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It seems our kids are having fun writing e-mails and letters to one

another. Glad to see it. :) The group, however, seems to not be taking off

thus far. Too many shy kids it seems. My kids have written to a few others

through the mail or e-mail as well and it has been a neat way to connect the

kids. Even Luke, my 16 year old, has been writing back and forth with your

oldest one. :) Just wanted to let you know my kids are enjoying it. :)

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (11 mon.) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

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