Guest guest Posted February 20, 2003 Report Share Posted February 20, 2003 It sounds to me like it might be your neck. That's what is was for me. It took several trips to the chiropractor, but it improved immensely. I always have minor neck pain, but I just can't handle the headaches. Whenever I get one, I go the chiropractor, and one treatment can usually fix it. Usually when I get a headache, I can trace it to a fall, or banging my head on something (which, I do way too often). It doesn't take much to get my neck out of wack. If your doctor tells you it is a tension headache, then your neck could be the cause. If your muscles are always in a knot, they tend to pull the neck vertebrae out of alignment and cause all kinds of problems, especially if you have had a neck injury in the past. The other thing that helps a tension headache is massage. If you sit at a computer all day, it's hard not to store tension in your neck and shoulders. My advice would be to keep pursuing this. Your present doctor doesn't seem to be much help, but there are many ways to reduce sending all you tension to your shoulders and neck. None of these methods are as easy as taking a pill, but they definitely work better. Take Care BarbaraJean Headaches Do you suppose the headaches are somehow wls related? Maybe a deficiancy in something? I can't imagine what brings them on, but they start around the base of my neck, progress to my jaw, then into my ears;it feels like they are going to burst. Then wraps around my head like a vice and the top of my head feels like it is full of cement. They start about an hour after I wake up and get worse as the day goes on and last for many days. The current one is on day 4. My doc says they are stress/tension headaches, but my life feels like a breeze compared to the last 10-15 years, I don't get it?? I wonder if anyone else (in the wls community) is having this problem? Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2003 Report Share Posted February 20, 2003 It sounds to me like it might be your neck. That's what is was for me. It took several trips to the chiropractor, but it improved immensely. I always have minor neck pain, but I just can't handle the headaches. Whenever I get one, I go the chiropractor, and one treatment can usually fix it. Usually when I get a headache, I can trace it to a fall, or banging my head on something (which, I do way too often). It doesn't take much to get my neck out of wack. If your doctor tells you it is a tension headache, then your neck could be the cause. If your muscles are always in a knot, they tend to pull the neck vertebrae out of alignment and cause all kinds of problems, especially if you have had a neck injury in the past. The other thing that helps a tension headache is massage. If you sit at a computer all day, it's hard not to store tension in your neck and shoulders. My advice would be to keep pursuing this. Your present doctor doesn't seem to be much help, but there are many ways to reduce sending all you tension to your shoulders and neck. None of these methods are as easy as taking a pill, but they definitely work better. Take Care BarbaraJean Headaches Do you suppose the headaches are somehow wls related? Maybe a deficiancy in something? I can't imagine what brings them on, but they start around the base of my neck, progress to my jaw, then into my ears;it feels like they are going to burst. Then wraps around my head like a vice and the top of my head feels like it is full of cement. They start about an hour after I wake up and get worse as the day goes on and last for many days. The current one is on day 4. My doc says they are stress/tension headaches, but my life feels like a breeze compared to the last 10-15 years, I don't get it?? I wonder if anyone else (in the wls community) is having this problem? Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 Hi - I agree with you. I always use an anti-inflammatory drug if I have to because we have autoimmune disease which is inflammatory. Even with a C -section I didn't use acetaminophen (it is a pain relief only drug-didn't use morphine or oxycontin either). Acetaminophen is primarily metabolized by the liver. Since Graves' patients often have elevated liver enzymes even without being treated, and they often are worse when treated, it seems foolish to take a drug, like acetominophen when you don't have to. Sodium doesn't worsen our disease. Iodine does. Take care, dx & RAI 1987 (at age 24) > Since developing Graves' I've had lots of sinus headaches.and other muscle aches. I understand aspirin is bad to take as it affects thryoid levels and ibuprofen is bad because it has the red coloring and hence iodine. The recommendation at Mediboard was to go with acetaminophen because naproxen sodium is high is sodium. However, I'm not sure what the drawback is with sodium per se, and I like being able to use an anti-inflammatory pain killer (like naproxen, and unlike acetaminophen/Tylenol). > > I like motherwort tincture, a few drops in water. I understand it slows the heart a bit so should be used cautiously for people for whom that's a problem (not me!). It has a relaxing effect on the muscles so is a good light sleep aid, too. Also, I once knew a physical therapist who used massage of the temple pressure points for headaches, with some success. > > Best wishes, > B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 I have found a great remedy. I have had both sinus headaches and migraine headaches (not at the same time) since having Graves. What I have found that works for me is the herb " Feverfew " . It is available by a number of manufacturers. My health food store has about 6 different ones. I take 2 capsules the minute I get a headache. Sometimes I have to take a total of 6 capsules a day. *The great thing is that the headaches begin to go away within less than an hour of starting the " Feverfew " . It's amazing! (Previously, I have tried at least 40 other homeopathic or herbal remedies...but only the Feverfew has worked for me. I feel fine after taking it.) Best, Ron > Since developing Graves' I've had lots of sinus headaches.and other muscle aches. I understand aspirin is bad to take as it affects thryoid levels and ibuprofen is bad because it has the red coloring and hence iodine. The recommendation at Mediboard was to go with acetaminophen because naproxen sodium is high is sodium. However, I'm not sure what the drawback is with sodium per se, and I like being able to use an anti-inflammatory pain killer (like naproxen, and unlike acetaminophen/Tylenol). > > I like motherwort tincture, a few drops in water. I understand it slows the heart a bit so should be used cautiously for people for whom that's a problem (not me!). It has a relaxing effect on the muscles so is a good light sleep aid, too. Also, I once knew a physical therapist who used massage of the temple pressure points for headaches, with some success. > > Best wishes, > B. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 , Have you tried: - high doses of Vitamin B2? - highish doses of magnesium (800-1000 mg a day of magnesium citrate)? - acupuncture? All of these things are both safe during pregnancy AND *clinically* proven to reduce or eliminate migraines. It was the magnesium and acupuncture combo that ELIMINATED mine. And before I got started on those things, I had 48 headaches of 12 hours or longer in 42 days. Yep. I had 'em bad. And also had CAT scans and MRIs, vision tests, bloodwork, and neurological examinations to try to figure out what was wrong with me. Good luck, Ziobro Headaches To: ossg-pregnant I unfortunately have suffered from migraines for years and am on some pretty strong medication for them. I was hoping that I would be one of the lucky women whose migraines got better in the 2nd and 3rd trimester, but it is not to be. I am glad to hear from all the talk on headaches that I seem to be in the minority. Hope all is well with everyone, Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 , Have you tried: - high doses of Vitamin B2? - highish doses of magnesium (800-1000 mg a day of magnesium citrate)? - acupuncture? All of these things are both safe during pregnancy AND *clinically* proven to reduce or eliminate migraines. It was the magnesium and acupuncture combo that ELIMINATED mine. And before I got started on those things, I had 48 headaches of 12 hours or longer in 42 days. Yep. I had 'em bad. And also had CAT scans and MRIs, vision tests, bloodwork, and neurological examinations to try to figure out what was wrong with me. Good luck, Ziobro Headaches To: ossg-pregnant I unfortunately have suffered from migraines for years and am on some pretty strong medication for them. I was hoping that I would be one of the lucky women whose migraines got better in the 2nd and 3rd trimester, but it is not to be. I am glad to hear from all the talk on headaches that I seem to be in the minority. Hope all is well with everyone, Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 Donna, I have a fifteen year old girl and a 10 year old daughter who both suffer from bad migraines. They take amitriptaline to help with the migraines. My son who is 12 also gets them but not as bad as my girls. We have MIDS Maternally Inherited Dysautonomia Mitochondrial Myopathy. Maybe if your daughter would like to talk with another High school girl I know Kira would be glad to e-mail with her. Just let me know. Kira attends full time High School and also has an IEP. She is in the Honors course work line. Anyway hang in there. Patience is definitely something that Mito requires, especially with these older ones! Hugs O - Mom to Kira (15) Mito Myopathy, MIDS, Neuro Vascular Dystrophy, G-Tube VSD Repair (Open Heart 2000), CVS Cyclic Vomiting Syndrome - (12)Mito Myopathy, MIDS, Neuro Vascular Dystrophy, Stroke like episodes-Krisalynn (9) Mito Myopathy,MIDS, Neuro Vascular Dystrophy, Urinary complications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 I've been asked if I have migraines, but my severe headaches seem to be due to either sinus problems or jaw problems. I never thought my sinuses were that bad until they did a CAT scan and found my sinuses are very different in size, one side is half the size of the other, completely inapparent from the exterior. Basically my sinus headaches feel like a railroad spike through my head, sometimes with auras, and I sometimes end up having mito episodes because the pain is so bad. Some things that work for me are Breathe Right strips (also good if you have sleep issues) worn overnight, guanifenesin (not sure if it's spelled right, but it is an ingredient in cough syrup that helps clear out congestion), and sleeping with my head elevated. One simple thing that my dad just had was a sinus X-ray - he has chronic bad breath, and it is due to a chronic sinus infection. The X-ray showed that his sinus walls were significantly thickened from inflammation and infection. The pain of a sinus headache is unrelenting, and can occur in many different, or multiple , parts of the head, including the forehead, the back of the neck, the temples, the cheeks, and the eyes. I am very interested as to how migraines are diagnosed, as I noted above I've been asked if I have them, but I say no since treating sinus issues minimizes my headache pain. Take care, RH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 Migraines are diagnosed by history. Mine are very typical, says my neuro, so he felt there was no doubt. Barbara > I am very interested as to how migraines are diagnosed, as I noted > above I've been asked if I have them, but I say no since treating > sinus issues minimizes my headache pain. > > Take care, > RH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 Hi Kim, Thank you for emailing me back, I am sorry it has taken me so long to respond just been very busy. She was given Lexpro for her Dysautonomia and won't take that all the time just for short periods thanks again and take care. Hugs, Donna K ---- gabby244 gabby244@...> wrote: > Donna, > > What a tough time for your daughter. Teens want so much to > be " normal " and they think by ignoring what they don't like it will > go away. Unfortunately, they haven't had enough life experiences to > have the tools to handle all of this. Heck, I know adults who never > outgrew this tendency. > > Do the headaches occur around the time of her period? My son does > complain of headaches quite often. He has allergic rhinitis and > won't use his nose spray (sound familiar?)to be able to breathe so > he gets headaches from all the swelling. Also, I found that when he > hasn't been drinking enough fluids he will often get a headache. > > My son is 21 years old with 93% mito load (he has MERRF) who still > insists that he can work full time. He tried full time during his > internship for graduation from his tech school and did a 40 hour > week one time. After that, he did anywhere from 15-30 hours and > that was a struggle for him. Yet he insists that now that he is > looking for a " real " job he can do full time. He just wants to be a > normal guy. He wants to break free from us (as most 21 year olds > do) but he knows he can't right now and might never be able to. It > breaks my heart. > > Is she close with her brother? Maybe he can talk to her. > > Keep trying with the vitamins. These kids take patience, patience > and more patience. Boy would I like to find a store who sells it. > > Kim in Pennsylvania > > > > > > > > Hi, > > I have a question do headaches go with mito my 16 year old > daughter has complained of a headache for 2 days. She also says she > is so tired and feels like she has no energy. She is back in school > for now has been turtored at home last year she does have an IEP, > and I can't get her to take any advil or her COQ10 and vitamins. I > wonder if something isn't going on I am getting a little concerned I > told her if they are not going to get better she will have to go to > the doctor. She also does not want to hear anything about mito her > 20 year old brother is more severe she thinks there is nothing wrong > with her when she had all the testing and came back at greater than > 95% with mito. We were told at one time by a doctor that she could > feel this way about the mito issues cause she is afraid she will end > up like her brother. Any advice would help thanks. > > Hugs, > > Donna K > > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 " Diane Duenas " wrote: > > Ive been having horrible headaches that even vicodin wont take away. > Im thinking they could be: > > 1. stress > 2. hormones....the lupron and provera for my upcoming surgery > > They are really bad...anyone got any other ideas?? > Hi, ... I used to get terrible migraines, and when I could not get to the acupuncturist, I would sit in a tub full of hot water with a wet, really cold towel on my head! Something about the contrast of the hot water on your body with the extreme cold on your head really helped. It's worth a shot, and it's free and does not cause any liver damage (that I'm aware of, anyway!)!! Also, the Excedrin Migraine pills have caffiene in them, and from what I have read, you are probably cutting down on that since you have been staying away from Starbuck's, so maybe you are having some withdrawal? Good Luck, Shonda. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 Well, I think it is what you put down for #1. I started writing down when I was getting my headaches. What the weather was like, what I had done that day, what had I eaten. Come to find out when there was stress at home or work I would get a headache. So personally I think you already tagged it. Were your starbucks with caffeine? KRistie > > > Date: 2005/10/11 Tue PM 09:13:19 PDT > To: gastric-bypass-support-kaiser-patients > Subject: Headaches > > Ive been having horrible headaches that even vicodin wont take away. Im thinking they could be: 1. stress 2. hormones....the lupron and provera for my upcoming surgery They are really bad...anyone got any other ideas?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 , I know you have a taste for Starbucks. Could the headaches be from caffiene withdrawl? jeanne > > Ive been having horrible headaches that even vicodin wont take away. > Im thinking they could be: > > 1. stress > 2. hormones....the lupron and provera for my upcoming surgery > > They are really bad...anyone got any other ideas?? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 > > Ive been having horrible headaches that even vicodin wont take away. > Im thinking they could be: > > 1. stress > 2. hormones....the lupron and provera for my upcoming surgery > > They are really bad...anyone got any other ideas?? > Hi , My wife and I have been having awful headaches as well. While we usually seem to have headaches of some sort, they are usually due to job stress (yes, her too) and allergies. I finally went to my doctor and he gave me a presciption for Naseril (sp?). It's a spray that I shoot up my nose twice a day to help clear my sinuses. I had tried Beconase in the past with iffy results. So far this is helping. It hasn't completely resolved my sinus issues, but it does make them more tolerable. As for my wife, she rode out the worst of it last week...missing only one day and a half of work. She took a lot of over the counter stuff...and we both pop sudafed...and saline mist up the ol' nostrils as well. My sinuses bother me all year, but it seems worse in the fall. I have heard this is probably due to molds. I also wonder what the strain of being overweight contributes to headache pain. Hope you find some relief... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 Im still doing some caffiene, in my homemade expressos, but I heard there is less than regular coffee so dont know. I do know Im MAJOR stressed between work and school. > > > > Ive been having horrible headaches that even vicodin wont take away. > > Im thinking they could be: > > > > 1. stress > > 2. hormones....the lupron and provera for my upcoming surgery > > > > They are really bad...anyone got any other ideas?? > > > > > Hi , > > My wife and I have been having awful headaches as well. While we > usually seem to have headaches of some sort, they are usually due to > job stress (yes, her too) and allergies. I finally went to my doctor > and he gave me a presciption for Naseril (sp?). It's a spray that I > shoot up my nose twice a day to help clear my sinuses. I had tried > Beconase in the past with iffy results. So far this is helping. It > hasn't completely resolved my sinus issues, but it does make them more > tolerable. > > As for my wife, she rode out the worst of it last week...missing only > one day and a half of work. She took a lot of over the counter > stuff...and we both pop sudafed...and saline mist up the ol' nostrils > as well. > > My sinuses bother me all year, but it seems worse in the fall. I have > heard this is probably due to molds. I also wonder what the strain of > being overweight contributes to headache pain. > > Hope you find some relief... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 , I too am alergic to molds, nasty stuff. I seem to be plugged up most of the year. I am also alergic to cats, have 3 and tobacco, smoked for 7 years. Quit that 2 years ago and that is why I am having the surgery. I put on 70 pounds. Yikes. It was the final push for me to seek out this surgery as a tool. I have been yo-yo dieting for years and now is the time to end it for good and become a healthy mom to my son. I sure would hate to leave this Earth early and force him to live with his father (the RAT). Ha Ha Jeanne > > > > Ive been having horrible headaches that even vicodin wont take away. > > Im thinking they could be: > > > > 1. stress > > 2. hormones....the lupron and provera for my upcoming surgery > > > > They are really bad...anyone got any other ideas?? > > > > > Hi , > > My wife and I have been having awful headaches as well. While we > usually seem to have headaches of some sort, they are usually due to > job stress (yes, her too) and allergies. I finally went to my doctor > and he gave me a presciption for Naseril (sp?). It's a spray that I > shoot up my nose twice a day to help clear my sinuses. I had tried > Beconase in the past with iffy results. So far this is helping. It > hasn't completely resolved my sinus issues, but it does make them more > tolerable. > > As for my wife, she rode out the worst of it last week...missing only > one day and a half of work. She took a lot of over the counter > stuff...and we both pop sudafed...and saline mist up the ol' nostrils > as well. > > My sinuses bother me all year, but it seems worse in the fall. I have > heard this is probably due to molds. I also wonder what the strain of > being overweight contributes to headache pain. > > Hope you find some relief... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 , It's hard to say want is giving you the headaches, so many things can. Your stress, hormones, less caffeine, allergies, and even the vicodine. Vicodine gives me headaches, does not relieve them, just other pains not sure why. So with so much going on for you it can be one or a combination of things. Hope they get better. Donna Diane Duenas wrote: Im still doing some caffiene, in my homemade expressos, but I heard there is less than regular coffee so dont know. I do know Im MAJOR stressed between work and school.> >> > Ive been having horrible headaches that even vicodin wont take away. > > Im thinking they could be:> > > > 1. stress> > 2. hormones....the lupron and provera for my upcoming surgery> > > > They are really bad...anyone got any other ideas??> >> > > Hi ,> > My wife and I have been having awful headaches as well. While we > usually seem to have headaches of some sort, they are usually due to > job stress (yes, her too) and allergies. I finally went to my doctor > and he gave me a presciption for Naseril (sp?). It's a spray that I > shoot up my nose twice a day to help clear my sinuses. I had tried > Beconase in the past with iffy results. So far this is helping. It > hasn't completely resolved my sinus issues, but it does make them more > tolerable.> > As for my wife, she rode out the worst of it last week...missing only > one day and a half of work. She took a lot of over the counter > stuff...and we both pop sudafed...and saline mist up the ol' nostrils > as well.> > My sinuses bother me all year, but it seems worse in the fall. I have > heard this is probably due to molds. I also wonder what the strain of > being overweight contributes to headache pain.> > Hope you find some relief...> > >Donna JordonDSJordon@... Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 OMG, Vicodin gives me HORRIBLE headaches. Migraines. As does Codiene. I can't take them. Laurie __________________________________ Yahoo! Mail - PC Magazine Editors' Choice 2005 http://mail.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Hi everyone, I am one of the first member of the group. I do not email much anymore because it is hard for me to read all of the emails and type. Anyway, I know a lot of you have headaches, which I have also during my illness. I am having them more now just about everyday. I go to bed with them and wake up with them. Just wanted to know if anyone has them that much and that bad. If so what are they doing for them. I take pain meds. for them but it does not help that much. Also has anyone been to Duke Hospital in NC. I went there at first and they told me they did not know much about Neuro sar. they said I would be better off with my Dr. in Greenville NC, which is one of the top Drs. dealing with neuro sar. Any help would be appreciated. Love to you all, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 , My first thought and the most benign and easy to take care of issue is dehydration. That alone can cause one nasty, nasty headache. The second is that at night, as we relax and start to go to sleep, we end up with our oxygen saturation levels dropping way low. So if your lungs are already compromised, then that may be an easily correctable problem. Do you have sleep apnea? You may need additional oxygen during the night-- and they can check that issue with a simple sleep study and/or a pulse oxyemeter that will measure your oxygen levels while you sleep. Lastly, I'd be checking with the neurologist. If you have meningitis or another issue going on with increased inflammation-- a spinal tap can diagnosis this. Ct's or MRI's are also necessary to rule out other organic problems. Do get this checked out, and take care of yourself. It's good to see you post. Blessings, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Hi ,I lived in NC for 5 yrs but never went to Duke for medical. I go to the s Hopkins Sarcoidosis Clinic in Baltimore (I live in Florida). You will be in my prayers.Blessings,Beckyiiii@... wrote: Hi everyone, I am one of the first member of the group. I do not email much anymore because it is hard for me to read all of the emails and type. Anyway, I know a lot of you have headaches, which I have also during my illness. I am having them more now just about everyday. I go to bed with them and wake up with them. Just wanted to know if anyone has them that much and that bad. If so what are they doing for them. I take pain meds. for them but it does not help that much. Also has anyone been to Duke Hospital in NC. I went there at first and they told me they did not know much about Neuro sar. they said I would be better off with my Dr. in Greenville NC, which is one of the top Drs. dealing with neuro sar. Any help would be appreciated. Love to you all, Expecting? Get great news right away with email Auto-Check.Try the Yahoo! Mail Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Hi , I have no answers for you about treatment, but I have the same problem with headaches......I have a headache all the time and sometimes it gets so bad that I have to go to bed and sleep for awhile to get it to be tolerable. My Doctors tell me to take pain medicine and that is all they can come up with! I get so upset with them, but for some reason, most Doctors do not really understand about sarcoidosis and neurosarcoidosis! It is time they learned! Hang in there.......we are all in this together. Hugs, Darlene NS Co-Owner/moderator Hi everyone, I am one of the first member of the group. I do not email much anymore because it is hard for me to read all of the emails and type. Anyway, I know a lot of you have headaches, which I have also during my illness. I am having them more now just about everyday. I go to bed with them and wake up with them. Just wanted to know if anyone has them that much and that bad. If so what are they doing for them. I take pain meds. for them but it does not help that much. Also has anyone been to Duke Hospital in NC. I went there at first and they told me they did not know much about Neuro sar. they said I would be better off with my Dr. in Greenville NC, which is one of the top Drs. dealing with neuro sar. Any help would be appreciated. Love to you all, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2007 Report Share Posted January 16, 2007 Hi , I have the same problem with headaches, they are so bad that I am tempted to cut my head off some times. My dr has prescribed Topamax for me which works about 95% of the time, does not take to totally away, but enough to carry on.. But without it I don't know what I would do because nothing else worked and I've tried just about everything else. iiii@... wrote: Hi everyone, I am one of the first member of the group. I do not email much anymore because it is hard for me to read all of the emails and type. Anyway, I know a lot of you have headaches, which I have also during my illness. I am having them more now just about everyday. I go to bed with them and wake up with them. Just wanted to know if anyone has them that much and that bad. If so what are they doing for them. I take pain meds. for them but it does not help that much. Also has anyone been to Duke Hospital in NC. I went there at first and they told me they did not know much about Neuro sar. they said I would be better off with my Dr. in Greenville NC, which is one of the top Drs. dealing with neuro sar. Any help would be appreciated. Love to you all, Quote Link to comment Share on other sites More sharing options...
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