Guest guest Posted July 15, 2007 Report Share Posted July 15, 2007 He saw the thoracic surgeon, he has him scheduled for a mediastinoscopy on Friday the 20th. I love this doc he took care of me in the beginning. The way he went over the CT Scan with Joe and was very nice and informative. His CT justs looks so different that mine did, his primary doc did a ACE Level and called to tell him he had sarcoid, before he sent to see the surgeon. When he took care of me in 1971, he put me on steroids for a month and then did another CT, which showed that 99% of the granulomas and lympn nodes were back to normal. I pray that God will give us the strength to get through this. I am making him a notebook zbout sarcoid. Fortunately he is very busy at wprl,but I can see him becoming more scared everytime I see him. This whole thing has really worn me out I slept about 18 hourss yesterday. I will be so glad when this is over with. Hugs Judy in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2007 Report Share Posted July 15, 2007 Judy, my prayers go out for you and your son, Joe. He is lucky in the fact that he has you to help him through all this with the info you have. I remember in the beginning of my diagnosis looking through the internet for hours and hours for info. Let us know how it goes. hugs S.Judy wrote: He saw the thoracic surgeon, he has him scheduled for a mediastinoscopy on Friday the 20th. I love this doc he took care of me in the beginning. The way he went over the CT Scan with Joe and was very nice and informative. His CT justs looks so different that mine did, his primary doc did a ACE Level and called to tell him he had sarcoid, before he sent to see the surgeon. When he took care of me in 1971, he put me on steroids for a month and then did another CT, which showed that 99% of the granulomas and lympn nodes were back to normal. I pray that God will give us the strength to get through this. I am making him a notebook zbout sarcoid. Fortunately he is very busy at wprl,but I can see him becoming more scared everytime I see him. This whole thing has really worn me out I slept about 18 hourss yesterday. I will be so glad when this is over with. Hugs Judy in PA Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2007 Report Share Posted July 15, 2007 -judy I know the feat you feel becuz I was struck with same disease in 2004. My life has not been the same. I have lost vision in my left eye due to this disease and has became disable at this point. I pray for a miracle cuz I believe God will heal me on his time. I just keep the faith and try to stay strong. I am marry with 7 beautiful girls. I don't like that i can not do the things use to do. I try not to complain about the pains. I will add your son Joe to my prayer list and hope for a good result on his tests. -- In Neurosarcoidosis , " Judy " wrote: > > He saw the thoracic surgeon, he has him scheduled for a > mediastinoscopy on Friday the 20th. > > I love this doc he took care of me in the beginning. The way he went > over the CT Scan with Joe and was very nice and informative. > > His CT justs looks so different that mine did, his primary doc did a > ACE Level and called to tell him he had sarcoid, before he sent to > see the surgeon. > > When he took care of me in 1971, he put me on steroids for a month > and then did another CT, which showed that 99% of the granulomas and > lympn nodes were back to normal. > > I pray that God will give us the strength to get through this. > > I am making him a notebook zbout sarcoid. > > Fortunately he is very busy at wprl,but I can see him becoming more > scared everytime I see him. > > This whole thing has really worn me out I slept about 18 hourss > yesterday. I will be so glad when this is over with. > > Hugs > > Judy in PA > Quote Link to comment Share on other sites More sharing options...
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