(No subject)

[Guest guest]

Tony,

I certainly know

where you are coming from, ever since I was dx in 1994, I have told my

employers bout my health, even when I go on an interview I tell them, and I

always got the job, and then they knew if I was sick, I was really sick not

just a cold. It's tough changing our world, I have gone through so many

changes in the past 12 years, from a night nurse on Labor and Delivery, had to

quit, Sarc, back to an office where I worked before the hosp. they knew

everything, worked there 5 years with a few problems, then was able to get back

on Labor and Delivery on days, with NO night at all, after 2 years of that the

Sarc went Neuro, memory loss, trouble with recalling words and processing

words, and even falling after working about 8 hours, and my shifts were 12

hours, so had to leave that job too, well I started selling Kay skin care

and cosmetics, there belief is to praise women to success, so that's a real

self esteem booster, I've been doing that for over 3 years now, of course being

a nurse, is hard to give up so for the past 3 years I have been teaching at a

community college, pre nursing classes, and have now found that even that was

too much, so now I am back to doing just Kay, and I think because I have

this, I still feel like I'm doing something, since I am my own boss, I can work

when I want and not work. Like I have a minor surgery tomorrow but no

problem I am the boss! J I think unless I need to go on

disability, I will be doing Kay.

Tony do what is

best for you and your family, I found pushing myself not good for me or the

family, I have found all my employers had no problem hiring me with my

disease, the hospital tried to work with me, but the problem there was the

memory, I had a couple times I couldn't remember what the doctor was asking

for, and in a critical moment that is not good, so I made the choice not to

stay, I didn't feel I was safe anymore. I was just up on the L & D

yesterday, I rarely go and visit because it is just to painful still, but I am

having surgery tomorrow and had to go to the hosp. for all the pre-op stuff, so

decided to stop and say Hi, glad I did but a little sad today.

Tony, sorry to

rattle on, I guess I just want you to know that you are not alone, and you hear

many stories much like this one, in fact rambling Rose, who hasn't been around

much, and usually does these long emails, was once a Mid wife and had to leave

delivering babies too.

Hang in there

Tony know you have much support behind you.

God bless,

Marla