Re: It sucks to be Logan :(

[Guest guest]

Hi Kim:

I don't believe that is normal being swollen. So I would call and speak

to a nurse at least about what is going on. Yeah, those yellow jackets

like to hide in the most unlikely places and being in the pipe it is

also wet, which I believe they like. Didn't I read somewhere to give

them benadryl for this? As long as his breathing is fine you may not

need to worry so much. But I would give someone a call just to put your

mind at ease.

Nerenhausen

mom to Leah

smithkim@... wrote:

>We went to my in laws house for Labor day,Monday,,and the kids were in the

backyard playing on the swingset. Next thing I know,Logan is at the door

screaming his head off,,his glasses were off,,and we couldn't figure out what

had happened. We finally got it out of him that flying ants (actually Yellow

jackets)had stung him. He got stung 2 times on his finger and 1 time on his

upper/inner arm. I told my mil to get a cigarette,from my fil,,so we could make

a paste out of it. Logan started screaming " No,,I don't want to smoke a

cigarette ! " LOLOL Anyway,,we finally calmed him down and after an hour or

so,,the swelling went down,and he seemed fine. Then today,I noticed that he is

swollen again. As the day has progresses,,it has gotten more and more swollen.

His swelling on his arm is about the size of a tennis ball (not as far out,,but

as wide) and his finger is HUGE. The swelling has spread down his finger,onto

the palm of his hand,,and on the back of his hand,across all his kn!

> uckles,also. I have no idea if this is normal,,so I hope someone can let me

know. I will probably be calling the Dr tomorrow,,if it is still swollen. He

can't even move his finger. The yellow jackets were in the pipe,on the top of

the swingset,,and of course,out of all the kids to get stung,,Logan was the

'lucky one'.

> So,,ya'll get out there and check you swingsets,,those are tricky little

flying ants

>

>Kim mom to Meaghan 15 ~~Katelyn 12 Bipolar,and OCD ~~ Logan 7 Autism,congenital

myopathy,possible mitochondrial disease,and JRA ~~ and Ethan 5 and 100 % BOY

>

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[Guest guest]

That soudns VERY much like an initial allergic reaction...

The first reaction is always the mildest, and is basically the body

being 'sensitised' to the venom. The thing to remember is that

assuming this is a true reaction (safest to assume it is) every time

he gets stung after this, the reaction will only be WAY worse.. It

could be life threatning...

more often than not, the first reaction is NOT serious (as in airway

problems) but now his immune system will recognize that venom next

time he is stung, and will react WAY faster and WAY harder, and

could very will involve his airway. (im speaking from years of

severe allergy experience... lol)

What you need to do is talk to a doc ASAP and get a perscription for

an EPI pen. it is essentially a needle that you will need to keep

with you (rather Logan) ALL the time that there is any chance of

yellow jackets being around.

If he gets stung, and starts to have trouble breathing, this needle

will prevent his airway from closing (soudns terrifying, and it

is). It wont cure the reaction, but it will stop it long enough to

get him to a hospital to get treated.

This is serious. the first reaction is always mild compared to

future ones, and it sounds like his was pretty bad for a first

reaction.

Its not likely going to become a serious problem this time, as

enough time has passed and his airway hasnt become involved yet, so

its unlikely to (2 hours is usually but not always the outside

limit), however next time WILL be worse.

My brother is severly allergic to wasps, and the last time he was

stung, we HAPPENED to be driving past a hospital. He was stung on

his pinky, and we were in the ER within 4 minutes and he was already

struggling to breath... he has 2 epipens in his truck now and keeps

them on him ALL the time. I carry one, because im so allergic to

latex, that if a baloon pops in the same room as me, it can be

enough to make my throat close (even though my very first reaction

was just a rash)

the good thing is you know. and now that you know you can be

prepared for any future reactions...

but seriously talk to his doc and get an epipen!

Sorry he had to go through this, I hope hes feeling better soon!!

Keely

>

> We went to my in laws house for Labor day,Monday,,and the kids

were in the backyard playing on the swingset. Next thing I

know,Logan is at the door screaming his head off,,his glasses were

off,,and we couldn't figure out what had happened. We finally got it

out of him that flying ants (actually Yellow jackets)had stung him.

He got stung 2 times on his finger and 1 time on his upper/inner

arm. I told my mil to get a cigarette,from my fil,,so we could make

a paste out of it. Logan started screaming " No,,I don't want to

smoke a cigarette ! " LOLOL Anyway,,we finally calmed him down and

after an hour or so,,the swelling went down,and he seemed fine. Then

today,I noticed that he is swollen again. As the day has

progresses,,it has gotten more and more swollen. His swelling on his

arm is about the size of a tennis ball (not as far out,,but as wide)

and his finger is HUGE. The swelling has spread down his finger,onto

the palm of his hand,,and on the back of his hand,across all his

knuckles,also. I have no idea if this is normal,,so I hope someone

can let me know. I will probably be calling the Dr tomorrow,,if it

is still swollen. He can't even move his finger. The yellow jackets

were in the pipe,on the top of the swingset,,and of course,out of

all the kids to get stung,,Logan was the 'lucky one'.

> So,,ya'll get out there and check you swingsets,,those are

tricky little flying ants

>

> Kim mom to Meaghan 15 ~~Katelyn 12 Bipolar,and OCD ~~ Logan 7

Autism,congenital myopathy,possible mitochondrial disease,and JRA ~~

and Ethan 5 and 100 % BOY

>

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[Guest guest]

Ok,,,looks like we will be going to the Dr tomorrow,,,unless some miracle

occurs,in the night. He is really swollen. The place on his upper arm has spread

almost to his armpit,down to his elbow. It is about the size of my entire hand.

The fingers on his had are real swollen also.

I don't want ya'll to think I'm a bad mom,for not taking him sooner,,,the

problem is that we don't have insurance. Logan gets Medicaid from his SSI,,but

his ped doesn't take it,,so we have to pay cash,when we go.(Or find another

ped,,but this one has been with Logan his entire life,,so I can't bear to do

that) Money is really tight (my dh has been out of work for 3 months,,and just

started a new job last week)so,anyway,,I was hoping I wouldn't have to take him

in. BUT,,,I think it is inevitable.

Anyway,,,thank ya'll for all the great advice,,I will ask the Dr about the

epipen,for sure. Also,,while I am there,,any suggestions on getting the Dr to

order more testing on Logan,for the mito ? What kind of tests should I ask for ?

When I talked to him on Tuesday he told me that he didn't think there was any

further testing to do. All that has been done,was the biopsy. Isn't there some

blood work ? My Dr is very willing to send us anywhere and order any tests,,as

long as I ask for it. I did ask him about the fact that his biopsy said type 1

fiber predominance and type 2 fiber atrophy,,and increased mitochondrial

enzymes,,and I said isn't that a classic sign of a myopathy,and a mito disease

?He said he honestly didn't know enough about the muscles to answer that. Do

ya'll know of any websites that I could print something out to take to him

tomorrow ? Also,,the neuro said that Logan's reflexes are 'depressed'. Not sure

what that means,,,I mean,I'm depressed,,but somehow,I don't think he was talking

about emotionally.LOL

Talk to ya'll tomorrow.

Kim mom to Meaghan 15 ~~Katelyn 12 Bipolar,and OCD ~~ Logan 7 Autism,congenital

myopathy,possible mitochondrial disease,and JRA ~~ and Ethan 5 and 100 % BOY

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[Guest guest]

Kim, My daughter is also on a medicaid program, thank goodness her ped takes it! But she also has something called Children's Special Health Care Services, that picks up what primary ins. does not, including dr bills. I just have to give them a list of drs and facilities that Chelsea goes to for services. They have a whole list of conditions that qualify children for CSHCS. We live in Michigan and it is run thru our local county health dept. Chelsea's priority person at school tapped me in to this resource before we had ins for Chelsea and were paying med bills out of our pocket. CSHCS paid for most of her diagnostic testing, before medicaid, but could not pick up dr bills until she had an accepted diagnosis (she lived with just 'hypotonia' for about a year as dx).

They also have special funds to help families purchase certain needs. They paid for a vitamix blender for Chelsea, because she is tube fed and I put her on a blended, whole food diet. They will pay for ramp access to your home once in the child's lfe.

I think most states have similar services. HTH

e, Chelsea's mom, atypical Rett Syndrome (FKA nonspecific mito)