IVIg and NeuroS? Medical tests and Doctor's right to force me to take tests.

[Guest guest]

Hi! It's been a while since I last Posted. Most of the time I just

don't have the energy or just can't fight the pain that comes at me

from typing.

I get so discouraged that I just don't know what to do anymore. The

medical group that is the largest around and most of the Doctor's I

see

belong to can make it very difficult on anyone trying to fight a

chronic illness that is so devastating.

I like I would guess like most of you have some very bad money

problems.

I have to pick and choose what Doctors I can see, what tests I can

afford to have and before the new Medicare Plan " D " , what Meds I

could

afford to take. Now I just have to fight with the Insurance for the

plan on what Meds they'll approve.

Well, I guess that's enough background for now. Needless to say

money

I once had is long gone and the best I can do is explain to the poor

people who try to collect money that I owe them is that I will give

them what I can when I can and that I am not trying to hide or get

away

without paying the money that I know I owe. I recently had a Doctor

(my

Primary Care MD) threaten me with a Certified Letter that I had to

sign

for, that unless I rescheduled some tests, I cancelled, he and the

group he worked for was going to stop treating me. There was several

reasons why I felt I should cancell the tests for now anyway, but no

matter how justified I was in cancelling I think it's should be my

choice to have quite a few tests that I don't think were needed right

now!

This Doctor is suppossed to be treating me for several things right

now. The one thing that is critical is determining the amount of

Coumadin I should be taking to keep my Blood Clots under control. I

had

Blood drawn a few days before getting his letter and he refused to

call

me back to let me know how much Coumadin I should be taking to keep

from getting a Stroke or Heart Attack!

Besides this PRIMARY CARE MD, I see a Neurologist, Cardiologist,

Pulmologist and other Doctors on a as needed basis.

I'm lucky enough that my Rhuematologist doesn'belong to this group

and

agreed to be my Primary care as well. He wrote about 8 Scripts when

I

saw him and has to write another 3 or 4 for me that he overlooked,

like

MTX.

My new Neurologist from this Medical Group had agreed to do whatever

necessary to continue my IVIg treatments and to get me a Power Wheel

Chair through Medicare. This of course was before the Stunt from my

Primary Care MD.

I'm just not sure what way to turn right now. I've been in a pretty

bad

flair for the past few months and it has about completely finished

off

my ability to walk. My memory is now mostly gone especially my

vocabulary. The last tests I had EEG showed an abnormal report, but

the

Neurologist hasn't shared his knowledge of it with me other than it

wasan abnormal report, but he doesn't know if he agree's with it or

not

until he gets to see the test results for himself. He just keeps

referring to the fact that he was a YALE man for a year and than had

time at Columbia, so he feels his knowledge is better than everybody

else. He told me over and over that he would spend an hour on his day

off to go over my medical records which are quite a lot of reading,

but

I guess he just decided that he couldn't do that. I will have to be a

bit of a pest to try to gt his opinion on whether the tests he wants

me

to take will be able to help me or not. He has already had me take an

MRI of the Brain. Now his big thing is a spinal tap to see what that

will show. I asked him what difference the results could show that

will

change anything that is happenning to me and he couldn't give me an

answer.

Is there anybody here that can help me decide what to do? I've found

out through my searches that my Primary care Doc has lost several

MalPractice suits, the last one was about 6 months ago and although I

don't have the details yet, he had to pay significantly more than

normal.

I'm not a sue happy person and have never done it before even though

other Doctors were willing to testify for me on things in the past.

This Doctor has me so upset that my stress level is through the roof

and it's really taking it's toll on me.

Can I get some opinions on what I should do. I have a hard time going

in to thier buildings anymore, but at the same time I sure do use

some of the doctors on a regular basis.

thanks,

frankE, theMadMystyk@...