Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 To all my friends here that are like family, I wish you have a very Happy New Year. And straight out of “ Urban’s” song, “I hope your Dreams stay big and your worries stay small, this is my wish for you”. Each and everyone here is a unique gift from God, and all God asks of us is to take care of the body he loaned us. Tracie your words are inspiring and so very true! I would like to share a few things that work for me. I have read many emails but have not had the time to answer. Besides keeping my body going, which I too need to improve at, and have the treadmill on my New Years list, and I will start out very slow, like 5 mins, then increase as my body tolerates. But one thing that really helps me to get going and especially get through bad days, I “get up” I do my hair and do my Make up, I look in the mirror and already I feel better because I look better, This is BiG for me, now I’m sure many of you don’t wear make up, but just washing your face and doing your hair whatever that is, do it!! (I found that the women that took out a mirror and fixed their hair and touched up their make up right after having their baby, felt so much better). We don’t know why we have this disease but we do, my husband and I had this conversation the other night on a return trip from Denver where we went to off Broadway show, had a nice dinner and stayed over in a fancy hotel, it was he’s 50th BD, we decided that even though I have been feeling better since my “spiritual healing” over a year ago now, I still have issues, some bigger then others, but God knows me and he knows that if he were to completely heal me I would be back to the hospital working 12 hours shifts on L & D, and never saying NO to extra shifts, because I loved my job. However I would of missed out on a lot of family time, I am so glad that I have been around my kids as they are teenagers, and one more to go, I have been blessed to be home more, for me God had to whack me a good one and he did, as every time I felt better I did go back to the hosp. then ended up sicker with each episode, now I have chronic,. Systemic Sarcoid like so many of us, but I spend more time with my family. Another blessing God gave me is my Kay business, as I can work it when I feel good, or not! But the women I’ve met and the women I’ve made feel better about themselves through make up is a blessing for me! I am a very blessed women, I am blessed to know each and everyone of you here, and know that I am praying for each of you as well. And I just want to address another question I’ve seen. The Kids, I was dx 12 years ago, wasn’t very sick then, therefore not much to tell, but as the years went on, and with each active state like so many of us, I have gotten worse, so I found myself just talking to the kids each time something new hit me, and actually had to turn to my kids for help many times, my sons have taken me to the hospital for IV steroids, they’ve picked me up off the floor, they’ve helped me out of bed when I couldn’t move, and yes a couple of times they’ve asked if I was going to die, and I said yes someday, but hopefully not for many years. For me it worked having them a part of the team. Even my little one who is 11 will come and close my door and tell her friends to be quiet because Mommy is taking a nap, and she needs it to feel betterJ We can choose to smile or not, I choose to smile even when the pain is killing me. Sometimes on my worse days, someone will say, “will Marla you must be feeling good, because you look so good ( Kay), and I smile and say Thank you! I wish we all lived closer so we could help each other, but know that I will help you in any way I can, if there is any one out here in Colorado let me know when you need help! So Happy New Year, and may God Bless us all in 2007! Marla Bramer Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.