Re: color changing during tantrums

[Guest guest]

,

What I have been told about autonomic dysfunction is that some

people loose the ability to sweat thus they are not able to cool

their body down as others do. THe first sign of heat intolerance in

my kids is the red cheeks!

We try to stay out of the heat esp if it is over 75. Hard here in

Ohio!

Dawn

[Guest guest]

I have seen Grace turn completely red from a tantrum, but never blue. I would wonder if he is not getting enough oxygen. I have another daughter, non mito, who when she was little would litrally pass out from them. She had a bad behavior trait in wich she held her breath during the tantrum. Luckily she grew out of it.

With the heat be extremely carefull. You described exactly what Grace does when she overheats. Try taking his temperature after he has been in for awhile. If it is still high a few hours later, he is definatly overheated. Please use every precaution that is available to you. We learned the hard way. Grace was outside on about a 85 degree day playing with the garden hose to stay cool, and drinking plenty of water. Within 20 min. she turned completely red, and ended up in the hospital for three days due to a heat stroke. Even now that she has a cooling vest, we still have to be very carefull because she still overheats quickly. For her it has drasticaly gotten worse from last summer to this.

[Guest guest]

Zipporrah turns bluish sometimes when she cries and we believe it is

due to her tracheal problems. Her oxygen often drops and causes the

bluish/grey color in her hands, feet, and especially around her mouth.

Several of my kids also deal with the red cheeks issue. Disautonomy is

assumed to be the culprit there. Even in not to warm weather we see it in

Asenath. Doesn't take much heat to affect her.

Darla: mommy to: Asenath (4) Mito, CNS Vasculitis, strokes, migraines,

seizures, G-tube, hypotonicity, disautonomy,SID, dev. delays, asthma

Zipporrah (7 mon.) Mito, strokes, SID, G-tube, asthma, trach issues,

disautonomy, hypo & hypertonicity, migraines

>From: albregra@...

>Reply-To: Mito

>To: Mito

>Subject: Re: color changing during tantrums

>Date: Sat, 31 Jul 2004 16:19:28 EDT

>

>I have seen Grace turn completely red from a tantrum, but never blue. I

>would wonder if he is not getting enough oxygen. I have another daughter,

>non

>mito, who when she was little would litrally pass out from them. She had

>a

>bad behavior trait in wich she held her breath during the tantrum.

>Luckily she

>grew out of it.

>

>With the heat be extremely carefull. You described exactly what Grace

>does

>when she overheats. Try taking his temperature after he has been in for

>awhile. If it is still high a few hours later, he is definatly

>overheated.

>Please use every precaution that is available to you. We learned the hard

>way.

>Grace was outside on about a 85 degree day playing with the garden hose to

>stay cool, and drinking plenty of water. Within 20 min. she turned

>completely

>red, and ended up in the hospital for three days due to a heat stroke.

>Even

>now that she has a cooling vest, we still have to be very carefull because

>she still overheats quickly. For her it has drasticaly gotten worse from

>last

>summer to this.

>

[Guest guest]

Hi ,

I was reading one of your responses to a question, and was wondering where you got a cooling vest for your daughter. This would benefit my son since he has temperature problems, and over heats easy.

Thanks,

Lori

Re: color changing during tantrums

I have seen Grace turn completely red from a tantrum, but never blue. I would wonder if he is not getting enough oxygen. I have another daughter, non mito, who when she was little would litrally pass out from them. She had a bad behavior trait in wich she held her breath during the tantrum. Luckily she grew out of it.

With the heat be extremely carefull. You described exactly what Grace does when she overheats. Try taking his temperature after he has been in for awhile. If it is still high a few hours later, he is definatly overheated. Please use every precaution that is available to you. We learned the hard way. Grace was outside on about a 85 degree day playing with the garden hose to stay cool, and drinking plenty of water. Within 20 min. she turned completely red, and ended up in the hospital for three days due to a heat stroke. Even now that she has a cooling vest, we still have to be very carefull because she still overheats quickly. For her it has drasticaly gotten worse from last summer to this.

Please contact mito-owner with any problems or questions.

[Guest guest]

They do sell cooling hats, neckbands and wristbands at www.heatreliefdepot.com. These would still cool him, without the weight. As far as the vests go, the newer ones are much lighter. We have a new one for Grace ordered, and she is using the older ones now. It is true that they are heavy for a little kid. She is only two and does complain about it. They also sell pressurized ice water misters at Wal Mart. They are only about 12 dollars. I just saw them last week, and plan on going back this week to get one. We have been using a normal spray bottle filled with refrigerated water and ice, on top of wearing the vest. We have a hat, neckband and wristbands ordered and are eagerly awaiting them. They should be here this week, I pray.