Guest guest Posted August 7, 2007 Report Share Posted August 7, 2007 Hello Group! I am glad to have you all! My name is Cheyenne. I'm a happily married 31 year old stay home mom of 3 boys ages: 9 , 5, and 3. I live in the Sierra Nevadas of California with our beloved pets: Sammy the snake (ball python), Royce Semper Fido the German Shorthaired Pointer (yes, I gave him a Marine Corps name even though I'm a Navy veteran), and our pet rats Daddy and Junior (who are not snake food.....I feel guilty feeding rats to the snake, so I had to keep some as pets). I haven't been diagnosed with sarcoidosis yet, but depending when I get my results from my Sjogren's registry study and deliver them to my Rheum. he will diagnose me. I marched into his office last week with kids in tow (and all sugared up) and demanded treatment for lupus. He said, " I believe you have Sarcoidosis, but I need to see the Sjogren's test results, and run a couple more tests before I'll diagnose you. " Long story short. After 7+ years of being dry and miserably fatigued, I'm seeing the light at the end of the tunnel. As soon as I receive my results (in my hand) I can call my Rheum. and they will overbook to get me in. How sweet is that? I'm looking forward to chatting with you all. :-) Cheyenne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2007 Report Share Posted August 7, 2007 Hi, Cheyenne. Welcome to the group. You will find this a place to learn & teach, receive support, comfort & sometimes a lecture (or gentle nudge!). You can ask any question, vent, cry, whine, even cuss (to a point). Many of us were so anxious to get a diagnosis, only to find that sometimes having a diagnosis doesn't bring the resolution we expected. I truly hope that, whatever your doctor decides, that you will start on a course of treatment that gives you relief of symptoms & improved health. But whatever happens, we are here with cheers, tears, laughter & sometimes just plain silliness. Whatever it takes. So I look forward to hearing the results of your tests & your doc's opinion. Wishing you the best possible news & glad that you found us! Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: New member introDate: Tue, 07 Aug 2007 15:13:18 -0000 Hello Group!I am glad to have you all! My name is Cheyenne. I'm a happily married 31 year old stay home mom of 3 boys ages: 9 , 5, and 3. I live in the Sierra Nevadas of California with our beloved pets: Sammy the snake (ball python), Royce Semper Fido the German Shorthaired Pointer (yes, I gave him a Marine Corps name even though I'm a Navy veteran), and our pet rats Daddy and Junior (who are not snake food.....I feel guilty feeding rats to the snake, so I had to keep some as pets). I haven't been diagnosed with sarcoidosis yet, but depending when I get my results from my Sjogren's registry study and deliver them to my Rheum. he will diagnose me. I marched into his office last week with kids in tow (and all sugared up) and demanded treatment for lupus. He said, "I believe you have Sarcoidosis, but I need to see the Sjogren's test results, and run a couple more tests before I'll diagnose you." Long story short. After 7+ years of being dry and miserably fatigued, I'm seeing the light at the end of the tunnel. As soon as I receive my results (in my hand) I can call my Rheum. and they will overbook to get me in. How sweet is that?I'm looking forward to chatting with you all.:-) Cheyenne See what you’re getting into…before you go there Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2007 Report Share Posted August 7, 2007 Hi, Cheyenne. Welcome to the group. You will find this a place to learn & teach, receive support, comfort & sometimes a lecture (or gentle nudge!). You can ask any question, vent, cry, whine, even cuss (to a point). Many of us were so anxious to get a diagnosis, only to find that sometimes having a diagnosis doesn't bring the resolution we expected. I truly hope that, whatever your doctor decides, that you will start on a course of treatment that gives you relief of symptoms & improved health. But whatever happens, we are here with cheers, tears, laughter & sometimes just plain silliness. Whatever it takes. So I look forward to hearing the results of your tests & your doc's opinion. Wishing you the best possible news & glad that you found us! Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: New member introDate: Tue, 07 Aug 2007 15:13:18 -0000 Hello Group!I am glad to have you all! My name is Cheyenne. I'm a happily married 31 year old stay home mom of 3 boys ages: 9 , 5, and 3. I live in the Sierra Nevadas of California with our beloved pets: Sammy the snake (ball python), Royce Semper Fido the German Shorthaired Pointer (yes, I gave him a Marine Corps name even though I'm a Navy veteran), and our pet rats Daddy and Junior (who are not snake food.....I feel guilty feeding rats to the snake, so I had to keep some as pets). I haven't been diagnosed with sarcoidosis yet, but depending when I get my results from my Sjogren's registry study and deliver them to my Rheum. he will diagnose me. I marched into his office last week with kids in tow (and all sugared up) and demanded treatment for lupus. He said, "I believe you have Sarcoidosis, but I need to see the Sjogren's test results, and run a couple more tests before I'll diagnose you." Long story short. After 7+ years of being dry and miserably fatigued, I'm seeing the light at the end of the tunnel. As soon as I receive my results (in my hand) I can call my Rheum. and they will overbook to get me in. How sweet is that?I'm looking forward to chatting with you all.:-) Cheyenne See what you’re getting into…before you go there Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2007 Report Share Posted August 8, 2007 Hi Cheyenne, So where in the Sierra Nevada's do you live? I'm in Magalia, just a bit above Paradise, which is just a bit above Chico. So- we're not far from each other. It's a 10 minute drive to Hwy 70- and up the Feather River Canyon to the Sierras. I do love it here! Wow, 3 boys- you have your hands full! LOL! I have one 24 yo-- that I may offer for sale. . . I take it that the MD has run chest xrays? Any sign of sarc in your lungs? A lot of us have the Sjorgens issue- but it is more that the sarc has screwed with our lymphs- and we either don't sweat at all (me) and then there is Rose-- who is a sweatbox. Dry eyes, mouth, etc are a huge problem, and treatment generally consists of stuff to eleviate the symptoms, but so far- no cure. Artificial tears help the eyes, Biotene mouthwash and toothpaste and gum- all help with the mouth dryness. The fatigue issue is part of any of auto-immune diseases, so pacing (yeah right, with 3 boys..) is most important. Hang in there- and let the doc figure out what he is treating- because if they do start treating for something- it can cover up what is really going on. Take care, Tracie NS Co-owner/moderatorGet a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2007 Report Share Posted August 8, 2007 Hi Cheyenne, So where in the Sierra Nevada's do you live? I'm in Magalia, just a bit above Paradise, which is just a bit above Chico. So- we're not far from each other. It's a 10 minute drive to Hwy 70- and up the Feather River Canyon to the Sierras. I do love it here! Wow, 3 boys- you have your hands full! LOL! I have one 24 yo-- that I may offer for sale. . . I take it that the MD has run chest xrays? Any sign of sarc in your lungs? A lot of us have the Sjorgens issue- but it is more that the sarc has screwed with our lymphs- and we either don't sweat at all (me) and then there is Rose-- who is a sweatbox. Dry eyes, mouth, etc are a huge problem, and treatment generally consists of stuff to eleviate the symptoms, but so far- no cure. Artificial tears help the eyes, Biotene mouthwash and toothpaste and gum- all help with the mouth dryness. The fatigue issue is part of any of auto-immune diseases, so pacing (yeah right, with 3 boys..) is most important. Hang in there- and let the doc figure out what he is treating- because if they do start treating for something- it can cover up what is really going on. Take care, Tracie NS Co-owner/moderatorGet a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
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