LOGANS CT SCAN

[Guest guest]

HI WELL WE GOT BACK WED OF LAST WEEK FROM LOGANS TRIP TO THE

HOSPITAL. I HAVE NEVER DEALT WITH THESE ANESTHESIOLOGISTS BEFORE AND

I THINK THE MEDICINE THEY GAVE HIM WAS WRONG . HE DID NOT WANT TO

WAKE UP AND WHEN HE DID HE WAS REALLY WET IN THE LUNGS.

IT BOTHERED ME BECAUSE OF HIS STRIDOR AND LARENGO(sp ?) MALACIA HAS

SEEMED TO GET WORSE,BUT THESE DR.S TREATED ME LIKE I WAS STUPID.

THEY HAD NEVER DEALT WITH A CHILD WHO HAS HAD A MITOCHONDRIAL

DISORDER.

HAVE ANY OF YOU HAD TO CALL IN YOUR PED TO HELP OUT IN A

SITUATION SIMILAR TO THIS?

I WAS SOO MAD!!!!!

I FELT THEY DID NOT TAKE LOGAN SERIOUSLY!!! BUT DR.GILMER CAME TO

THE RESCUE AND ADMITTED HIM AND WATCHED HIM CLOSELY FOR AWHILE.

HIS STATS DROPPED AND TOOK AWHILE TO GET BACK UP. BUT HE CAME

THROUGH WITH FLYING COLORS.

WE GOT THE REPORT BACK FRI. WHICH WAS NOT GOOD. LOGAN HAS TUMORS

GROWING IN HIS SINUSES AND IS SHOWING SIGHNS OF SMALL STROKES,AFTER

THE CT I NOTICED HE WAS DROOLING TERRIBLE AND HIS TOUNGUE HAD REALLY

SEMED TO LOSE CONTROL. IT WAS VERY LAZY. WE WILL KNOW MORE WHEN WE

GO TO THE DRS ON THE 17TH. HIS HEMATOLOGIST PUT HIM BACK ON AN

ANTIBIOTIC FOR THE SINUITIS BUT THAT IS JUST A PRECAUTIONARY METHOD.

SOME TIMES I DON'T KNOW IF THESE DR.S ACTUALLY KNOW WHAT THEY ARE

DOING !!!!! I THINK IT IS LILKE THEY PLAY ROULETTE WITH LOGAN OH

LETS SPIN THE WHEEL AND ADD A NEW MED! IF NOT LETS KEEP INCREASING

IT UNTIL LOGAN WANTS TO SLEEP ALL DAY. I DON'T KNOW DO ANY OF YOU

GUYS GET FRUSTRATED WITH DRS?

WELL NOW SINCE HE HAS HAD BACK TO BACK ANTIBIOTICS WE ARE

FIGHTING DEHYDRATION WITH LOGAN BECAUSE IT HAS GIVEN HIM

DIARRHEA,AND HE DOES NOT WANT TO DRINK.

I GUESS I AM JUST RANTING AND RAVING ,AND I AM SORRY . BUT I NEEDED

TO VENT. SOMETIMES I THINK WE, AS PARENTS HAVE TO EDUCATE THESE

DRS!!! HAVE ANY OF YOU FELT THIS WAY?

WELL THANK YOU GUYS SOO MUCH FOR LETTING ME GET THIS OFF MY

CHEST !!!!!!

I APPRECIATE ALL OF YOU SOO MUCH. JENNIE THE PROUD MOM OF LOGAN