Tracie

[Guest guest]

shirley,

It is so good to see you post. You know, we miss Steve also. You are so right that his death was senseless. I know that for all of us trapped inside bodies that are less than friendly-- it is a real concern that we may end up being taken care of by someone who isn't "caring."

An update on Rose-- she is dealing with some depression issues, along with the overwhelm of this disease. As you know, when one of "us" gets into a deep funk-- we tag team and someone else will take over until we can come back. Right now, it's Rose's turn to pull back. she does need our prayers and encouragement, although I don't think she's even reading much of the email-- as even that seems like too much. She knows that I want her back- as my "sparring" partners are all to few.

Kim is either in Kuwait or back in Ohio. I hope she's gotten to the States, and has started treatment, but I will need to check htat out. Her seizures and epilepsy issues of the NS is extreme, and she's not been able to get the treatment she needs over in Kuwait.

As for me, I'm doing ok. I am going up to 7mg/kg dose of Remicade, so I know it will wear me out even more, and increase the risk of Leukemia and Lymphoma --however it beats being where Kim or Steve or Jeannie or the others have advanced to.

Thank you so very much for your very kind words- it truly does mean the world to me.

Love to you,

Tracie

[Guest guest]

Tracie, That last e-mail you sent on that subject I started you said you were "discused out". Well perhaps if I did a different approach to that matter you wouldn't be that way. If I had give you a "homework assignment" by that you had to investigative type of work on the computer you may would have a different frame of mind. You can spend anywhere from say a few minutes to hours and hours on a computer any given day. I don't have that luxury. This closest library I can go to, shorten computer time on these things from 90 minutes a day to just 60 minutes a day. If there are computers available and doesn't appear to be busy, I can and have asked for more time. Just an half hour more though. Anyway, if I had asked you what options there is for a person with P.U.D. and THEN get Sarcoidosis that you would research what any websites out there to what they say. Most of what I found in my little research I've done,

these websites mentioned Sarcoidosis patients getting P.U.D. AFTER they had develop Sarcoidosis first. I just have a frame of mind to try this just one more time. I just like you to look up these websites that I found and just digest this info. Not only for me, but for anyone that comes to this support group anytime in the future. Also take a indirect approach to a somewhat different scenario. If a person has to take certain prescriptions for a bad heart valve or muscle that is this area and THEN they develop Sarcoidosis they may not have complications. However if of the same patient then develops seizures, strokes, lung failure because of the Sarcoidosis and THEY should take a prescription form of anti-inflammatory drug such as that Prednisone. What are they going to do if taking this Prednisone has very bad drug intereaction with the patients heart medcine??? This may not be possible in the vast world of medcial scenarios, but this just a situation of a somewhat ANALOGY

WISE that is to mine. More and more as I wrote back and forth to you of what you would do for advice, it just came apparent you just don't understand what this DIMENIA is. It is just coinquently that this unrelated thing called P.U.D. that has been going on inside myself since December, 1980 has gotten worse again. It hasn't been this bad for a long time. I had always hope since I joined this group that you and others would understand this dimenia. But like I stated long time ago here with this group, I just failed like everything else in my life. One of the reasons I'am depressed is because of this dimenia situation. Please look up these websites listed below and if you still feel like you are "discussed out", well then it's useless for me to write about much of anything anymore. www.merck.com/mmpe/sec02/ch013/ch013c.html

My note: Look at these pictures. Eradication of H-pylori is stated in this website reduces the risk of stomach cancer. I never have been sucessful in eliminating this completely once and for all. In this website mentions that "S" word, namely the "S" word for Sarcoid- osis. www.health-care-information.org/diseases/peptic-ulcer-disease-gastritis.html My note: Risk Factor Heading, #4, #5, #7, #8. Self Help Heading, #3, avoid aspirin and anti-inflammatory agents. What is Prednisone, Imuran, etc? These and the rest of pre- scription drugs of the like same nature are anti-inflammatory agents as you all know. I may have what is called Zollinger-Ellison Syndrome. Look this up on the internet. This

maybe a piece of the puzzle for me that I can never rid myself of having this P.U.D. www.asge.org/nspages/practice/patientcare/96-gastritis.cfm My note: This mentions that "S" word here as well, namely that Sarcoidosis word. Just by coinquencedence that I read an article in the Grand Rapids Press this past week regarding to what I wrote above here in this e-mail. This e-mail is long enough now so I won't have that information here.

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