Normal EEG but abnormal symptoms

[Guest guest]

I'm really trying to learn about this disease and understand what's

going on with me. I have short term memory loss, numbness and tingling

in my hands. I hava difficulty understanding complex instruction be it

verbal or written. I drop things constantly, I mean my cellphone has

been dropped so much that it's taped together now. After stressing

these symptoms over and over again, 5 months now. I was sent for an

EEG which I was sure would be abnormal to validate my symptoms but

it's not. My EEG was normal. Can someone help me understand? I'm also

scheduled for cognitive testing, will they could back normal as well?

Please someone . . . . advise. Thanks

[Guest guest]

I have short term memory loss, numbness and tingling in my hands. I hava difficulty understanding complex instruction be it verbal or written. I drop things constantly, I mean my cellphone has been dropped so much that it's taped together now. After stressing these symptoms over and over again, 5 months now. I was sent for an EEG which I was sure would be abnormal to validate my symptoms but it's not. My EEG was normal. Can someone help me understand? I'm also scheduled for cognitive testing, will they could back normal as well?

The cognitive testing (Neuropsych testing) may very well substantiate your complaints.

Like you, my EEG was normal, but I flunked several areas of the Npsyc tests. Each section of the tests requires a different part of the brain to be functioning to complete the task.

What happens is that we end up with vasculitis. This is inflammation of the blood vessels. If this swelling is happening in the part of the brain that controls the problem solving, multi-tasking part of the brain, then you will have deficits with those tasks. If it is a recall test, for short-term memory, and you can't repeat the story back, then they know it's in that part of the brain. There will also be tests to put together puzzles, geometry shapes, etc-- and that again takes a different part of the brain to do the task.

With the combo of immunosupressants I'm on, I saw some initial improvement, and the progression seems to have slowed greatly.

One thing I did notice is that I was on Ambien for sleep. The longer I stayed on it, the more my speech became slurred, and my short-term memory was crap. The slurred speech hasn't been a problem lately, my short-term memory is still crap- but I have excellent recall for stuff I've worked with for years. Problem is I don't have the stamina to work-- and the more exhausted I get, the worse the sarc symptoms get.

With neurosarcoidosis, many of us do not have the granulomas on the brain-- it is an inflammation factor that gets screwy. It is also very hard to biopsy the brain, and if there is any other place in the body involved, it would be a better option to try to biopsy.

Many of us have been dx with fibromyalgia, and I'm convinced that if they'd ever biopsy the trigger points, they'd find that the muscle is knotted with sarcoidosis.

I do hope this helps, and you are not nuts, psychotic or a hypochondriac. These are real issues, and need real help.

Another short note to the newbie, many times we are told to take antidepressants. This is actually a good idea, and your MD is suggesting them because with chronic pain and fatigue comes the disruption of the sleep cycle. When you aren't sleeping, all your cognitive and emotional functions and hormones are sent to cyberspace, and you can't function. If you get the seratonin and norephinephrine levels balanced out, not only will you function better, but your pain will decrease also!

It would be great if the MD's explained that to you-- but they don't really get it either. They just read about it, and have forgotten why these are suggested, but it might work.....

Take care,

Tracie

NS Co-owner/moderatorGet a sneak peek of the all-new AOL.com.

[Guest guest]

Sorry this answer is so old. My neurologist sent me to a neuropsychologist, they test people they believe have a brain injury or some sort. He found things going on that I didn't know about....weakness in my right hand, hard for me to do intricate manuevers with that hand, some memory loss, etc. He was very helpful. Alot of the tests they do for sarc come back normal and then the sarc will pop up like "suprirse".....Connie Floriday99y wrote: I'm really trying to learn about this disease

and understand what's going on with me. I have short term memory loss, numbness and tingling in my hands. I hava difficulty understanding complex instruction be it verbal or written. I drop things constantly, I mean my cellphone has been dropped so much that it's taped together now. After stressing these symptoms over and over again, 5 months now. I was sent for an EEG which I was sure would be abnormal to validate my symptoms but it's not. My EEG was normal. Can someone help me understand? I'm also scheduled for cognitive testing, will they could back normal as well? Please someone . . . . advise. Thanks

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[Guest guest]

This answer is pretty old too , but I have had two incidents with "drop-hand" where your hand just drops at the wrist and you can't move in any direction. Your fingers are useless. I have had EEG's done and the neuro says its a pinched nerve from the elbow or the top of your shoulder running down your arm. It goes away on its own, but takes awhile (4 mos or so) and comes back slowly . It sucks when you are right handed and its your right hand! Debbie T.Connie Griffis wrote: Sorry this answer is so old. My neurologist sent me to a neuropsychologist, they test people they believe have a brain injury or some sort. He found things going on that I didn't know about....weakness in my right hand, hard for me to do intricate manuevers with that hand, some memory loss, etc. He was very helpful. Alot of the tests they do for sarc come back normal and then the sarc will pop up like "suprirse".....Connie Floriday99y wrote: I'm really trying to learn about this disease and understand what's going on with me. I have short term memory loss, numbness and tingling

in my hands. I hava difficulty understanding complex instruction be it verbal or written. I drop things constantly, I mean my cellphone has been dropped so much that it's taped together now. After stressing these symptoms over and over again, 5 months now. I was sent for an EEG which I was sure would be abnormal to validate my symptoms but it's not. My EEG was normal. Can someone help me understand? I'm also scheduled for cognitive testing, will they could back normal as well? Please someone . . . . advise. Thanks Looking for a deal? Find great prices on flights and hotels with Yahoo! FareChase.

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