Guest guest Posted December 30, 2006 Report Share Posted December 30, 2006 Tracie, As usual, you have beautifully put into words the predicament that this disease brings along with it as baggage. I can't claim to understand all of what you wrote because, thank God, my disease is not in the same stages as so many of our e-friends. I DO know how isolating it can be when noone has ever heard of what we have, especialy neuro-sarc, and we do tend to look like normal, functioning human beings.Beings in pain, beings in fatique, beings with numb hands and feet. Our expectations of ourselves HAVE to change. We can not do all that we would like. That being said, our minds are, hopefully, functioning fairly normally. So we rage at the machine or ourselves. I read an interesting article in Oprah mag a few months ago about the stinky twins. It's about blaming and how it affects you with anger. Twins are blame self (bs) or blame others (bo). In the article it was about someone who was late to work and at a red light. There was a car in front of this person. The light changed. The person in front did not move and the person in the car behind began to honk the horn. The woman in the first car at the light got out of the car and opened her back door and was leaning in. How dare she?? The light is green!!! I'm late for work, the other driver fumed!!! The woman was frantically trying to help her baby in the back seat, who was choking. We do not know what is going on in other peoples lives. We can only know our lives. By blaming others, the article said, we make ourselves angry, which in turn, has to go somewhere. By blaming ourselves, well, that's always destructive. I think of this article alot in this crazy world we live in. Having an illness does make it harder. But, everyone has something!! I want to thank both you and Darlene for all the time and energy, sage advice and listening to our raging against the machine in a safe place that your forum has provided. May you be blessed in the coming New Year. Peace, Bonnie B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2006 Report Share Posted December 30, 2006 Hi Gang ---- If you have already read Tracie's posting, PLEASE READ IT AGAIN!! It is beautifully said and I agree completely with her! I have been feeling much the same way and just did not know how to express it to the group.....she did a great job. It is hard for Tracie and myself to take care of the list as co-owners when we are both so ill, but with the moderators help, we have managed and we have a great list. Over 400 now.......... We wish you ALL a wonderful, happy, and healthy (as can be) New Year for 2007. Let's all try to take care of ourselves better and focus on keeping our bodies in as good a shape as possible. Wishing you all the best. Hugs, Darlene NS Co-Owner/Moderator Quote Link to comment Share on other sites More sharing options...
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