Guest guest Posted July 5, 2007 Report Share Posted July 5, 2007 I have read many emails, but not responded much. I want to respond to the problems walking. I have been dx with NS, and have problems with my skin too, I am losing strength on the left side of my body; it is the whole left side, I cannot lift my left leg up off my bed when lying down, or lift it up off a chair when Sitting, I do OK in the am but as the day wears on, I have trouble walking as The weakness and ability to lift my leg to take the next step gets worse, on These times I feel like I have gum on the bottom of my left shoe, like it’s sticking and to something And I have to pull it forward; I tend to start tripping, etc…. My neuro says there is nothing much to do, But increase the meds I am on right now, we have, I also am a big believer in Christian healings, We have a church that does them on the first Friday of each month, and I go when ever I can And I always come away with renewed energy and my leg is better, I hope to keep going and Do believe that the spiritual healing will help where the medication may not. Don’t ever give up, keep on going, the mind is a powerful tool, our positive outlook And our positive inner feelings really help a lot to deal with whatever we are dealing With. I am not saying it will cure you, but it will help you deal with what life has to hand us Each and every day, and as soo many of you know that can be so different each day. I have a friend dying of Melanoma; it has pretty much taken over the left side of her body, And she still calling her clients ands telling them to hang in there with them until she is Able to get back to work, this will not happen but it’s what keeps her going daily. Know you are all in my prayers and positive thoughts, blessings to all, Marl a " Faith sees the invisible, believes the incredible and receives the impossible " From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of lizzyandstu Sent: Wednesday, July 04, 2007 7:10 PM To: Neurosarcoidosis Subject: Re: Any problems with walking? > > In a message dated 7/2/07 12:00:53 PM Pacific Daylight Time, > shightower@... writes: > > > > hows that > > for sexy, imagine your man with wet towels wrapped around his arm, > > heating pads on his knees and ankles, cold pak on his head for the Im thinking about buying one of those Basil Rathbone smoking jackets sos Ill look really hot with the wet towels drapped over my head!! On a slightly more serious note, is it common to have a progressive weakness in your lower legs? This is somehting that started a long time ago, but of late is starting to get a bit more serious. When i stand my legs shake violently, the same when I go up or down a step, not sure if its the sarc or something elses raising its ugly head? > > headaches and a pile of pill bottles sitting next to him, and you can > > imagine how exciting my wifes life really at this > > point!!!!!!!!!!!!!)(then of course we have to ask who is REALLY > > suffering fromt his disease, me or her????) > > > > Add the cpap mask, the oxygen concentrator billowing it's low slow, rhythm > and you've got the picture at my house! It is a bugger--- and so the world > turns-- can we get off! (I know, I know, not likely dressed like this!) > > tracie > > > ************************************** > See what's free at > http://www.aol.com. > Quote Link to comment Share on other sites More sharing options...
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