My son

[Guest guest]

Hi , Yes, Mark and I will both be praying for your son. It's hard for me to accept the idea of war. The whole thing absolutely breaks my heart. Why do we have to live with hate? Everyone needs Jesus!!! No matter what our hardships are He helps us deal with them and gives us strength. Love you, ALesia My son In a message dated 09/20/2001 6:10:18 AM Central Daylight Time,Rpolychondritis writes:<< Did anyone have any loved ones in New York? >>No, I didn't have anyone in New York, but I would REALLY like to ask for yourprayers. My youngest son has been called into active duty effective 9/23.He just recently started working at a hospital in ND, so they're not tooterribly happy about this situation, but it's something he volunteered manyyears ago to do if his country needed him. He has been in the Reserves forseveral years. He is in the medical field, so I don't know where this wouldput him during this situation. Just please keep him in your prayers. He isto report to Ft. Sam Houston Sunday. Thanks for your prayers and positivethoughts. I love you all. T.

[Guest guest]

Hi , Yes, Mark and I will both be praying for your son. It's hard for me to accept the idea of war. The whole thing absolutely breaks my heart. Why do we have to live with hate? Everyone needs Jesus!!! No matter what our hardships are He helps us deal with them and gives us strength. Love you, ALesia My son In a message dated 09/20/2001 6:10:18 AM Central Daylight Time,Rpolychondritis writes:<< Did anyone have any loved ones in New York? >>No, I didn't have anyone in New York, but I would REALLY like to ask for yourprayers. My youngest son has been called into active duty effective 9/23.He just recently started working at a hospital in ND, so they're not tooterribly happy about this situation, but it's something he volunteered manyyears ago to do if his country needed him. He has been in the Reserves forseveral years. He is in the medical field, so I don't know where this wouldput him during this situation. Just please keep him in your prayers. He isto report to Ft. Sam Houston Sunday. Thanks for your prayers and positivethoughts. I love you all. T.

[Guest guest]

--- OneSuperMema@... wrote:

, count me in to be praying for your son. I am

praying for our men and women in uniform every single

day. If there were ever a good time to pray, this is

it. One of the men of our church got called up on

Wednesday, and my neice is sweating it out over

whether or not her husband is going to be called up.

Please take care of yourself! It sounds as if you

have a lot going on with your health right now and

that concerns me! Love you, Sharon

> No, I didn't have anyone in New York, but I would

> REALLY like to ask for your

> prayers. My youngest son has been called into

> active duty effective 9/23.

> He just recently started working at a hospital in

> ND, so they're not too

> terribly happy about this situation, but it's

> something he volunteered many

> years ago to do if his country needed him. He has

> been in the Reserves for

> several years. He is in the medical field, so I

> don't know where this would

> put him during this situation. Just please keep him

> in your prayers. He is

> to report to Ft. Sam Houston Sunday. Thanks for

> your prayers and positive

> thoughts. I love you all.

> T.

>

=====

__________________________________________________

Terrorist Attacks on U.S. - How can you help?

Donate cash, emergency relief information

http://dailynews.yahoo.com/fc/US/Emergency_Information/

[Guest guest]

--- OneSuperMema@... wrote:

, count me in to be praying for your son. I am

praying for our men and women in uniform every single

day. If there were ever a good time to pray, this is

it. One of the men of our church got called up on

Wednesday, and my neice is sweating it out over

whether or not her husband is going to be called up.

Please take care of yourself! It sounds as if you

have a lot going on with your health right now and

that concerns me! Love you, Sharon

> No, I didn't have anyone in New York, but I would

> REALLY like to ask for your

> prayers. My youngest son has been called into

> active duty effective 9/23.

> He just recently started working at a hospital in

> ND, so they're not too

> terribly happy about this situation, but it's

> something he volunteered many

> years ago to do if his country needed him. He has

> been in the Reserves for

> several years. He is in the medical field, so I

> don't know where this would

> put him during this situation. Just please keep him

> in your prayers. He is

> to report to Ft. Sam Houston Sunday. Thanks for

> your prayers and positive

> thoughts. I love you all.

> T.

>

=====

__________________________________________________

Terrorist Attacks on U.S. - How can you help?

Donate cash, emergency relief information

http://dailynews.yahoo.com/fc/US/Emergency_Information/

[Guest guest]

T.,

Praying for your son and all who are called upon to serve our country.

Hugs,

Sandy

----- Original Message ----- York? >>No, I didn't have anyone in New York, but I would REALLY like to ask for your prayers. My youngest son has been called into active duty effective 9/23. T.DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

T.,

Praying for your son and all who are called upon to serve our country.

Hugs,

Sandy

----- Original Message ----- York? >>No, I didn't have anyone in New York, but I would REALLY like to ask for your prayers. My youngest son has been called into active duty effective 9/23. T.DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

In a message dated 09/21/2001 1:05:14 PM Central Daylight Time,

biglou5685@... writes:

<< My youngest son has been called into active duty effective 9/23.

Oh, , I'm sorry. My kid brother (now 48) was in the Navy for 20+ years

and in Vietnam and the Persian Gulf, and I know I was worried sick, he kept

telling me he was safe, but I never truly believed him until he got home and

I got to hug him. I hate to tell you, but it will be harder on you than on

him! THEY get to take all the necessary and unnessary precautions, while all

WE get to do is worry and pray. Trust me, praying is far more effective!

I'm sure we will all include him on our prayer lists, so try to put him in

God's hands and leave him there,it's the safest place he could be. Hang in

there and TRY not to worry too much. Love you! Judy

[Guest guest]

In a message dated 09/21/2001 1:05:14 PM Central Daylight Time,

biglou5685@... writes:

<< My youngest son has been called into active duty effective 9/23.

Oh, , I'm sorry. My kid brother (now 48) was in the Navy for 20+ years

and in Vietnam and the Persian Gulf, and I know I was worried sick, he kept

telling me he was safe, but I never truly believed him until he got home and

I got to hug him. I hate to tell you, but it will be harder on you than on

him! THEY get to take all the necessary and unnessary precautions, while all

WE get to do is worry and pray. Trust me, praying is far more effective!

I'm sure we will all include him on our prayer lists, so try to put him in

God's hands and leave him there,it's the safest place he could be. Hang in

there and TRY not to worry too much. Love you! Judy

[Guest guest]

Hi,

I wanted to welcome you to the group. We have a few members who's

children have pancreatitis and I'm sure they will all contact you as

soon as they see your post. I'm so sorry your son has this disease. It's

hard enough with adults, and it is really hard to hear of children who

get it. Do you have a good doctor who is willing to treat your son's

pain? Unfortunately, about 30% of all cases of pancreatitis are

idiopathic - can't find a cause for. You might want to look at the

following website regarding pancreatitis. It has a lot of information,

though it's not specific to children. http://hopkins-gi.org/

Do a search on pancreatitis and then read all the information that comes up.

Have the doctors looked to see if your son has a pancreas divisum

(divided pancreatic ducts)? it's a rare birth defect that can lead to

idiopathic pancreatitis - it is still labeled as idiopathic because they

are not positive on how it causes pancreatitis and not everyone with the

divisum gets pancreatitis. It's worth looking into. I have a pancreas

divisum and so far, that's the only reason they can find for me to have

pancreatitis. I started having official attacks when I was sixteen, but

we think I might have had two attacks when I was around three or four,

so the divisum can cause pancreatitis attacks in children.

I also suggest that you check out the links section of this yahoo board.

There is a lot of information there. Again, I hope you hear soon from

some of the parents on this support group.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

Hi ,

Sorry for the delay in approving your message. It was avery busy

weekend for me.

I have a son who is 7 years old and he has RSS.

I can tell you a little but much depends on your specific situation.

First, there is no test to say yes or no if some one has RSS. This is

diagnosed by eliminating everything else. So we are all left with a

best guess because it is the only thing that describes all the

symptoms.

The 2 major problems are low appetite and slow growth. The low/no

appetite is the most troubling. Depending on how bad your son's

appetite is, he may or may not need a feeding tube. Time will tell.

My son did not but that was only because my wife spent many hours a

day feeding him. If she was a working mom, then he would have needed

a tube because no day care wouldtake the time to feed him properly.

Another thing to watch for is assymetrical growth. Your son could

have virtually none, to some pretty severe assymetry. Again, only

time will tell.

As for their general development, these children are normal. Many are

above average in intelligence, verbal and social skills. Very very

few have any diminished mental capacity. But this is the result of

other factors and not RSS.

There may be some developmental delays, slow to stand, walk, talk

etc. Also, he may need speech therapy, physical therapy or

occupational therapy. Again, only time will tell.

Last, keep an eye on him during the night. RSS kids are prone to

episodes of hypoglcemia. The typical symptom is unexplained

irratability and night sweats. Others on this list with experience in

this can give you more deatils.

In general, you can expect your son to live a normal happy life,

assuming he is healthy in every other way.

For now,just do everything normally but take the extra time he needs

to feed him. Try and get the most caloires in him with the least

amout of food. You might want to ask about getting a high calorie

formula and ask about some calorie booster to add to his food.

I hope this answers some of your questions.

Ken M

> Hello Everyone,

> My name is . My son has been oing back and forth to

endos.

> for the past 6 months and he is only 10 months old. Now they think

> he has RSS. We have an appointment with the doctor's again next

week

> to test for it. I am scared. I don't know what to expect or what

> having RSS means. Will he have mental slowness or just growth

> development problems. I want to do everything I can for my son so

he

> can have the best life possible. Can someone please help me and

> inform me on what to expect. The doctor's can tell me one thing

but

> I am more interested in the ideas and opinions in someone who is

> going through what I am going through. Thanks for your support.

> -

[Guest guest]

Hi ,

I know that things must look *really* scary right now, but things will

eventually be ok. I am a 22 year old female with RSS and I can tell you with

utmost certainty that it (RSS) is most certainly not the worst thing that has

ever happened to me (in fact, I don't even think it would make the list of my

all time worst events). RSS is a growth disorder that has no cognitive

implications (i.e. mental retardation). A lot of us with RSS reached fine and

gross motor skill milestones a little later than our peers, but we did reach

them. How much RSS will affect your son's life will most likely depend on the

severity of his case and the what issues he may or may not have that are

associated with RSS (appetite problems, gut dysmolity (sp??) issues, etc.).

However, as scary as all of this is right now, RSS DOES NOT mean that your son

will have a diminished quality of life. I am living proof of that. I'm a

senior this year at the University of Colorado in Boulder where I am majoring

in English Lit. and Philosophy. I plan on attending law school once my

undergraduate work is complete (I'm taking the LSAT Oct. 2nd, so everyone cross

your fingers for me that day ). I can honestly say that I live a very full,

very satisfying life. I've done everything I've ever wanted to do - physically

and mentally. All of the other adults that I know who have RSS are also happy,

well adjusted, successful individuals. They all have careers and quite a few

are married. I know this must be terryifying for you, but we are all here to

support you (there are so many wonderful people on this list). Please feel

free to contact me via the list or my private email if there's anything else I

can do for you.

Best Wishes,

Hillary

22, RSS

[Guest guest]

Hi ,

My name is ( there are a few on this list serve. Anyway,

my daughter is going to be 5 years old the end of December. We

only found out last October that she is RSS. fortunately, does

not have gastric (reflux) problems like alot of the kids. She is 29

pounds and just about 37 inches. We only started seeing an endo in

February and go back in December. When I first too heard of this I

was upset so I can appreciate your being anxious between visits. In

fact I still am being that we only had one visit so far. You have

found a wonderful group of people. I have learned so much in the past

two months of joining this group. We have also recenlty joined the

Magic Foundation and believe me there is so much information there.

Make sure you call 1-800-3MAGIC3 or go to their website

www.magicfoundation.org.

I am more at ease and very comfortable with things and again have

learned a great deal from the families on this site. You will too and

everyone is very comforting and very willing to help.

Where do you live? You may find that you are not too far from another

family. I live in New Jersey and found that there are 5 other

families all within an hour drive of me.

Good luck with your appointment coming up.

B

4 1/2 RSS and Kelli 2 Non RSS

> Hello Everyone,

> My name is . My son has been oing back and forth to endos.

> for the past 6 months and he is only 10 months old. Now they think

> he has RSS. We have an appointment with the doctor's again next week

> to test for it. I am scared. I don't know what to expect or what

> having RSS means. Will he have mental slowness or just growth

> development problems. I want to do everything I can for my son so he

> can have the best life possible. Can someone please help me and

> inform me on what to expect. The doctor's can tell me one thing but

> I am more interested in the ideas and opinions in someone who is

> going through what I am going through. Thanks for your support.

> -

[Guest guest]

Hi ,

My name is Jodi R., also one of several on this list. ) I have a

27 month old son named who was diagnosed with RSS at 17

months. The months prior to that were awful in that we had no idea

why he wasn't eating or gaining weight. My son has had some sort of

feeding tube since birth, and has one still to this day. His

appetite is non-existent, so the tube is the only resort we have.

has the gut dysmotility problems, too. Meaning, he has reflux

and constipates easily. We are trying to figure out if his stomach

empties slowly, but tests just are being done correctly to determione

this. But, slow stomach emptying is also a preoblem with some RSS

kids, which makes getting them to eat more difficult.

Like others have told you, their intelligence is normal. also

was behind in his fine and gross motor skills. He didn't walk until

right before his second birthday, but once he got it, he took off. It

took him a long time to have head control and he only crawled the

right way after he was walking! )

It seems that your son doesn't have a feeding tube, so you are lucky

there. You just have to feed him more often and get higher calorie

foods into him. How is his appetite? Also, if he has RSS,

hypoglycemia is an issue with a lot of these kids. Watch for

sweating at night.

Well, I don't want to make this too long, but I just wanted to jump

in to say hi and let you know a little about my son. I hope you are

feeling a little better about RSS. Check out MAGIC. I know others

have suggested it, but I wanted to reitterate it.

magicfoundation.org. Take care and hope to hear from you soon,

Jodi R.

, 27 months RSS. 18 lbs. 12 oz. and I don't know his length

right now. Time to have him measured! )

> Hello Everyone,

> My name is . My son has been oing back and forth to

endos.

> for the past 6 months and he is only 10 months old. Now they think

> he has RSS. We have an appointment with the doctor's again next

week

> to test for it. I am scared. I don't know what to expect or what

> having RSS means. Will he have mental slowness or just growth

> development problems. I want to do everything I can for my son so

he

> can have the best life possible. Can someone please help me and

> inform me on what to expect. The doctor's can tell me one thing

but

> I am more interested in the ideas and opinions in someone who is

> going through what I am going through. Thanks for your support.

> -

[Guest guest]

Hi and welcome to the group!

My name is Leah, and my daughter Olivia has RSS. (Her history is

in my last post to Kerri.) Rest assured that mentally and

cognitavley our kids are just fine! Please ask any questions that

you can think of, there is a great wealth of information here and

we're like a family.

Leah, mom to 9 years and Olivia 4.75 years, 18lbs, 33 " , RSS,

OI, lots of meds

> Hello Everyone,

> My name is . My son has been oing back and forth to

endos.

> for the past 6 months and he is only 10 months old. Now they

think

> he has RSS. We have an appointment with the doctor's again next

week

> to test for it. I am scared. I don't know what to expect or what

> having RSS means. Will he have mental slowness or just growth

> development problems. I want to do everything I can for my son so

he

> can have the best life possible. Can someone please help me and

> inform me on what to expect. The doctor's can tell me one thing

but

> I am more interested in the ideas and opinions in someone who is

> going through what I am going through. Thanks for your support.

> -

[Guest guest]

Hi and welcome to the group!

My name is Leah, and my daughter Olivia has RSS. (Her history is

in my last post to Kerri.) Rest assured that mentally and

cognitavley our kids are just fine! Please ask any questions that

you can think of, there is a great wealth of information here and

we're like a family.

Leah, mom to 9 years and Olivia 4.75 years, 18lbs, 33 " , RSS,

OI, lots of meds

> Hello Everyone,

> My name is . My son has been oing back and forth to

endos.

> for the past 6 months and he is only 10 months old. Now they

think

> he has RSS. We have an appointment with the doctor's again next

week

> to test for it. I am scared. I don't know what to expect or what

> having RSS means. Will he have mental slowness or just growth

> development problems. I want to do everything I can for my son so

he

> can have the best life possible. Can someone please help me and

> inform me on what to expect. The doctor's can tell me one thing

but

> I am more interested in the ideas and opinions in someone who is

> going through what I am going through. Thanks for your support.

> -

[Guest guest]

,

You need to become a member of our group. Magic foundation is

full of inform to all your questions. they answer question not even

doctors can answer.

Our daughter Gaby was diagnois with RSS on May 2003 at the age of 8

months. I was just as scared and full of question as you are. Just

take thing one day at a time. Gaby is under weeght and size, but

mentally is is as shape as a whistle. She is 23 months now and I

just finished pottey training. All children at drifferent, some

children have ADD and some don't.

This site is great at answering you question. I am sure that

will soon me answering you question, she is he queen bee of

the group.

Good Luck and our prayer are with you and your son.

Stella,

Mom of Amani 7 yr non-rss, 5 yrs non-rss and gaby 23 month RSS

> Hello Everyone,

> My name is . My son has been oing back and forth to

endos.

> for the past 6 months and he is only 10 months old. Now they

think

> he has RSS. We have an appointment with the doctor's again next

week

> to test for it. I am scared. I don't know what to expect or what

> having RSS means. Will he have mental slowness or just growth

> development problems. I want to do everything I can for my son so

he

> can have the best life possible. Can someone please help me and

> inform me on what to expect. The doctor's can tell me one thing

but

> I am more interested in the ideas and opinions in someone who is

> going through what I am going through. Thanks for your support.

> -

[Guest guest]

hi kristen!!!

i see you have a lot of response already, but i just wanted to

welcome you as well!!! where are you from? ia m in nj, my son is 3

1/2yrs. he attends preschool 5x a week and receives some slight OT

and PT there. other wise besides being small for his age, he is

24lbs 4oz and 34 3/4 " (where's 18-24months clothes), he is a very

active and happy child. feel free to email me at jlcals2003@

yahoo.com (no space after @) and i am sure that some one mentioned

the magic foundation, they are a great org. for support and info!!!

take care and hope to hear from you!!1

jodie c. (one of 4 jodis on the list)

> Hello Everyone,

> My name is . My son has been oing back and forth to

endos.

> for the past 6 months and he is only 10 months old. Now they

think

> he has RSS. We have an appointment with the doctor's again next

week

> to test for it. I am scared. I don't know what to expect or what

> having RSS means. Will he have mental slowness or just growth

> development problems. I want to do everything I can for my son so

he

> can have the best life possible. Can someone please help me and

> inform me on what to expect. The doctor's can tell me one thing

but

> I am more interested in the ideas and opinions in someone who is

> going through what I am going through. Thanks for your support.

> -

[Guest guest]

Hi, my name is and I have a daughter almost 8 months old.

We have been concerned with her growth since my 32nd week of

pregnancy. There was no obvious growth after that. At 36 weeks they

did an ultrasound and could not find anything obvious but 2 1/2 weeks

later, still measuring the same I had her at 5 lbs. 6 oz. and 18 1/2

inches. Now, today she is 24 inches and 12 pounds. Her pediatrician

has closely monitored her growth and has always been concerned, but

didn't feel the need to send us to a specialist until she fell off

the charts even more and fell off her normal growth curve. She has

undergone blood tests for basic problems that could result in failure

to thrive. Nothing was found and she was sent to a genetisist. We

live near Cincinnati Ohio so we go to Children's Hospital. The

doctors first impression was she looks like an RSS baby. HE said

because she had IUGR (cause unknown) and her body's growth has stayed

below the 2nd percentile while her head growth remains

normal....about the 25th or so percentile. She has a wide, broad

forehead, slightly triangular face, facial measurments and all

around " the look " . She doesn't have many of the other possible

symptoms.

He said as for the other syptoms, they vary because this syndrome can

be slight to severe and anywhere in between. THey do a weekly

meeting and discuss cases and show info and pictures and they all

agree on the diagnosis but it is not official yet. THis morning,my

husband, daughter and I all had a blood test called the uniparental

disomy to compare the 7th chromosome to compare it with our and see

if hers is different than it should be (2 copies of the mothers

etc...). But he says only 10% of people with RSS can be diagnosed

with this test...so who knows? We will have results in a month. She

also underwent a chromosome study to check all her chromosomes for

anything else that can be similar to RSS. Everything came back normal

so it points more towards RSS.

She seems to have no devolopmental problems. She is sitting well,

beginning to crawl, babbling, she's just very tiny and not getting

much bigger! That's another concern for the docs, only gaining 7 oz.

in 1 1/2 months. I don't think she'll ever outgrow newborn clothes!

SHe is undergoing a 2nd urinalysis to see if they can figure out

anything. There was some concern with the results of one previously.

THe doctor said she may have some devlopmental problems in the

future but a lot of kids don't. I'm still new at this and that's

basically all I know. What kind of test is he receiving? Good

luck.

> Hello Everyone,

> My name is . My son has been oing back and forth to

endos.

> for the past 6 months and he is only 10 months old. Now they think

> he has RSS. We have an appointment with the doctor's again next

week

> to test for it. I am scared. I don't know what to expect or what

> having RSS means. Will he have mental slowness or just growth

> development problems. I want to do everything I can for my son so

he

> can have the best life possible. Can someone please help me and

> inform me on what to expect. The doctor's can tell me one thing

but

> I am more interested in the ideas and opinions in someone who is

> going through what I am going through. Thanks for your support.

> -

[Guest guest]

-

Welcome to the group, I know this can be very overwhelming. My daughter is 12

months old and we still don't have a definate " answer " per say. What I am

focused on is treating for what she needs. She gets extra calorie foods,

hi cal formula, and receives infant development in the home for therapy. RSS

does not typically carry with it long term developmental delays. For me, one of

the biggest things I learned early on is how important it is to feed your child

through the night to avoid hypoglycemia. I don't know how much information you

already have but I would be willing to talk with you - feel free to email me

privately if you wish. Jane, mom to - SGA ?RSS 12 months 13# 13oz today -

26 " , Gavin 4 yrs non RSS, and Aidan 2 yrs nonRSS.

[Guest guest]

Judy I'll keep you and your son in my prayers too.grannylunatic@...

Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out.

[Guest guest]

Judy,

I know that I got the it's either cancer or sarc-- and it is the sarc back in 1992.

I am surprised that they are doing a medistinoscopy instead of a bronchoscopy. Bronch's are so much easier on the body. I guess they want to be sure that what is outside his lungs is sarc.

I hate the idea that this is something we can genetically give to our kids-- the good news is they know now that we are missing a specific protein on a DNA chain--and so can start to taylor our meds to that issue.

In the meantime, know that we are here for you- both and that we're going to be seeing his as the simple sarc that can be addressed easily.

In my prayers,

Tracie************************************** See what's free at http://www.aol.com.

[Guest guest]

We stopped in for a little visit yesterday. He looks so scared, Mom's

can tell.

His mediastinoscopy is scheduled for this coming Friday. The surgeon

said he would have an answer then, I'm guessing they will be doing a

frozen section. My friends mother had one and they told her it was

negative for cancer the day of her surgery, then on the next tuesday

they unfortunately had to call her daughter that I worked with to

tell her the final conclusion was that her mom had ovarian cancer.

Which took her mothers life in a short time.

The extra sad part is that the nurse that I worked with also

developed ovarian cancer and died about two years after her mom. She

was only 37 years old at that time.

Anyway when I saw my doc last week he insisted that I take Xanax as

he is concerned that this current stress might just make my current

sarcoid symptoms worse. My doc is such a dear friend and he knows me

like a book. Each time Bob and I have gone in for a visit since we

told him about Joe he always says I'm praying for your family.

Anyway Joe's work has been terrific. He is the boss of his department

at the airport, then there is Carl who supervises the bosses. He told

Joe to not worry about work, If he needs time off for anything just

let him know as his health comes first.

Yesterday Joe said that Carl, the supervisor told him the story of

his friend who didn't act quickly on a CT report and ended up losting

his life.

Thank you everyone for your prayers, hugs and love you have sent my

way. They really do give me strength to get through this.

Some times I read some of your great posts, last night he said he was

really impressed with how close we all are.

Right now I think I could use one of those ice bra's for my heart

which feels like it's breaking, but unfortunately they don't have

leopard underware in my size.

Love and Hugs to all

Judy in PA

Judy in PA