RE: Cornstarch/blood sugar issues/help please

[Guest guest]

this happens to , he does have low blood sugar at times,

(usually first thing) and he will be shaky and totally out of sorts,

but other time during the day he will have the exact same symptoms

and his sugar will be totally fine...

i dont find the shakiness and 'upsetness?' he experiences to

necissarily be related to his sugar, although eating or drinking a

juice box also seems to help him out... it seems so out of synch.

I have considered corn starch in his evening bottle because his

mornings are often the most difficult, but he deals with some pretty

bad constipation and i hate to risk increasing it... for us right

now it seems more logical to give him bottles through the night (hes

22 months and still wakes up twice for bottles at night).

Id be interested to hear others take on the blood sugar thing, im so

confused by it all... i will be convinced it has to be low and it

will be fine, then other times i will assume from his behaviour that

its fine, and it will be 40!

muddy waters.

>

> we started Molly on cornstarch at bedtime this week in hopes to

> help regulate her sugars at night and help her to feel better in

the

> a.m. It does seem to helping her feel better in the morning. She

is

> waking up happier. The problem is this: She is now taking longer

> afternoon naps and she is very cranky, tired and shaky upon waking

> from those. Is the cornstarch affecting that? when I checked her

> sugar last evening when she woke up (at 5:45pm after a 3 1/2 hr

nap

> and five hrs after eating) it was 116. She was acting like she

> hypoglycemic but obviously her sugar did not indicate it was so.

She

> was not herself -screaming, out of her mind, and her hands her

> shaking. I finally got her to eat (she appeared ravenous) and then

> was fine. Any suggestions would be appreciated. Does anyone do the

> cornstarch in the afternoon too?

>

> Dawn

[Guest guest]

My son gets cornstarch throughout the school day. It is the only way

he can make it through the day. He weighs 44lbs and gets 12-18 TBL

of cornstarch during the day. It is a huge amount but does the

trick - usually.

Betsy - mom to Henry 6 1/2yrs - unspecified FOD and Sam - 10 months-

multiple food allergies

www.caringbridge.org/tx/jhenry

>

> we started Molly on cornstarch at bedtime this week in hopes to

> help regulate her sugars at night and help her to feel better in

the

> a.m. It does seem to helping her feel better in the morning. She is

> waking up happier. The problem is this: She is now taking longer

> afternoon naps and she is very cranky, tired and shaky upon waking

> from those. Is the cornstarch affecting that? when I checked her

> sugar last evening when she woke up (at 5:45pm after a 3 1/2 hr nap

> and five hrs after eating) it was 116. She was acting like she

> hypoglycemic but obviously her sugar did not indicate it was so.

She

> was not herself -screaming, out of her mind, and her hands her

> shaking. I finally got her to eat (she appeared ravenous) and then

> was fine. Any suggestions would be appreciated. Does anyone do the

> cornstarch in the afternoon too?

>

> Dawn

[Guest guest]

We have alot of B/S problems with Grace. She is also hypoglycemic. We used to use the cornstarch at night, and it worked great. The only problem is that she started to need more and more to sustain her, eventually we had to stop it all together due to constipation. Now we give her a high complex carb diet all day long. We have her "loving" noodles for lunch and peanut butter (chunky is the best) is a hot commodity around here. We also make sure she eats something about every two hours or so. Usually it is peanut butter crackers, apples or maybe some fruit snacks. We do have to treat her like a diabetic. We still have problems with her having shaking spells during the day, wich we are at a loss in how to treat at this point. Also we have decided not to moniter her B/S since we can tell when she is really low. I think the last time she had her blood drawn her B/S was 68, and it was within a hour of eating lunch.

Best wishes.

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[Guest guest]

My son also has Mito and an FOD. He does also have a g-tube. We used corn

starch around the clock with his formula. He uses vivonex which does not

hold his blood sugars, but the only formula he can tolerate. My son on good

days would eat some food by mouth. The food of choice was pasta. After he

would eat he would get symptoms of shaky, sweaty, once passed out, ravenous

appetite, and his mood would change.The first thing I would do was check his

blood sugar, which would be fine. I was finally told he was having dumping

syndrome. Usually with dumping syndrome you will also get diarrhea, but he

never got that. The way to solve the dumping syndrome was to give a low carb

diet. He can't tolerate fats because of the FOD, and they told me when he

wanted to eat to give him high carbs. It's very frustrating because he can't

handle carbs. When we stopped the pasta the symptoms went a way. Maybe some

of the hypoglycemic symptoms you are seeing might be related to carbs. I'm

not an expert, but thought I'd share our experience.

Cornstarch/blood sugar issues/help please

>

>

> we started Molly on cornstarch at bedtime this week in hopes to

> help regulate her sugars at night and help her to feel better in the

> a.m. It does seem to helping her feel better in the morning. She is

> waking up happier. The problem is this: She is now taking longer

> afternoon naps and she is very cranky, tired and shaky upon waking

> from those. Is the cornstarch affecting that? when I checked her

> sugar last evening when she woke up (at 5:45pm after a 3 1/2 hr nap

> and five hrs after eating) it was 116. She was acting like she

> hypoglycemic but obviously her sugar did not indicate it was so. She

> was not herself -screaming, out of her mind, and her hands her

> shaking. I finally got her to eat (she appeared ravenous) and then

> was fine. Any suggestions would be appreciated. Does anyone do the

> cornstarch in the afternoon too?

>

> Dawn

>

>

>

>

>

>

> Please contact mito-owner with any problems or questions.

>