Guest guest Posted July 15, 2000 Report Share Posted July 15, 2000 Hi Alice, No need to worry! You will never see or feel that tube. It goes in when you are asleep and comes out before you are fully awake. I think most of us will tell you pretty much the same thing... you go to the OR and remember getting on the table (barely) and the next thing you know you are waking up in your room! Honest. Don't fret over it, just concentrate on the new you! Karin Eby MGB 9/20/99 -86 lbs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2000 Report Share Posted July 15, 2000 Alice, Being put to sleep (not being in control) was a big concern for me also. That was a factor in choosing this surgery. My surgery on 6-2 was 32 min. Even though I didn't like it I figured I could do it. You get an opportunity to speak to the anesthesiologist before surgery (while in the holding room). Tell them your concern and I am certain they can make sure they can help you with it. Best of luck. Darlene TCBACE@... wrote: > Hi everyone, > To those who have had the surgery...My biggest concern is being put > to > sleep. Do any of your remember having the breathing tube still in > when you woke up? Or was it already out when you came around? > Thanks, > Alice > > ------------------------------------------------------------------------ > Get great brand name shoes with just the click of a mouse. Check out > the huge selection at Zappos.com, the Web's Most Popular Store! > http://click.egroups.com/1/6994/3/_/453517/_/963676336/ > ------------------------------------------------------------------------ > > This message is from the Mini-Gastric Bypass Mailing List at Onelist.com > Please visit our web site at http://clos.net > Get the Patient Manual at http://clos.net/get_patient_manual.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 In a message dated 07/15/2000 10:53:13 AM Central Daylight Time, TCBACE@... writes: << Do any of your remember having the breathing tube still in when you woke up? Or was it already out when you came around? >> I had the same fear. I have no recollection of the tube being put in out being taken out. le seven weeks post op Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 Alice, When I woke up I did not have any breathing tubes. They do check you about 3-4 x's a day to see if you are breathing successful. Hope this helps. in Durham moving to Chapel Hill soon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 I think if you go to egroups and click on my groups it will take you to what groupls you are subscribed to and you can click on them and change your preferences. If that doesn't work you could unsubscribe and then resubscribe giving you the options again of you want to get email or just read the posts from the website. Hope this helps! Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 In a message dated 7/16/2000 2:45:26 PM Eastern Daylight Time, TCBACE@... writes: << Does anyone know how I can continue to read/send posts on the egroups website but stop receiving the e-mails to my regular e-mail? >> go to www.egroups.com click on mini gastric bypass on the left hand side of page, when page opens in the right hand corner you will see where it says modify, click on that, when page comes up on the right just click on the line where it says web only and that will stop it from being in your email, you will just need to go to the egroups mini gastric bypass site to read and reply to posts. Hope this helps. Cathy in Lenoir, NC Pre-op BMI 42 A journey of a thousand miles begins with a single step Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 Alice Eubanks wrote: > > Does anyone know how I can continue to read/send posts on the egroups > website but stop receiving the e-mails to my regular e-mail? > Computer Class 101 here... > Thanks, > Alice Go to http://www.egroups.com Sign in, using your email address and password. On the top of the next page you see, there should be some blue tabs that say " Home, " " My Groups, " and " Help. " Click on " My groups. " That will take you to a page lising the groups you are signed up for. Look for the line that says POST then MiniGastricBypass. Over to the right, you will see a click on box. Click that box and pick from " Individual emails, " " Daily Digest, " " No mail/web only " or " Unsubscribe. " Then click on the box slightly above or the one below that says " Save changes. " That's it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 > Does anyone know how I can continue to read/send posts on the egroups..... > Alice, -On the left-hand side of the message page, click " Main Page, " -On the right-hand side of the Main Page, click " Membership, " -Then click " Modify " -Then select " Don't send me email, I'll.... " -Then click " save changes " You should be done! Have a great day! Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2001 Report Share Posted June 15, 2001 hi all: i am trying to sum up some things regarding the ds vs rny.... the neg of the ds are stinky bathroom visits, need good nutrition follow up, and slower weight lose. is this correct. positives: no ulcers, better functioning stomach, bigger pouch, no or little dumping, able to eat more foods, and longer window to loose weight. please tell me if i am right... cheryl; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2001 Report Share Posted June 15, 2001 At 8:07 AM -0400 6/15/01, star00066@... wrote: hi all: i am trying to sum up some things regarding the ds vs rny.... the neg of the ds are stinky bathroom visits, need good nutrition follow up, and slower weight lose. is this correct. The stink varies from person to person and is not always the same for every person. While generally onerous, it is not always as bad as some fear it to be. I believe that all WLS that involves intestinal bypass requires nutritional follow up. I believe that the rate of weight loss, at least for the first 6 months, is about the same. positives: no ulcers, better functioning stomach, bigger pouch, no or little dumping, able to eat more foods, and longer window to loose weight. Not sure if the window is longer. --Steve please tell me if i am right... cheryl; ---------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 A co DSer is going to most likely have a revision.... she is continuing to lose weight at a very quick rate and Dr. Rabkin believes it is time to do this... the question is?????? have any of you had revisions becasue you were losing too rapidly and how was the revision and how was the process of " gaining " ? or stabilizing? Any information any of you have whether you are a Rabkin patient or not, would be greatly appreciated! Thanks, Vicki in Sac .... I am not the one who needs the Revision 80lbs to go.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 Vicki, I am pre-op, so I can only tell you that the literature suggests very high success rates for revisional surgery to SLOW DOWN or stop excess weight loss. In most cases they will lengthen the common limb where bile and food are mixed. This will increase absorption of fats, which generally does the trick. It will also lessen some of the nasty side effects. If there is protien malnutrition involved then they will need to lengthen the alimentary (food absorbing) limb at the expense of the pancreatic limb (which carries bile). Dr. Rabkin starts with a 40% alimentary, 60% pancreatic limb (soo does Dr. Hess). Dr. Anthone and some others start with a 50%/50% split between the two limbs so that the risk of protien defficiency and excess weight loss is minimized (and the expense of some risk of not enough weight loss). In extreme cases they bowel continuity is restored (effectively eliminating the malabsorption part of the surgery) but 75% of the stomach was permantly removed, so the restrictive part of the sugery cannot be reversed. The upshot is that there is a very good prognosis (absent any really serious malnutrition problems - and even then the outlook is good). Hope that helps. Hull pre-op : waiting for consultation with Dr. Anthone > A co DSer is going to most likely have a revision.... she is continuing to lose weight at a very quick rate and Dr. Rabkin believes it is time to do this... the question is?????? have any of you had revisions becasue you were losing too rapidly and how was the revision and how was the process of " gaining " ? or stabilizing? Any information any of you have whether you are a Rabkin patient or not, would be greatly appreciated! > > Thanks, > > Vicki in Sac .... I am not the one who needs the Revision > > 80lbs to go.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 Our list owner had a revision (lengthening of the common tract), and her weight went up a little bit and has stabilized. I also know one other Rabkin patient who had her common tract lengthened, and it worked well too. She put back on about 20 pounds or so and is feeling great. Both and this other lady ultimately landed at final weights that are close to ideal. If I recall correctly, they both said that the revision was a piece of cake compared to the original surgery. In Hess' first 440 DS patients, 8 of them underwent a lengthening of the common channel due to low protein and excess weight loss. In his published report (found on the DS website), Hess states that, " Lengthening the bowel works quite well and stops the excessive weight loss and low protein. " M. --- in Valrico, FL, age 38 Starting weight 299, now 156 Starting BMI 49.7, now 26.0 Lap DGB/DS by Dr. Rabkin 10-19-99 http://www.duodenalswitch.com Direct replies: mailto:melanie@... > Re: QUESTION > > > A co DSer is going to most likely have a revision.... she is > continuing to lose weight at a very quick rate and Dr. Rabkin > believes it is time to do this... the question is?????? have > any of you had revisions becasue you were losing too rapidly > and how was the revision and how was the process of > " gaining " ? or stabilizing? Any information any of you have > whether you are a Rabkin patient or not, would be greatly > appreciated! > > Thanks, > > Vicki in Sac .... I am not the one who needs the Revision > > 80lbs to go.... > > ---------------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 Hi Susiecue, Lucy here, I have ulcers in my mouth right now. I am not on Prednisone but I do have RP. I have been plagued with them most of my life. I can't really say that RP causes them, but I do think it plays a big part in the occurrence of the outbreaks. Some bouts come with a " sour stomach " and others when I am unusually bothered by something going on in my life. You know, " STRESS " . Just in case you have not heard about Rembrandt toothpaste, (made especially for the prevention of ulcers, or canker sores), it really has helped me a lot. Hope this has helped some. Love and Prayers, Lucy Question > Has anyone had problems with sores in their mouth? They rheumy asked me > about this on Thurs. when I was there, of course I had none then but I did > have a couple over the weekend. They are at the back of the roof of my > mouth & last a couple of days. Sort of like a little pimple. Is this from > the pred or the RP? > > Also are there any numbers out there as to how many of us there are. > Someone had told me 210 in the world. I ran this by the rheumy & she said a > lot more because she has treated 10-15. Just curious. > > Hope you are all feeling better. I firmly believe in the resting because > since I have settled down a little I am feeling pretty good. Went down to > 40 of the pred yesterday so I am keeping my fingers crossed. > > Love, > > Susiecue > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 Hi Susiecue, Lucy here, I have ulcers in my mouth right now. I am not on Prednisone but I do have RP. I have been plagued with them most of my life. I can't really say that RP causes them, but I do think it plays a big part in the occurrence of the outbreaks. Some bouts come with a " sour stomach " and others when I am unusually bothered by something going on in my life. You know, " STRESS " . Just in case you have not heard about Rembrandt toothpaste, (made especially for the prevention of ulcers, or canker sores), it really has helped me a lot. Hope this has helped some. Love and Prayers, Lucy Question > Has anyone had problems with sores in their mouth? They rheumy asked me > about this on Thurs. when I was there, of course I had none then but I did > have a couple over the weekend. They are at the back of the roof of my > mouth & last a couple of days. Sort of like a little pimple. Is this from > the pred or the RP? > > Also are there any numbers out there as to how many of us there are. > Someone had told me 210 in the world. I ran this by the rheumy & she said a > lot more because she has treated 10-15. Just curious. > > Hope you are all feeling better. I firmly believe in the resting because > since I have settled down a little I am feeling pretty good. Went down to > 40 of the pred yesterday so I am keeping my fingers crossed. > > Love, > > Susiecue > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 Susiecue, I also get sores in my mouth but they are usually on the inside of my lip or way down the back of my throat. Mine are not from the Prednisone because I had them long before I started taking that. Sometimes I get them in conjunction with a flare!! Have a Great Day! Kathi > >Reply-To: Rpolychondritis >To: <Rpolychondritis > >Subject: Question >Date: Mon, 12 Nov 2001 11:10:17 -0800 > >Has anyone had problems with sores in their mouth? They rheumy asked me >about this on Thurs. when I was there, of course I had none then but I did >have a couple over the weekend. They are at the back of the roof of my >mouth & last a couple of days. Sort of like a little pimple. Is this from >the pred or the RP? > >Also are there any numbers out there as to how many of us there are. >Someone had told me 210 in the world. I ran this by the rheumy & she said >a >lot more because she has treated 10-15. Just curious. > >Hope you are all feeling better. I firmly believe in the resting because >since I have settled down a little I am feeling pretty good. Went down to >40 of the pred yesterday so I am keeping my fingers crossed. > >Love, > >Susiecue > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 Susiecue, I also get sores in my mouth but they are usually on the inside of my lip or way down the back of my throat. Mine are not from the Prednisone because I had them long before I started taking that. Sometimes I get them in conjunction with a flare!! Have a Great Day! Kathi > >Reply-To: Rpolychondritis >To: <Rpolychondritis > >Subject: Question >Date: Mon, 12 Nov 2001 11:10:17 -0800 > >Has anyone had problems with sores in their mouth? They rheumy asked me >about this on Thurs. when I was there, of course I had none then but I did >have a couple over the weekend. They are at the back of the roof of my >mouth & last a couple of days. Sort of like a little pimple. Is this from >the pred or the RP? > >Also are there any numbers out there as to how many of us there are. >Someone had told me 210 in the world. I ran this by the rheumy & she said >a >lot more because she has treated 10-15. Just curious. > >Hope you are all feeling better. I firmly believe in the resting because >since I have settled down a little I am feeling pretty good. Went down to >40 of the pred yesterday so I am keeping my fingers crossed. > >Love, > >Susiecue > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 coralie have sores in her mouth; even when she'is without pred. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 coralie have sores in her mouth; even when she'is without pred. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2001 Report Share Posted November 17, 2001 Susiecue, I have a medic alert bracelet that I wear all the time now. Yes it is important to have one especially if you have a surpressed immune system. The back of mine says Relapsing Polychondritis Immunosuppressed takes medication. Also has a 1-800 number to call and my identification number. I feel much more secure knowing I have this bracelet. I went to the emergency room one time and I couldn't remember what I took for meds. I was having a migraine that was like a stroke. Pretty scary. I have taken Imuran for years and couldn't remember it. Now I don't have to remember anything. It is on the bracelet and card. If you get a bracelet you can update the meds as they change just give them a call or go to the wed site. Lots of Love Glenda Is it wise to get a medic alert bracelet? If so what do you put on it? Someone had suggested it. It will be a week tomorrow that I am down to 40 of pred. I am feeling pretty good. No flares yet. I am also not pushing & doing well. I am tired but I have only been sleeping around 5-6 hours a night, I think the pred is causing that. Take care & have a pain free weekend. Love, Susiecue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2001 Report Share Posted November 17, 2001 Susiecue, I have a medic alert bracelet that I wear all the time now. Yes it is important to have one especially if you have a surpressed immune system. The back of mine says Relapsing Polychondritis Immunosuppressed takes medication. Also has a 1-800 number to call and my identification number. I feel much more secure knowing I have this bracelet. I went to the emergency room one time and I couldn't remember what I took for meds. I was having a migraine that was like a stroke. Pretty scary. I have taken Imuran for years and couldn't remember it. Now I don't have to remember anything. It is on the bracelet and card. If you get a bracelet you can update the meds as they change just give them a call or go to the wed site. Lots of Love Glenda Is it wise to get a medic alert bracelet? If so what do you put on it? Someone had suggested it. It will be a week tomorrow that I am down to 40 of pred. I am feeling pretty good. No flares yet. I am also not pushing & doing well. I am tired but I have only been sleeping around 5-6 hours a night, I think the pred is causing that. Take care & have a pain free weekend. Love, Susiecue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2001 Report Share Posted November 18, 2001 In a message dated 11/17/01 10:24:05 AM Pacific Standard Time, Linetech@... writes: << Is it wise to get a medic alert bracelet? If so what do you put on it? Someone had suggested it. >> Susiecue.....Boy you asked the wrong person. LOL Now I will have to start nagging you til you get one... YES....We ALL need a medic alert bracelet!!!!! If you don't have one, then now is the perfect time....Ask for one for Christmas. LOL I have a number of things wrong so I called them... They are so helpful, the will ask for all your illnesses, meds, allergies, etc and then decide what needs to be put on the bracelet..If you have a very simple case, you can do it yourself on the computer. But Please get one... It is important that all medical professionals know that we have an autoimmune disease and what meds we are taking... If we cant tell them, it is important that someone can...and Medic alert will get it right. (my husband wont).!! The lady there also told me that she would tell them about the problem with intubating us if the need arises... Please get on soon... They make pretty ones now too. LOL I'll be checking on you Susiecue...Just ask Judy, Glenda and the rest. Here is the info in case you don't have it: Call 1- or www.medicalert.org They have some good specials for Christmas and it's it's worh it to save your life. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2001 Report Share Posted November 18, 2001 In a message dated 11/17/01 10:24:05 AM Pacific Standard Time, Linetech@... writes: << Is it wise to get a medic alert bracelet? If so what do you put on it? Someone had suggested it. >> Susiecue.....Boy you asked the wrong person. LOL Now I will have to start nagging you til you get one... YES....We ALL need a medic alert bracelet!!!!! If you don't have one, then now is the perfect time....Ask for one for Christmas. LOL I have a number of things wrong so I called them... They are so helpful, the will ask for all your illnesses, meds, allergies, etc and then decide what needs to be put on the bracelet..If you have a very simple case, you can do it yourself on the computer. But Please get one... It is important that all medical professionals know that we have an autoimmune disease and what meds we are taking... If we cant tell them, it is important that someone can...and Medic alert will get it right. (my husband wont).!! The lady there also told me that she would tell them about the problem with intubating us if the need arises... Please get on soon... They make pretty ones now too. LOL I'll be checking on you Susiecue...Just ask Judy, Glenda and the rest. Here is the info in case you don't have it: Call 1- or www.medicalert.org They have some good specials for Christmas and it's it's worh it to save your life. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2001 Report Share Posted November 20, 2001 --- Kathleen wrote: > Hi all! > > Went to see the rheumy yesterday and he confirmed > the diagnosis. He did a > chest x-ray and saw some calcification in my > trachea. Has anyone else had > this? The Dr. didn't seem to think it was a > terrible thing... > p> > Kathleen - when I was first diagnosed the rheumy xrayed my throat and said there was some narrowing of the trachea, but not too bad. They (rheumy and pulmonologist) now think that a lot of my 'asthma' is due to rp (so do I). I was put on pred straight away as I was having an ear flare, which was also red and swollen. My nose feels uncomfortable from time to time but I don't have pain in my throat. However I lose my voice when having a flare so they usually believe me. My good news is that I have much better breathing since I have been on methotrexate. I was able to keep off pred for a year, but have been on 10mg or less for the last 18mnths. I have slight ear pain sometimes, but nothing like before. My joints continue to be sore, but again nothing incapacitating. I also have a hole in my septum, but noy painful, but it bleeds in dry weather which is a little gross, sorry!! I don't know if any of this helps you, it takes a while to work it all out!! Also keep notes of your symptoms and duration, so that you can give the rheumy accurate information. If you are worried call him, even if he doesn't seem interested!! Take care and feel better, love Liz __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2001 Report Share Posted November 20, 2001 --- Kathleen wrote: > Hi all! > > Went to see the rheumy yesterday and he confirmed > the diagnosis. He did a > chest x-ray and saw some calcification in my > trachea. Has anyone else had > this? The Dr. didn't seem to think it was a > terrible thing... > p> > Kathleen - when I was first diagnosed the rheumy xrayed my throat and said there was some narrowing of the trachea, but not too bad. They (rheumy and pulmonologist) now think that a lot of my 'asthma' is due to rp (so do I). I was put on pred straight away as I was having an ear flare, which was also red and swollen. My nose feels uncomfortable from time to time but I don't have pain in my throat. However I lose my voice when having a flare so they usually believe me. My good news is that I have much better breathing since I have been on methotrexate. I was able to keep off pred for a year, but have been on 10mg or less for the last 18mnths. I have slight ear pain sometimes, but nothing like before. My joints continue to be sore, but again nothing incapacitating. I also have a hole in my septum, but noy painful, but it bleeds in dry weather which is a little gross, sorry!! I don't know if any of this helps you, it takes a while to work it all out!! Also keep notes of your symptoms and duration, so that you can give the rheumy accurate information. If you are worried call him, even if he doesn't seem interested!! Take care and feel better, love Liz __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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