A new day, a new pain, isnt that a song title?

[Guest guest]

Ive been on Methotrexate now for about 1 1/2 months, and this will be

my first week without a solumed infusion, an event Im not much looking

forward too since none of the symptoms are getting any better. But

now Im having a new pain that i havent experienced before, my ankles

and wrists are painful and feel swollen although they dont look it,

but thats not new, just hasnt happened for the last year or so, the

new one is pain in my right forearm that feels so deep it could almost

be in the bone more than the soft tissue. This is very, very, did I

mention very unpleasant, and is bothering me almost all the time the

last few days.

Amputation doesnt sound all that bad at the moment, but my swiss army

knife is in the shop for transmission repairs so I guess Ill just have

to grin and bear it. Well bear it anyway, I damned sick of grinning

all the time!!!!!

[Guest guest]

Hi, I just started Methotrexate (2 weeks ago), has it made any improvement at all? Sorry to hear about your wrists and ankles. Ricklizzyandstu wrote: Ive been on Methotrexate now for about 1 1/2 months, and this will bemy first week without a solumed infusion, an event Im not much lookingforward too since none of the symptoms are getting any better. Butnow Im having a new pain that i havent experienced

before, my anklesand wrists are painful and feel swollen although they dont look it,but thats not new, just hasnt happened for the last year or so, thenew one is pain in my right forearm that feels so deep it could almostbe in the bone more than the soft tissue. This is very, very, did Imention very unpleasant, and is bothering me almost all the time thelast few days.Amputation doesnt sound all that bad at the moment, but my swiss armyknife is in the shop for transmission repairs so I guess Ill just haveto grin and bear it. Well bear it anyway, I damned sick of grinningall the time!!!!!

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[Guest guest]

Stu, my pain isn't quite like yours, but I can relate to the amputation thoughts. A couple of years ago, the neuropathic pain in my feet was worse than usual. I had to drive to Indianapolis (about an hour) & got stuck in traffic. Having to stop & start repeatedly really intensified the pain. A friend had undergone bilateral leg amputation a few months before, and while I knew that the phantom pain was bad, she said it wasn't as bad as the pre-op pain. So while I was stuck on the interstate, I found myself thinking I would ask her, "Just how bad is that phantom pain?" That may sound ridiculous to some, but I actually considered it, thinking I could drive a car with hand controls easier than using my feet. I ended up just crying & listening to Elvis for almost an hour until the traffic started moving. I still have a lot more pain when I have to drive, especially stop & start. The Lyrica helps.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: A new day, a new pain, isnt that a song title?Date: Fri, 22 Jun 2007 01:24:41 -0000

Ive been on Methotrexate now for about 1 1/2 months, and this will bemy first week without a solumed infusion, an event Im not much lookingforward too since none of the symptoms are getting any better. Butnow Im having a new pain that i havent experienced before, my anklesand wrists are painful and feel swollen although they dont look it,but thats not new, just hasnt happened for the last year or so, thenew one is pain in my right forearm that feels so deep it could almostbe in the bone more than the soft tissue. This is very, very, did Imention very unpleasant, and is bothering me almost all the time thelast few days.Amputation doesnt sound all that bad at the moment, but my swiss armyknife is in the shop for transmission repairs so I guess Ill just haveto grin and bear it. Well bear it anyway, I damned sick of grinningall the time!!!!!

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