Mayo clinic

[Guest guest]

I was just wondering if anyone has had any luck with Mayo Clinic. I

have had about every treatment there is. I am now on CellCept,

Plaquenil, and Remicade. I have been on Prednisone, Imuran,

Methotrexate, Cytoxin infusions and others. I started with over 20

lesions on by brain and the latest MRI showed more lesions and bigger.

Everyone keeps saying " you should go to Mayo " . Thats all I hear. I go

to University of Michigan Hospital and I think they are doing

everything possible. I don't think Mayo has anything else to offer. I

would love some input. Anybody had any luck there?

[Guest guest]

i just came back from mayo scottsdale, very, very disappointing. they threw me around just like docs here in calif. most if not all the test came back normal and pawned me off, that theres nothing wrong, just like sarc pts, they never looked outside the box, never took any extra time to HELP me find what was going on. I had to coerce them to do a biopsy somehow of the lymphnodes in my chest and thats the only thing that came up positive for sarcoid, and then they left it at that, no treatment, just said you're done and i went home. pretty good for a high name and high profile medical facility, ......not. sorry to burst your bubble, i don't know where your from, but if you suspect sarcoid, then the only person you need to see initially is dr. om sharma in los angeles or have the hospital doctors you have call him to get input for your treatment. his email is osharma@.... hope

everything goes well for you, keep fighting, keep going, don't give up!!!!!!!loripavey wrote: I was just wondering if anyone has had any luck with Mayo Clinic. I have had about every treatment there is. I am now on CellCept, Plaquenil, and Remicade. I have been on Prednisone, Imuran, Methotrexate, Cytoxin infusions and others. I started with over 20 lesions on by brain and the latest MRI showed more lesions and bigger. Everyone keeps saying "you should go to Mayo". Thats all I

hear. I go to University of Michigan Hospital and I think they are doing everything possible. I don't think Mayo has anything else to offer. I would love some input. Anybody had any luck there?

[Guest guest]

Hi My name is , and I live in Iowa. I go to the Mayo Clinic in

Rochester Minnesota, and I am very happy going there.

I was diagnosed with sarcoid and neurosarcoid in 1996 up in Sioux

Falls South Dakota. I had been receiving treatment there, but since

my doctor retired up there, I had to go somewhere, where they were

familiar with Sarcoid. I decided to go to the Mayo Clinic. I have

found them to be very knowledgeable, and very helpful in treating my

sarcoid. I don't know, maybe some Mayo Clinics are different then

others. But I would think they would be all the same, or I would hope

they would be the same.

I presently take Imuran, and it is working well for me.

I hope you find someone to give you the care and treatment that you so

badly need.

>

> I was just wondering if anyone has had any luck with Mayo Clinic. I

> have had about every treatment there is. I am now on CellCept,

> Plaquenil, and Remicade. I have been on Prednisone, Imuran,

> Methotrexate, Cytoxin infusions and others. I started with over 20

> lesions on by brain and the latest MRI showed more lesions and bigger.

> Everyone keeps saying " you should go to Mayo " . Thats all I hear. I go

> to University of Michigan Hospital and I think they are doing

> everything possible. I don't think Mayo has anything else to offer. I

> would love some input. Anybody had any luck there?

>