Re: -Zipporrah's first Birthday yesterday!

[Guest guest]

Yes, can you believe it! She turned one yesterday. It was a quiet one but

the kids tried to spoil her. Sadly, she couldn't try to eat and " make a

mess " of her face with her cake and ice cream since she can't eat or drink

orally. She has been really struggling the past two months and has been so

drained and weak the past two weeks. Teething may be the reason for her

decline as I have seen it happen several times before. We are pleased to

see how much she has regained from the past stroke episodes and yet seeing

her decline again has been hard.

Thank you for your note.

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (11 mon.) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Darla

> I just noticed in a post you made earlier today, that Zipporrah had her

> first birthday yesterday. It seems like just a few days ago you announced

> her birth, wow how time flies. I hope you all had a great time

> celebrating her special day.

> Happy Birthday Zipporah!!!!

>

>

>

>

>

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> Rock, jazz, country, soul & more. Find the music you love on MSN Music!

>

> Please contact mito-owner with any problems or questions.

>

>

>

[Guest guest]

Happy Birthday Zipporrah!!

Vicki ~ mom to Caden (1 yr) possible mito

Darla> I just noticed in a post you made earlier today, that Zipporrah had her > first birthday yesterday. It seems like just a few days ago you announced > her birth, wow how time flies. I hope you all had a great time > celebrating her special day.> Happy Birthday Zipporah!!!! >> >>> --------------------------------------------------------------------------------> Rock, jazz, country, soul & more. Find the music you love on MSN Music!>> Please contact mito-owner with any problems or questions.>>>

[Guest guest]

Happy Birthday Zipporrah!!

Daphne also turned one year old this month (on the 7th).

> Yes, can you believe it! She turned one yesterday. It was a quiet one but

> the kids tried to spoil her. Sadly, she couldn't try to eat and " make a

> mess " of her face with her cake and ice cream since she can't eat or drink

> orally. She has been really struggling the past two months and has been so

> drained and weak the past two weeks. Teething may be the reason for her

> decline as I have seen it happen several times before. We are pleased to

> see how much she has regained from the past stroke episodes and yet

seeing

> her decline again has been hard.

> Thank you for your note.

>

> Darla: mommy to

> Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

> hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

> Zipporrah (11 mon.) Mito, strokes, neuro-motor planning dysfunction, SID,

> GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

> disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

> syndrome, iron deficiency...

> Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

> Marquis (2) (some with Mito symptoms)

>

>

> Darla

>

>

> > I just noticed in a post you made earlier today, that Zipporrah had her

> > first birthday yesterday. It seems like just a few days ago you announced

> > her birth, wow how time flies. I hope you all had a great time

> > celebrating her special day.

> > Happy Birthday Zipporah!!!!

> >

> >

> >

> >

> >

--------------------------------------------------------------------------------

> > Rock, jazz, country, soul & more. Find the music you love on MSN Music!

> >

> > Please contact mito-owner with any problems or

questions.

> >

> >

> >