Re: vitamin D and rickets

[Guest guest]

I AGREE MARY, WE DO NEED A FEW MINUTES EACH DAY OUTSIDE, EVEN IN THE SHADE. A simple 10-15 minutes even if you need a sunscreen to do so, is so worth it. It really lifts your spirit, and is so very necessary.

True, if you have some meds that say use caution in the sun, then use caution-- but any time you take caution to the extreme, you're setting yourself up for problems.

Take care,

Tracie

NSCo-owner/moderatorGet a sneak peak of the all-new AOL.com.

[Guest guest]

I saw my endocrinologist today. He flipped that I had not been taking the vit D 50,000 iu every 2 weeks. My last vit D level a week ago was 17.3. My s Hopkins dr and my pcp and rheum all told me to be very careful with the vit D. My rheum put me on 400iu twice a day but evidently that didn't work. Anyway, I'm betwixt and between now b/c have one dr saying one thing and 3 others saying something else. The endocrinologist said and pointed to an article that said not only does one have to watch their bones with low vit d levels but also there is a risk of cancers associated with this. tiodaat@... wrote: I AGREE MARY, WE DO NEED A FEW MINUTES EACH DAY OUTSIDE, EVEN IN THE SHADE. A simple 10-15 minutes even if you need a sunscreen to do so, is so worth it. It really lifts your spirit, and is so very necessary. True, if you have some meds that say use caution in the sun, then use caution-- but any time you take caution to the extreme, you're setting yourself up for problems. Take care, Tracie NSCo-owner/moderatorGet a sneak peak of the all-new AOL.com.

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[Guest guest]

I read recently that Vitamin D is involved in sarcoidosis - in a bad way. Now I am confused.What does the science say on this? I don't take high doses of vitamins in general but I do take a good quality 'one a day' type multivitamin that has Vitamin D in it. I have not been diagnosed with neurosarcoidosis but I am scheduled to speak with my doctor about it and I guess get some blood tests - should I stop taking it? I do eat a balanced diet, and I get lots of vegetables, protein, etc. Also, what tests are the best ones that can be used to disgnose sarcoidosis.

[Guest guest]

Becky,

I am of the thought that if we are deficient in any vitamin or mineral-- that our bodies are going to make up for that. With the Vit D, it is the Marshall Protocol that states that it's the reason for sarc granulomas. It scares me that this has been taken as gospel, because it has some people sitting inside in the dark, and they are depressed as hell. Not to mention sick. Very sick.

Yes, there is some concern that we produce too much calcium. Calcium requires Vit D and magnesium to be assimilated by the body. My thought is that if we are consuming very little calcium, then our bodies are thinking that what we do eat or drink in the way of calcium, that it needs to store it so that when we become deficient, it has excess to pull from--ie. the bone marrow (inside the bone pain?), the kidneys (as kidney stones) the liver (as calcium stones there), the skin and joints and ligaments and brain-- hmm, all the places that sarc granulomas form...

There is also a concept that we don't get enough or don't assimilate Vit C which Vit D needs to trigger it's correct responses. The thought is that if we have too much C, or not enough, then the immune system over reacts and again- hordes the missing nutrients.

I have to wonder if we all kept track of what we eat, how much natural vitamins and minerals we are actually consuming---and I know when I was working, I rarely had a fresh orange, or an apple. If I did, it was store bought and off season, and so it'd been picked before being fully ripe, it had been in orchards where between the fertilizers, the insecticides, the processing and waxing and gas treating to speed up ripening, how much in the way of REAL nutrition I was consuming. Dinner, or lunch at a fast food restaurant, juices and coffees with high fructose corn syrup flavored sweeteners, all the preservatives, and on and on... what we've actually done to our bodies with our wonderful office jobs and high paced life styles. When you think about it, our grandparents grew their own gardens, bought the meat from the butcher that had his own cows and pigs, raised their own chickens- corn fed, and nothing other than salt was added to much of anything in the way of curing this stuff.

We didn't have the population we have now, and we didn't have the pollution by septic systems run amuck. (I live on a hilltop, as we all know the poop runs downhill!). We also treated illness with fluids, rest and mom's chicken soup. The veges and fruits we ate were what we could get at that particular season. Maybe the ground had been fertilized with cow manure or chicken poop-- but it was turned deeply into the soil, not refined from the local water plants-- where human waste is now turned into fertilizers.

Sure, they tell us they've cooked all the gunk out- and that may be true- and include the nutrients that might have been there- but I suspect not-- since we've depleted so much in our diets.

Pick up a copy of SUPERFOODS RX and read it!!!!!!!!!!! It is the best information I've had in a long time (ok, ever) on how nutrients and vitamins and minerals work together so that we can actually absorb what we eat without one food negating the power of another-- as some minerals can't be mixed with others at the same time. This means that what you eat in the morning, then what you get in the afternoon, should be different-- and compliment each other so that you get the highest concentrate of each vitamin and mineral. The recipes are simple, good (very good!) and easy.

So, this is more than you wanted, but hey- it's all good!!!!!!!!!!!!1

Hugs,

Tracie

NS Co-owner/moderatorGet a sneak peak of the all-new AOL.com.

[Guest guest]

My bone doc has me on 50,000 iu vitamin D every week. I have some bone loss & am on Actonel 35 whatever a week. I lived in an apt/bat cave that had two tiny windows way up high for a year and a half. One of those windows was completely blocked by the a/c. I only went out after dark because of the heat. I liked going to the grocery after dark and walking all the aisles for exercise. Late at night there wasn't anyone much else in the store to block the aisles or look at me like I was strange pushing an empty cart around. I wonder if that caused the low vitamin D levels or if it was post menopausal stuff. Hmmmmm guess it's hard for them to say.grannylunatic@...

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[Guest guest]

Tracie I saw a show about the Superfoods book on tv this morning. They've cut my Cytoxan back to 400 whatevers! I feel much better this treatment for a change! Oh happy day when they get me off this and on a maintenance drug! Anyway, you got an extra book if you called an 800 number. Unfortunately, or fortunately because I'm a shopaholic, I couldn't call in and order. I'm going to get a Visa gift card next month and hopefully I can catch the program and get the extra book. I've heard so much good about it and I like the idea of natural cures and healthy eating. My body does NOT like the artificial sugar or flavors and lets me know very quickly with a round of the big "D" to get it out of me. One of the local grocery stores here in Kentucky had an add that they'll now sell all Kentucky raised, antibiotic and growth hormone free beef. There is a butcher that also sells

Amish chickens that are free range. I never thought about where the grocer got the stuff from until recently with all the recalls on cheap products from China sold at the dollar stores. It has really opened my eyes. It's well worth the extra dollar to keep ourselves healthy. Thanks for all the info everyone has offered here. grannylunatic@...

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[Guest guest]

Hi ,Did you have any problems from the vit d since it was such a huge dose all at once?Blessings,Becky wrote: My bone doc has me on 50,000 iu vitamin D every week. I have some bone loss & am on Actonel 35 whatever a week. I lived in an apt/bat cave that had two tiny windows way up high for a year and a half. One of those windows was completely blocked by the a/c. I only went out after dark because of the heat. I liked going to the

grocery after dark and walking all the aisles for exercise. Late at night there wasn't anyone much else in the store to block the aisles or look at me like I was strange pushing an empty cart around. I wonder if that caused the low vitamin D levels or if it was post menopausal stuff. Hmmmmm guess it's hard for them to say.grannylunatic (AT) yahoo (DOT) com Food fight? Enjoy some healthy debatein the Yahoo! Answers Food Drink Q & A.

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[Guest guest]

Hi Tracie,You are so right and as always common sense and book smart. I appreciate every bit of info you post and all your research about this disease. I'm not sure why my vit d was so low since I really watch my diet and don't stay out of the sun entirely. I don't believe a word of the MP protocol. Thank God for sites like this and FSR where knowledgeable folks (that be you Tracie!) put out the correct info. Thanks again for all you do!!!Blessings,Beckytiodaat@... wrote: Becky, I am of the thought that if we are deficient in any vitamin or mineral-- that our bodies are going to make up for that. With the Vit D, it is the Marshall Protocol that states that it's the reason for sarc granulomas. It scares me that this has been taken as gospel, because it has some people sitting inside in the dark, and they are depressed as hell. Not to mention sick. Very sick. Yes, there is some concern that we produce too much calcium. Calcium requires Vit D and magnesium to be assimilated by the body. My thought is that if we are consuming very little calcium, then our bodies are thinking that what we do eat or drink in the way of calcium, that it needs to store it so that when we become deficient, it has excess to pull from--ie. the bone marrow (inside the bone pain?), the kidneys

(as kidney stones) the liver (as calcium stones there), the skin and joints and ligaments and brain-- hmm, all the places that sarc granulomas form... There is also a concept that we don't get enough or don't assimilate Vit C which Vit D needs to trigger it's correct responses. The thought is that if we have too much C, or not enough, then the immune system over reacts and again- hordes the missing nutrients. I have to wonder if we all kept track of what we eat, how much natural vitamins and minerals we are actually consuming---and I know when I was working, I rarely had a fresh orange, or an apple. If I did, it was store bought and off season, and so it'd been picked before being fully ripe, it had been in orchards where between the fertilizers, the insecticides, the processing and waxing and gas treating to speed up ripening, how much in the way of

REAL nutrition I was consuming. Dinner, or lunch at a fast food restaurant, juices and coffees with high fructose corn syrup flavored sweeteners, all the preservatives, and on and on... what we've actually done to our bodies with our wonderful office jobs and high paced life styles. When you think about it, our grandparents grew their own gardens, bought the meat from the butcher that had his own cows and pigs, raised their own chickens- corn fed, and nothing other than salt was added to much of anything in the way of curing this stuff. We didn't have the population we have now, and we didn't have the pollution by septic systems run amuck. (I live on a hilltop, as we all know the poop runs downhill!). We also treated illness with fluids, rest and mom's chicken soup. The veges and fruits we ate were what we could get at that particular season. Maybe the

ground had been fertilized with cow manure or chicken poop-- but it was turned deeply into the soil, not refined from the local water plants-- where human waste is now turned into fertilizers. Sure, they tell us they've cooked all the gunk out- and that may be true- and include the nutrients that might have been there- but I suspect not-- since we've depleted so much in our diets. Pick up a copy of SUPERFOODS RX and read it!!!!!!!!!!! It is the best information I've had in a long time (ok, ever) on how nutrients and vitamins and minerals work together so that we can actually absorb what we eat without one food negating the power of another-- as some minerals can't be mixed with others at the same time. This means that what you eat in the morning, then what you get in the afternoon, should be different-- and compliment each other so that you get the highest concentrate of each vitamin and mineral. The recipes are simple, good (very good!) and easy. So, this is more than you wanted, but hey- it's all good!!!!!!!!!!!!1 Hugs, Tracie NS Co-owner/moderatorGet a sneak peak of the all-new AOL.com.

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[Guest guest]

Thanks Becky.Get a sneak peak of the all-new AOL.com.

[Guest guest]

Becky I haven't noticed any side effects from the vitamin D but I'm not sure what they would be.grannylunatic@...

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[Guest guest]

Thanks .Blessings,Becky wrote: Becky I haven't noticed any side effects from the vitamin D but I'm not sure what they would be.grannylunatic (AT) yahoo (DOT) com Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search.

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[Guest guest]

, you don't get really sick when you go out in the sun? Even a little while causes me extreme problems and if I stay out long at all I am destroyed. Connie Solberg wrote: ***Interesting note*** Recently i watched a show on the morbidly obese. During the show one man repeatedly told the doctors he was in extreme pain...way beyond what being obese should be causing. The

doctors finally gave in to his 'demands' and took him to have some further tests. (Isn't it sad we have to demand tests???...) The doctors were very surprised at his results. It turned out that he had Rickets because of spending so little time outdoors because of his weight. Rickets can cause extreme pain. They gave him some supplements and like magic he began to feel better. They said that this is happening more because there are alot of morbidly obese people who don't spend any time outdoors. I would say that this could also be a problem for the chronically ill, too, and that a small amount of sun each day may also be helpful unless you are high in your counts of D. It could be used for pain control and depression if taken in careful amounts. ...this is just my opinion. I am not talking about spending massive amounts of time in the sun. Too much sun is contraindicated with some medications. It just doesn't mix.

Something to talk with your doc about. hugs S. Got a little couch potato? Check out fun summer activities for kids.

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[Guest guest]

Connie, I'm not talking about spending more than 10-15 minutes a day in the direct sun. I usually spend most of my time outside in the shade. But it is still time spent outside getting 'some' sunshine. If I am outside longer than 15 minutes in the direct sun I get to feeling nauseous and dizzy not just from the sun but also because of the sarc and physical activity is really taxing on my system. Never one to 'lay out' in the sun to get a tan. Ever. But I am pretty much housebound anyway because of fatigue and weakness. I just go outside and sit on my porch...in the shade usually...two or three times a day...five minutes at a crack. Mentally it is also healthy for me cuz being physically isolated in the house is just not good for anyone for long stretches of time. But Connie, if it makes you that sick...just don't go

out. I'm just speaking for my own self. Through trial and error we know ourselves best, right? hugs S.Connie Griffis wrote: , you don't get really sick when you go out in the sun? Even a little while causes me extreme problems and if I stay out long at all I am destroyed. Connie Solberg <mary_s777 (AT) yahoo (DOT) com> wrote: ***Interesting note*** Recently i watched a show on the morbidly obese. During the show one man repeatedly told the doctors he was in extreme pain...way beyond what being obese should be causing. The doctors finally gave in to his 'demands' and took him to have some further tests. (Isn't it sad we have to demand tests???...) The doctors were very surprised at his results. It turned out that he had Rickets because of spending so little time outdoors because of his weight. Rickets can cause extreme pain. They gave him some supplements and like magic he began to feel better. They said that this is happening more because there are alot of morbidly obese people who don't spend any time outdoors. I would say that this could also be a problem for the chronically ill, too, and

that a small amount of sun each day may also be helpful unless you are high in your counts of D. It could be used for pain control and depression if taken in careful amounts. ...this is just my opinion. I am not talking about spending massive amounts of time in the sun. Too much sun is contraindicated with some medications. It just doesn't mix. Something to talk with your doc about. hugs S. Got a little couch potato? Check out fun summer activities for kids. Yahoo! oneSearch: Finally, mobile search that gives

answers, not web links.

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