Fwd: cns sardoidosis

[Guest guest]

Fran,

I have forwarded your email to the NS group. You need to go in and sign up as a group member--and the replys will come to you via the group rather than to your private email address. When you set up your email address you do put in your private email address, but that way you will get all the emails that pertain to the group site. We have almost 500 members, so you will get alot of insight into this disease.

Go to this address to set up your membership.

Subscription Details:-

1) Individual email - means that every email sent to the list you receive.

2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.

3) Web only/No mail - means that you can pop into yahoogroups at your convenience and receive no email.

To modify your subscription settings please visit:-

http://groups.yahoo.com/group/Neurosarcoidosis/join

Thank you, and we'll be seeing you online with all the "family!"

Sincerely,

Tracie

NS Co-owner/moderator

************************************** See what's free at http://www.aol.com.

hi, my name is fran turnbull 24, from minehead somerset england and i was diagnosed with cns november last yearafter suffering for about 12 months with doctors not being able to figure out what was wrong with me,in the end it took a month in hospital untold tests an operation and losing about 4 stone in weight for them to diagnose me.After being on steroids for 3 months at 30mg then brought off them which turned out to be to early i was back on them within 10 days because i was destoyed.now after being back on the full dose again ive been feeling top bananna until a few days ago and even im on the med imve had symptoms come back like fatigue etc and was wondering what other people go through with this condition which is how i found this site id like to hear other stories email g99turnbull@...

cheers fran