Re: mito doctor for my daughter

[Guest guest]

Hi , Welcome to the group. We live in Golden Valley. I am

going to be gone this weekend, but will be home late Sunday night.

If you want post to me off group with your phone number and we can

talk about docs, who you have seen, who I and others see and

symptoms that your daughter has. My son is 5 1/2 and has had

problems since birth. We received the mito diagnosis a year and a

half ago.

Geri-Anne and Wyatt, Complex I

>

>

> Hi, my name is and I was wanting to locate a local mito

> doctor. I'm located in the Minneapolis/St. area. I have

some

> concerns about my 4 year old daughter. I would appreciate any

help

> or info you can give me.

>

[Guest guest]

,

If you are looking for a geneticist, Dr. Whiteman at Mayo Clinic in

Rochester is who we see. He is great and specializes in mitochondrial

disorders. The phone number is . That is 's phone

number, she does the scheduling. If you are looking for a neurologist, we

see Dr. Ritter at Minnesota Epilepsy Group. He is the one that

actually diagnosed our twin daughters within three days of being in the

epilepsy unit. He has at least one other mito family that I know of that he

takes care of. The phone number there is .

If you get a chance, please tell us about your daughter. There are a lot of

knowledgeable women (and men) in this group.

Good luck!

Kim - Mom to and Lindsey (3) Partial Complex I

mito doctor for my daughter

>

>

>

> Hi, my name is and I was wanting to locate a local mito

> doctor. I'm located in the Minneapolis/St. area. I have some

> concerns about my 4 year old daughter. I would appreciate any help

> or info you can give me.

>

>

>

>

>

>

>

>

>

>

> Please contact mito-owner with any problems or questions.

>

[Guest guest]

One of the top four Mito docs is near you; Dr. Whiteman at Mayo clinic.

He is a geneticist. We live in Des Moines, Iowa and see him regularly.

Mayo is a great place to go for all around medical care for Mito and

possible Mito kids/adults. Not sure if he can take new patients, but it is

worth the try. Call or

I too have a four year old affected by Mito. Her name is Asenath. My

1 year old daughter, yesterday , also has Mito. If you want to read their

stories you can go to www.caringbridge.org/ia/mitomomof9 or see a photo

collage of their lives affected by Mito at www.heartbeatsformito.org (Go to

the directory page and click on the link that talks about real look into

Mito...)

Welcome to the group. Please tell us more about your daughter.

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (11 mon.) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

mito doctor for my daughter

>

>

>

> Hi, my name is and I was wanting to locate a local mito

> doctor. I'm located in the Minneapolis/St. area. I have some

> concerns about my 4 year old daughter. I would appreciate any help

> or info you can give me.

>

>

>

>

>

>

>

>

>

>

> Please contact mito-owner with any problems or questions.

>