Re: Was Happy Birthday - reply to

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Hi , So your doctors feel the Sarc caused your CVP shunt? All my doctors said I don't have to worry about it going to my heart. I'm diabetic and have to keep to a strict diet because the Predisone raises my blood sugar. I've lost 30 lbs and been able to keep it off but it's hard not eating the foods I love and also expensive buying low sugar foods. Looks like I'm going to have faith in my doctors and give this time. I'd like to beat this and get back to my old self. I'm sorry to hear about your daughters husband, and all you've been through so far. Your reply has been helpful, I have a lot to think about. Have a great weekend! Rick wrote: Hi Rick! No, I don't mind questions at all. My answers aren't professional only my own reactions & thoughts. Besides, it's 3:30 am here I have all the time in the world so ask away. I really have not been impressed with the Cytoxan. The massive weight gain began about 6 months into it. I had to stop buying bags of brown sugar because I would crave it & sit in front of the tv & eat it straight out of the bag. I didn't really have the nausea & anorexia they had as a side effect of the Cytoxan but I also was prescribed Anzemet, which if your insurance won't cover it is now $700 for 3 little pills. I told the doc &

quit the pills & my stomach is sometimes upset but I have lost 32 of the 50 or 60 I gained. As far as improvements I haven't really seen anything but I don't know where the sarc would have me without it. The neurologistwants to put me on either Imuran or CellCept but I have to be released from the sarc doc first. They want 3 more months & anothe MRI before they'll even discuss it. I had to have my cvp shunt replaced last year because it failed & my hydro returned which kinda makes me feel like the treatment isn't working. My neurogsurgeon feels the sarc is what clogged the shunt last year. I have too many docs! The sarc doc says he feels the junk on my spine is sarc, not bulging disks & he wants to keep me on Cytoxan to keep me able to walk. Are they giving you Cytoxan as a treatment option? I have been off work for nearly 3 years now and don't really see anytime soon of going back to work, at least not full time. I am fortunate that my daughter

is grown with 1 adult & 2 nearly adult children and I don't have a house that I have to worry about trying to keep. It's been one helluva adjustment to the change in income but I have always been a thrift store junkie! LOL The hardest part is my daughter lost her husband to lung cancer 8 months ago & I don't really have much left to help her out. OK NOW TRACIE HELP ME OUT WITH THE TECHNICAL STUFF! It's a hard pick between the treatment options. Me, personally, I wanted to take the nastiest treatment while I was still physically strong. My problem at my job was memory lose of procedures, typing speed & errors. It broke my heart because I helped set those rates when others were telling me to slow down! LOL My choice at work were take a medical leave orrrrrr the HR woman & my supervisor had folders full of ammo to let me go so I took the medical leave. FMLA? It's been so long I can't remember. The COBRA was extremely expensive and since you mentioned a house I

assume medicaid is not an option. So many things to contemplate & neurosarc leaves my brain foggy & tired & VERY UNORGANIZED. The after Cytoxan steroid ramble is off & running! That's my story & I'm sticking to it! grannylunatic (AT) yahoo (DOT) com Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games.

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[Guest guest]

Rick My shunt is in my brain because I developed hydrocephalus from unknown causes in 1997. My sarc is in the brain & spine so far. I had a negative on the lung flush and a negative on an eye biopsy. The shunt I have is in the frontal lobe.I forget which ventricle that is. I also have had sarc clogging the 4th ventricle but they have gotten that to open up some. I was told I would be on a maintenance medication probably for the rest of my life. I can live with that as long as it's not prednisone or Cytoxan. I have some bone loss already and of course that means another doctor and more medicine for that. Happy Fathers Day to all the dads out there! Incase I finally do get to sleep and don't wake up until Monday!grannylunatic@...

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