To Marla

[Guest guest]

Thank you for the words of encouragement Marla. I often find myself

pushing the envelope only to pay the price at a later time. I, too,

teach as an adjunct at a local community college. I sense this

semester will be a challenge with the current level of fatigue.

Sadly, I find it difficult to give up on the things I love to do. As

Arthur C. e once stated " The only way of finding the limits of

the possible is by going beyond them into the impossible. " I'll live

by maxim until proven otherwise. Stay well my friend. Tony

>

> Tony,

>

> I certainly know where you are coming from, ever since I was dx in

1994, I

> have told my employers bout my health, even when I go on an

interview I tell

> them, and I always got the job, and then they knew if I was sick, I

was

> really sick not just a cold. It's tough changing our world, I have

gone

> through so many changes in the past 12 years, from a night nurse on

Labor

> and Delivery, had to quit, Sarc, back to an office where I worked

before the

> hosp. they knew everything, worked there 5 years with a few

problems, then

> was able to get back on Labor and Delivery on days, with NO night

at all,

> after 2 years of that the Sarc went Neuro, memory loss, trouble with

> recalling words and processing words, and even falling after

working about 8

> hours, and my shifts were 12 hours, so had to leave that job too,

well I

> started selling Kay skin care and cosmetics, there belief is

to praise

> women to success, so that's a real self esteem booster, I've been

doing that

> for over 3 years now, of course being a nurse, is hard to give up

so for the

> past 3 years I have been teaching at a community college, pre

nursing

> classes, and have now found that even that was too much, so now I

am back to

> doing just Kay, and I think because I have this, I still feel

like I'm

> doing something, since I am my own boss, I can work when I want and

not

> work. Like I have a minor surgery tomorrow but no problem I am the

> boss! JI think unless I need to go on disability, I will be doing

> Kay.

>

> Tony do what is best for you and your family, I found pushing

myself not

> good for me or the family, I have found all my employers had no

problem

> hiring me with my disease, the hospital tried to work with me, but

the

> problem there was the memory, I had a couple times I couldn't

remember what

> the doctor was asking for, and in a critical moment that is not

good, so I

> made the choice not to stay, I didn't feel I was safe anymore. I

was just

> up on the L&D yesterday, I rarely go and visit because it is just

to painful

> still, but I am having surgery tomorrow and had to go to the hosp.

for all

> the pre-op stuff, so decided to stop and say Hi, glad I did but a

little sad

> today.

>

> Tony, sorry to rattle on, I guess I just want you to know that you

are not

> alone, and you hear many stories much like this one, in fact

rambling Rose,

> who hasn't been around much, and usually does these long emails,

was once a

> Mid wife and had to leave delivering babies too.

>

> Hang in there Tony know you have much support behind you.

>

> God bless,

>

> Marla

>