another case > like this in my lifetime " . > > Of all the symptoms you mentioned that your wife is experiencing, I would > probably say that the two most alarming are the sleep apnea and swallowing > problems. Sleep apnea can cause sudden death, as the patient stops > breathing. Has she had a sleep study? Many of the MSA patients, including > my husband, use a CPAP at night to help with the brething difficulties. > The swallowing problems could cause fluid to leak in to the lungs, which > in turn can cause pneumonia. This is also one of the more common causes of > death in MSA patients, along with respiratory failure. > > I hope you can glean some help and moral support from this group. They > have been a tremendous help to me and have given both me, my husband and > our doctor invaluable advice and resources to help fight this terrible > disease. > > Best Wishes, > > Maciejewski, > caregiver to Jeff, age 37, dx 2000 > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2002 Report Share Posted November 12, 2002 , hang in there you can make it. After all, how many other folks have such a support group? Ask a question and no telling who has an answer. But there will be some one. God bless you as you learn along the way. Barb in Arlington, who feels God never sleeps and I hear there are folks on the line who can prove it. -- Grand Parent. A thing so simple, even a small child can operate it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2002 Report Share Posted November 12, 2002 , hang in there you can make it. After all, how many other folks have such a support group? Ask a question and no telling who has an answer. But there will be some one. God bless you as you learn along the way. Barb in Arlington, who feels God never sleeps and I hear there are folks on the line who can prove it. -- Grand Parent. A thing so simple, even a small child can operate it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2002 Report Share Posted November 13, 2002 I'm a hanging The amount of information I have already received from this site is morethan I learned from all the other sites combined. Peace and Love.. Re: RE:New Here > > , hang in there you can make it. After all, how many other folks > have such a support group? Ask a question and no telling who has an > answer. But there will be some one. > > God bless you as you learn along the way. > > Barb in Arlington, who feels God never sleeps and I hear there are folks > on the line who can prove it. > > -- > > Grand Parent. A thing so simple, even a small child can operate it. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2002 Report Share Posted November 13, 2002 I'm a hanging The amount of information I have already received from this site is morethan I learned from all the other sites combined. Peace and Love.. Re: RE:New Here > > , hang in there you can make it. After all, how many other folks > have such a support group? Ask a question and no telling who has an > answer. But there will be some one. > > God bless you as you learn along the way. > > Barb in Arlington, who feels God never sleeps and I hear there are folks > on the line who can prove it. > > -- > > Grand Parent. A thing so simple, even a small child can operate it. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 Sorry to hear you are having the same bad time my son is having right now.My 19 yr.old w/cf has been in the hospital since Dec 30 he went in with bleeding they found he is impacted with stool.He throws up all food he is getting a PICC line today for total IV nutrition .The doctors can't do surgery until his lungs are better.I wish you lots of good thoughts and my hopes of a fast recovery of both our kids.BeckyB. PS was born with meconium illeus did your daughter have this problem at birth? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 -thank you for the nice welcome. Kayla wasn't diagnosed till she was 5 yrs. old. She has had a picc line before and they are no fun., I'm hoping your son feels better soon also, let us know how its going. Jen -- In cfparents , hlbbet@a... wrote: > Sorry to hear you are having the same bad time my son is having right now.My > 19 yr.old w/cf has been in the hospital since Dec 30 he went in with bleeding > they found he is impacted with stool.He throws up all food he is getting a > PICC line today for total IV nutrition .The doctors can't do surgery until > his lungs are better.I wish you lots of good thoughts and my hopes of a fast > recovery of both our kids.BeckyB. > PS was born with meconium illeus did your > daughter have this problem at birth? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Welcome, Amber. I think you will get lots of ideas here on what to do to jump start your weight loss again. How tall are you? Keep in mind that " normal " weight charts don't really work for us post-ops. We generally weigh more " than we should " according to the charts, but yet wear smaller sizes than we should as well. The most important measure should be how you feel, not the numbers on the scale, but that is easier said than done, as almost all of us have that magic number in mind. I hit a low of 146, I'm back up to 161, and want to get back down to 150. But for the most part I don't sweat it...as long as I'm feeling good. Sounds like you are doing all the right things. I will be interested in hearing the feedback you get from other members. How much exercise are you getting in, and what type? KC << I would really appreicate some help. I have posted to other boards and seem to get little to know response or support. I hope things are different here!! Thanks to all of you! Amber Cook>> Homepage: http://groups.yahoo.com/group/Graduate-OSSG Unsubscribe: mailto:Graduate-OSSG-unsubscribe Quote Link to comment Share on other sites More sharing options...
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