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NUTS? DID SOMEBODY CALL MY NAME? AND WHERE'S ROSIE??? grannylunatic@...

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[Guest guest]

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Yes I sure did. Takes one to know one huh?

Terri g

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> NUTS? DID SOMEBODY CALL MY NAME? AND WHERE'S ROSIE???

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> grannylunatic@...

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> ---------------------------------

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> with theYahoo! Search movie showtime shortcut.

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[Guest guest]

Hi Rick, those hyeave been some of my symptoms also.

But the nuero sarc has damaged my endocrine system? I

know that these syptoms are usually associated with

low adrenal function in my case. But when the sarc is

active these are some of my complaints. Hang in their

and welcome to the group!

________________________________________________________________________________\

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[Guest guest]

Hi Anne, Thanks for the welcome. I'm learning to hang in there, I was very depressed in the beginning, but the meds have helped in some areas, and I have a better outlook now. All any of us can do is take one day at a time and make the best of it. I hope your issues dwindle away and you have nothing but good days. regards, RickAnne Schmidt wrote: Hi Rick, those hyeave been some of my

symptoms also.But the nuero sarc has damaged my endocrine system? Iknow that these syptoms are usually associated withlow adrenal function in my case. But when the sarc isactive these are some of my complaints. Hang in theirand welcome to the group! __________________________________________________________Got a little couch potato? Check out fun summer activities for kids.http://search.yahoo.com/search?fr=oni_on_mail & p=summer+activities+for+kids & cs=bz

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[Guest guest]

Hey Rick

I don't have a clue what the tightening in the abdomen is, but it is

fairly common with sarc suffers, I know how painful and disabilitating

it can be, the only thing that works for me is a heating pad, pain

meds and abilly club upside the head, so usually i just put up with it.

On the lighter side, when I went to my gp about all the symptomd that

had come back earlier this year afterwaiting in the wings for several

years, he said he ahd never heard of the " girdling " effect I was

describing, in fact he was pretty sure the only thing " girdled " was my

brain. After his deeply considered and highly insightful opinion that

I was a head case I decided to find a real doctor. Who had by the was

heard of the " girdling " effect and spent a fair amount of time

explaining that it wasn't all that uncommon, not much help but better

than " you need a new head boy " that I got from doctor bonehead.

>

> Hi,

>

> I was diagnosed with Neurosarcoidosis last March. My initinal

> symptoms were double vision and a tightning around the abdomen that

> felt like a tourniquet that would tighten now and then. I also lost

> use of my legs, having " charlie-horse " like pains, and my hands are

> numb from wrist to finger tips.

> I'm presently on Prednisone, Methotrexate, and Neurontin. The meds

> have cured my double vision, and legs, and my hands are getting

> better, but the tighting of my abdomen is as bad as when the whole

> thing started.

> Has anyone had similier symptoms? Is there any hope that these

> abdomen pains will go away? When the pain kicks in it restricts my

> walking. Pain killers help, but I don't want to live on them nor

> take them at work (when I return).

>

> Thank you in advance for any imput.

> regards,

> Rick

> Long Island, NY

>