RE: mosaicgirl

[Guest guest]

Hi,

I just wanted to write that my neuro deosn't really care, he will want me to come and see him, if I am dying and not before! i have complained many times about this and he said that you have to live with it.

About my eyes, I have blurry vision when I am tired and it takes a while for it to pass. That's something \i have learnwed to live with and hope everytime it appears, it'll go away.

VP

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: advise: asapDate: Wed, 28 Mar 2007 18:55:37 -0000

Pomy,I tried to answer you yesteday but could not access the site. I had thespeaking issues the first year that I became ill. It still happens fromtime to time when I am extremely tired and I will start stutteringfirst.I have had two episodes where I could not speak at all. I could read,write and understand but nothing would come out. My thoughts were therebut I could not voice them. Since I am not working, I will take a quiettime out, go into a quiet dark room, watch a movie, listen to relaxingmusic and rest. This usually goes away for me in about 24 hours. Attempting to multi-task is what does it for me. I can do and thinkabout 1 thing at a time. Period.As far as the numbness I get this too. I also having burning feelingsabout my teeth on the left side quite a bit. My numbness will nowextend sometimes across the forehead and down and around on the rightcheek and chin.You will want to report these symptoms to your doctor; mine aredocumented and we know from MRI that it is not anything like a stroke(all of these can be symptoms of other diseases).Now I have a question for you or others: if you have double or blurredvision, does it seem to worsen with fatigue or does it stay the same.Terri G.

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