update

[Guest guest]

In a message dated 11/28/01 3:47:27 PM Pacific Standard Time,

mokie@... writes:

<< The muscles in my legs are

getting really weak. They want to give out just walking from one room to the

next. She wants me to start using a cane >>

Ann, my muscles are like this all over... arms, legs, neck etc... I thought

it was from the fibro but my dr says its from the prednisone. Are you on

pred... I forget who is on what.LOL See my memory is as weak as my

muscles..... Is your brain a muscle. LOL

I do use a cane at times. I know you don't want to, I didn't either,but I

started looking at all kinds of canes....in garage sales, antique stores,

goodwill , etc and I have found so many interesting canes... Started

collecting them. LOL I have a wonderful collection for when I need one. All

I need now is a cane rack for my entry. LOl

Hope you get to feeling better soon. Know I'm thinking of you.

hugs

[Guest guest]

In a message dated 11/28/01 3:47:27 PM Pacific Standard Time,

mokie@... writes:

<< The muscles in my legs are

getting really weak. They want to give out just walking from one room to the

next. She wants me to start using a cane >>

Ann, my muscles are like this all over... arms, legs, neck etc... I thought

it was from the fibro but my dr says its from the prednisone. Are you on

pred... I forget who is on what.LOL See my memory is as weak as my

muscles..... Is your brain a muscle. LOL

I do use a cane at times. I know you don't want to, I didn't either,but I

started looking at all kinds of canes....in garage sales, antique stores,

goodwill , etc and I have found so many interesting canes... Started

collecting them. LOL I have a wonderful collection for when I need one. All

I need now is a cane rack for my entry. LOl

Hope you get to feeling better soon. Know I'm thinking of you.

hugs

[Guest guest]

In a message dated 11/28/01 4:16:15 PM Pacific Standard Time,

mokie@... writes:

<< I'm on Evoxac. >>

Ann, what is Evoxac? Never heard of it. My memory is the pits... I have no

short term memory.. Can watch a movie and know I liked it but couldn't tell

you the next day what it was about or who was in it.. Same for reading. I

love to read.. but I have to go back 3 chapters everynite because I can't

remember what I've read... This all started with my fibro... Major brain

fog.... I went through a spell where i'd get in my car and forget where I was

going. LOL Now I just have lots of post a notes all over my car...LOL What

a mess....

hugs

[Guest guest]

In a message dated 11/28/01 4:16:15 PM Pacific Standard Time,

mokie@... writes:

<< I'm on Evoxac. >>

Ann, what is Evoxac? Never heard of it. My memory is the pits... I have no

short term memory.. Can watch a movie and know I liked it but couldn't tell

you the next day what it was about or who was in it.. Same for reading. I

love to read.. but I have to go back 3 chapters everynite because I can't

remember what I've read... This all started with my fibro... Major brain

fog.... I went through a spell where i'd get in my car and forget where I was

going. LOL Now I just have lots of post a notes all over my car...LOL What

a mess....

hugs

[Guest guest]

Thanks for the information . Yes I'm on prednisone and metho. Yes it

is hard trying to keep up with everyone's meds. I have a hard enough time

keeping up with my own. First thing in the morning I put them in a divider

case for the day so I can remember what I have taken and what I have to take

when. I can't remember from one minute to the next but it has improved since

I'm on Evoxac. I showed the Therapist my list of meds and she said she would

just make a copy instead of writing them all down lol.

My arms and shoulders are also weak. More on the right side than the left.

Love,

Ann

Re: update

In a message dated 11/28/01 3:47:27 PM Pacific Standard Time,

mokie@... writes:

Ann, my muscles are like this all over... arms, legs, neck etc... I thought

it was from the fibro but my dr says its from the prednisone. Are you on

pred... I forget who is on what.LOL See my memory is as weak as my

muscles..... Is your brain a muscle. LOL

hugs

DISCLAIMER!!

WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED

HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING

ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND

ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE

DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Thanks for the information . Yes I'm on prednisone and metho. Yes it

is hard trying to keep up with everyone's meds. I have a hard enough time

keeping up with my own. First thing in the morning I put them in a divider

case for the day so I can remember what I have taken and what I have to take

when. I can't remember from one minute to the next but it has improved since

I'm on Evoxac. I showed the Therapist my list of meds and she said she would

just make a copy instead of writing them all down lol.

My arms and shoulders are also weak. More on the right side than the left.

Love,

Ann

Re: update

In a message dated 11/28/01 3:47:27 PM Pacific Standard Time,

mokie@... writes:

Ann, my muscles are like this all over... arms, legs, neck etc... I thought

it was from the fibro but my dr says its from the prednisone. Are you on

pred... I forget who is on what.LOL See my memory is as weak as my

muscles..... Is your brain a muscle. LOL

hugs

DISCLAIMER!!

WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED

HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING

ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND

ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE

DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

,

Evocax is to get your saliva glands to working. They gave it to me for the

sjogrens. That also causes memory loss. I know what you mean about the post

a notes. I have forgotten where I was going.LOL I got side tracked going to

my sons one day. Who only lives five miles away. Out in the country that is

no distance. Down one road then another, but I forgot which way do I turn.

It was upsetting at the time now I just laugh at myself. LOL

I hope your new meds. work for you.

Love,

Ann

-----Original Message----

In a message dated 11/28/01 4:16:15 PM Pacific Standard Time,

mokie@... writes:

<< I'm on Evoxac. >>

Ann, what is Evoxac? Never heard of it. My memory is the pits... I have

no

hugs

DISCLAIMER!!

WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED

HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING

ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND

ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE

DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

,

Evocax is to get your saliva glands to working. They gave it to me for the

sjogrens. That also causes memory loss. I know what you mean about the post

a notes. I have forgotten where I was going.LOL I got side tracked going to

my sons one day. Who only lives five miles away. Out in the country that is

no distance. Down one road then another, but I forgot which way do I turn.

It was upsetting at the time now I just laugh at myself. LOL

I hope your new meds. work for you.

Love,

Ann

-----Original Message----

In a message dated 11/28/01 4:16:15 PM Pacific Standard Time,

mokie@... writes:

<< I'm on Evoxac. >>

Ann, what is Evoxac? Never heard of it. My memory is the pits... I have

no

hugs

DISCLAIMER!!

WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED

HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING

ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND

ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE

DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Ann

I don't know anything about the Sjogrens Syndrome at all. I do know that the pred when I took it make me feel weak in the legs etc. Sending good thoughts and prayers your way. Gosh everyone is getting sick!

Lots of love

Glenda

update

Hello everyone, Just wanted to give you a quick update. I had my firstappointment with the physical therapist today. The muscles in my legs aregetting really weak. They want to give out just walking from one room to thenext. She wants me to start using a cane. Which I'm not to thrilled about.My daughter was teasing me, she was calling me Granny Annie. Question: Doyou think this is from the meds. or could it be from the Sjogrens Syndrome?I haven't heard anywhere that R.P. would do this.Thanks a lot,Hugs to all,AnnDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Ann

I don't know anything about the Sjogrens Syndrome at all. I do know that the pred when I took it make me feel weak in the legs etc. Sending good thoughts and prayers your way. Gosh everyone is getting sick!

Lots of love

Glenda

update

Hello everyone, Just wanted to give you a quick update. I had my firstappointment with the physical therapist today. The muscles in my legs aregetting really weak. They want to give out just walking from one room to thenext. She wants me to start using a cane. Which I'm not to thrilled about.My daughter was teasing me, she was calling me Granny Annie. Question: Doyou think this is from the meds. or could it be from the Sjogrens Syndrome?I haven't heard anywhere that R.P. would do this.Thanks a lot,Hugs to all,AnnDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Hi Heidi,

Lucy here, you are talking about the good things happening and I want to share with the group that I am only on Dapsone and have not had a real "flare" in a good while. I have only had the respiratory problems like sinus infections, etc.

You are all correct about RP. It is a very unpredictable disease and can be related to so many other conditions. I can name about 10 or more things that I can relate RP to over the years.

I will close for now. We must all stick together, I don't really have a Dr. that knows much about RP and I only see her once every 6 months and that is only a fifteen minute session. My GP says that what I am taking for the sinus/Asthma thing is doing as much as what a Pulmonalogist would give me other that a bunch of tests. So, there you are, what should one do when your only Dr. has an attitude like that?

Much love to all and Prayers too, Lucy

-- update

Hi Mrs. Nosey here !!!!!

Thank you so much for letting us know your good news. Yes RP can be the pits at time. But as you know miracle do happen.

While you where on no mail we had another Miracle here. Lierman got her Voice back

after not being able to talk for years. Wow !!! So you just hang in there, you come a long way and you will get better even more.

Talked to Janet : She said she will try and do a post tonight. She has been really busy. Her

Sister did die in Oct. Pete made the surgery ok.

I will let you all read her mail to find out the details. OK

: She just got back from Mich. yup, that

girl went with her hobby up there for a week.

She is amazing wow. She also is now 1 month

smoke free. !!!!!!!!! Go Girl !!! Ben her husband also quit with her. In Jan. will have to have surgery on her eyes. Plus right now she is having a hell off a time moving her hands. So she ask me to please keep her in your Prayers and she will get on line as soon as she can.

Dan : Ok this Ornery one , will get a swift kick in the butt when I will meet him. LOL

He send me a letter today true slow snail mail

and guess what he send me ????? Yup a bunch of peanut Butter recipes!!!!!!! LOL

Ja I did call him and told him what he got coming from me. heheheh.He is doing ok .

But has a lot of problems sleeping right now.

He is staying with one of his Daughters while he is recouping. He ask me to tell you all

Thank you so much for all the cards. He loves you all and misses you all. He will do a post as soon as he can get to a putter. OK .

T had the painter in her house and tonight she is sick from all the fumes. Gee

that painter took forever to get done. bless her heart hope she will be better by tomorrow.

That new shoot for her sugar is really neat,

Yup, she is now on insulin .I guess I have to go back over there and sing some more for her if she does not hurry up and fell better soon. LOL

Some day I am going to record it and you all can buy it at your drugstores under

" Laxatives " LOL

After you listen to that you will never have a problem again . hehehehehe .

Ok that's all folks for now. I think the phone bandit has some more calls to make. till later be good OK.

Remember take your Medicine and Vitamins on time everyday like you should so that you can get the RP in a sleeping mood.

Mrs. Nosey

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Hi Heidi,

Lucy here, you are talking about the good things happening and I want to share with the group that I am only on Dapsone and have not had a real "flare" in a good while. I have only had the respiratory problems like sinus infections, etc.

You are all correct about RP. It is a very unpredictable disease and can be related to so many other conditions. I can name about 10 or more things that I can relate RP to over the years.

I will close for now. We must all stick together, I don't really have a Dr. that knows much about RP and I only see her once every 6 months and that is only a fifteen minute session. My GP says that what I am taking for the sinus/Asthma thing is doing as much as what a Pulmonalogist would give me other that a bunch of tests. So, there you are, what should one do when your only Dr. has an attitude like that?

Much love to all and Prayers too, Lucy

-- update

Hi Mrs. Nosey here !!!!!

Thank you so much for letting us know your good news. Yes RP can be the pits at time. But as you know miracle do happen.

While you where on no mail we had another Miracle here. Lierman got her Voice back

after not being able to talk for years. Wow !!! So you just hang in there, you come a long way and you will get better even more.

Talked to Janet : She said she will try and do a post tonight. She has been really busy. Her

Sister did die in Oct. Pete made the surgery ok.

I will let you all read her mail to find out the details. OK

: She just got back from Mich. yup, that

girl went with her hobby up there for a week.

She is amazing wow. She also is now 1 month

smoke free. !!!!!!!!! Go Girl !!! Ben her husband also quit with her. In Jan. will have to have surgery on her eyes. Plus right now she is having a hell off a time moving her hands. So she ask me to please keep her in your Prayers and she will get on line as soon as she can.

Dan : Ok this Ornery one , will get a swift kick in the butt when I will meet him. LOL

He send me a letter today true slow snail mail

and guess what he send me ????? Yup a bunch of peanut Butter recipes!!!!!!! LOL

Ja I did call him and told him what he got coming from me. heheheh.He is doing ok .

But has a lot of problems sleeping right now.

He is staying with one of his Daughters while he is recouping. He ask me to tell you all

Thank you so much for all the cards. He loves you all and misses you all. He will do a post as soon as he can get to a putter. OK .

T had the painter in her house and tonight she is sick from all the fumes. Gee

that painter took forever to get done. bless her heart hope she will be better by tomorrow.

That new shoot for her sugar is really neat,

Yup, she is now on insulin .I guess I have to go back over there and sing some more for her if she does not hurry up and fell better soon. LOL

Some day I am going to record it and you all can buy it at your drugstores under

" Laxatives " LOL

After you listen to that you will never have a problem again . hehehehehe .

Ok that's all folks for now. I think the phone bandit has some more calls to make. till later be good OK.

Remember take your Medicine and Vitamins on time everyday like you should so that you can get the RP in a sleeping mood.

Mrs. Nosey

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Heidi, thanks for all the updates... boy you are one organized woman. LOL We

appreciate all you do for us... I think you are the glue that keeps us

together and brought up to date on each other. Thank you for being Nosey!!

LOL

Janet, I'm so sorry about your sister... Glad that Pete came through the

surgery okay. Give him a big hug and tell him hi for me.

.... Boy girl...we just can't keep track of you any more.!! Traveling

all around. No wonder we haven't heard from you... I'm gonna have to try to

give you a call soon. I'm really proud of you for being smoke free... I

still am too. It was one month for me on the 12th.... Just hang in there and

we will make it. Gosh I miss you.

Dan...boy you sure are brave to send Heidi peanut butter recipes...but I know

you and I would get along just fine. LOL Some one has to keep her in line.

LOL Hope you recover real soon and tell Joan hello from me... I'm so glad

things went well.

.. you better quit remodeling you house. And at Christmas no less...LOL

You take care and get that sugar under control... Or I will be out there to

help you. LOL

I'm so saddened by the news of Carol... My prayers are with her and her

family at this time..

Lu... You had better start to feeling better soon... Heck you hurt with the

cast on and now with it off... What will we do with you???? Are you just

trying to get out of cooking the Christmas dinner?? LOL You know I'm just

kidding and hope that you feel better real soon... We need your laughter back

in the group... Please get well soon.

To everyone else that I may have forgotten, know that I'm always here and

thinking of you. And anyone that wants to wrap or shop or cook can come

right on out to Calif. LOL

hugs

[Guest guest]

Heidi, thanks for all the updates... boy you are one organized woman. LOL We

appreciate all you do for us... I think you are the glue that keeps us

together and brought up to date on each other. Thank you for being Nosey!!

LOL

Janet, I'm so sorry about your sister... Glad that Pete came through the

surgery okay. Give him a big hug and tell him hi for me.

.... Boy girl...we just can't keep track of you any more.!! Traveling

all around. No wonder we haven't heard from you... I'm gonna have to try to

give you a call soon. I'm really proud of you for being smoke free... I

still am too. It was one month for me on the 12th.... Just hang in there and

we will make it. Gosh I miss you.

Dan...boy you sure are brave to send Heidi peanut butter recipes...but I know

you and I would get along just fine. LOL Some one has to keep her in line.

LOL Hope you recover real soon and tell Joan hello from me... I'm so glad

things went well.

.. you better quit remodeling you house. And at Christmas no less...LOL

You take care and get that sugar under control... Or I will be out there to

help you. LOL

I'm so saddened by the news of Carol... My prayers are with her and her

family at this time..

Lu... You had better start to feeling better soon... Heck you hurt with the

cast on and now with it off... What will we do with you???? Are you just

trying to get out of cooking the Christmas dinner?? LOL You know I'm just

kidding and hope that you feel better real soon... We need your laughter back

in the group... Please get well soon.

To everyone else that I may have forgotten, know that I'm always here and

thinking of you. And anyone that wants to wrap or shop or cook can come

right on out to Calif. LOL

hugs

[Guest guest]

In a message dated 12/19/01 6:21:03 AM Pacific Standard Time, kath1@...

writes:

<< Oh

yeah, I am ALMOST done with my Christmas shopping ;-)

>>

Okay Kathleen, rub it in more. LOL I am almost done too. Hopefully today.

I'm so glad that you liked your pulmonary dr and that your tests came back

normal. That is always such a relief. As for the pred..... I wish that

someone would have told me that a long time ago (about stopping when gaining

weight and round face) I have both. I also have the hump on my

back...Prednisone deposits fat to your stomach (I look 8 months pregnant,)

face and back of neck.. I have been on it for almost 3 years and they say it

is doing more damage now then good. I'm trying my best to get off once and

for all.. LOL Lets keep our fingers crossed. I " m going in for a bone

density test today, so hopefully all is fine there..

I'm really glad you are a part of our family now...... I have someone to beat

with the shopping. LOL

Hugs til later

[Guest guest]

In a message dated 12/19/01 6:21:03 AM Pacific Standard Time, kath1@...

writes:

<< Oh

yeah, I am ALMOST done with my Christmas shopping ;-)

>>

Okay Kathleen, rub it in more. LOL I am almost done too. Hopefully today.

I'm so glad that you liked your pulmonary dr and that your tests came back

normal. That is always such a relief. As for the pred..... I wish that

someone would have told me that a long time ago (about stopping when gaining

weight and round face) I have both. I also have the hump on my

back...Prednisone deposits fat to your stomach (I look 8 months pregnant,)

face and back of neck.. I have been on it for almost 3 years and they say it

is doing more damage now then good. I'm trying my best to get off once and

for all.. LOL Lets keep our fingers crossed. I " m going in for a bone

density test today, so hopefully all is fine there..

I'm really glad you are a part of our family now...... I have someone to beat

with the shopping. LOL

Hugs til later

[Guest guest]

My you are " Miss Ready " ..

That is nice tho, You won't feel as pushed & doing all alone. The kids are

most likely thinking this is fun...a change for them & having you all to

themselves. When my hubby traveled (allot) they would ask for the craziest

dinners too. bob had a regular routine with meals etc. From his long time

service life routines. BUT--It really did work out better for me to, with 5

wee ones so close ...ANYWAY----Have a good week. ENJOY, Write as often as

you can & keep us up on all the FUN your having

I know you will at the BALL....

LOVE & HUGS, grandmomBEV

update

left for Thailand early yesterday. As yet I haven't heard from

him. The kids got up at 6am so I could get everything ready for school

this morning. usually does the physio, so I am hating that.

Yesterday I spent the day ironing school uniforms so there was enough

for the whole week. We were so organised today that I have even had

time to come on-line before school. Next week may be a different story.

On Friday night we are going to the Make-A-Wish Ball. Then we are

staying in a 5 star hotel. It will be so nice.

(Australia)

[Guest guest]

Backi,

You have GOT to get better for your summer camp!

Get some rest and please get better!

Love,

Lenora

>Hey All,

>Well this vacation took a lot out of me. I just finished IV's not even a week

>ago and I feel crappy...Ughhhhhhhhhhhh

>I think I have bruised my ribs and pulled muscles from coughing b/c my left

>side really really hurts. Plus my lungs just ache. My head is totally stopped

>up too..=(

>I am taking some left over Levaquiin...and told the doc today....Maybe ..or

>I'm ...hoping its allergies.....

>Anyways...Brad did his test for the Durham COunty Police Dept. He made all

>the requirements physically...Ran the Mile and a half and whatnot in the

>time allowed.

>HE goes before the review board tomarrow. HE is trying to get into the police

>acadamy.

>Anyways...thats it for now...

>

>Becki

>YOUR FAVORITE LilGooberGirl

>YOUNGLUNG EMAIL SUPPORT LIST

>www.topica.com/lists/younglung

>Pediatric Interstitial Lung Disease Society

><http://groups.yahoo.com/group/InterstitialLung_Kids/>http://groups.yahoo.com/g\

roup/InterstitialLung_Kids/

>

>

>

[Guest guest]

Best wishes for the Police Academy wish for BRAD. It would be great.

I do hope you start to perk up & feel better soon.

LOVE & HUGS,

grandmomBEv

Update

Hey All,

Well this vacation took a lot out of me. I just finished IV's not even a

week

ago and I feel crappy...Ughhhhhhhhhhhh

I think I have bruised my ribs and pulled muscles from coughing b/c my

left

side really really hurts. Plus my lungs just ache. My head is totally

stopped

up too..=(

I am taking some left over Levaquiin...and told the doc today....Maybe

...or

I'm ...hoping its allergies.....

Anyways...Brad did his test for the Durham COunty Police Dept. He made

all

the requirements physically...Ran the Mile and a half and whatnot in

the

time allowed.

HE goes before the review board tomarrow. HE is trying to get into the

police

acadamy.

Anyways...thats it for now...

Becki

YOUR FAVORITE LilGooberGirl

YOUNGLUNG EMAIL SUPPORT LIST

www.topica.com/lists/younglung

Pediatric Interstitial Lung Disease Society

http://groups.yahoo.com/group/InterstitialLung_Kids/

[Guest guest]

Nortriptyline

(nor trip' ti leen)

Brand name(s): Aventyl; Pamelor

Why is this medication prescribed?

Nortriptyline, an antidepressant (mood elevator), is used to treat

depression.

This medication is sometimes prescribed for other uses; ask your doctor or

pharmacist for more information.

How should this medicine be used?

Nortriptyline comes as a capsule and an oral liquid to take by mouth. It is

usually taken three or four times a day and may be taken with or without

food. Follow the directions on your prescription label carefully, and ask

your doctor or pharmacist to explain any part you do not understand. Take

nortriptyline exactly as directed. Do not take more or less of it or take it

more often than prescribed by your doctor.

Continue to take nortriptyline even if you feel well. Do not stop taking

nortriptyline without talking to your doctor, especially if you have taken

large doses for a long time. Your doctor probably will want to decrease your

dose gradually. This drug must be taken regularly for a few weeks before its

full effect is felt.

Other uses for this medicine

Nortriptyline also is used occasionally to treat panic disorders, chronic

pain, premenstrual depression, and some skin conditions. Talk to your doctor

about the possible risks of using this drug for your condition.

What special precautions should I follow?

Before taking nortriptyline,

tell your doctor and pharmacist if you are allergic to nortriptyline or any

other drugs.

tell your doctor and pharmacist if you are allergic to sulfites; some

preparations of nortriptyline contain sodium bisulfite.

tell your doctor and pharmacist what prescription and nonprescription drugs

you are taking or have taken within the last 2 weeks, especially

anticoagulants [warfarin (Coumadin)]; antihistamines; antipsychotics;

cimetidine (Tagamet); estrogens; levodopa (Sinemet, Larodopa); lithium

(Eskalith, Lithobid); MAO inhibitors [phenelzine (Nardil), tranylcypromine

(Parnate)]; medication for high blood pressure, seizures, Parkinson's

disease, diabetes, asthma, nausea, colds, or allergies; methylphenidate

(Ritalin); muscle relaxants; oral contraceptives; quinidine (Quinidex);

sedatives; selective serotonin reuptake inhibitors such as fluoxetine

(Prozac, Sarafem); sleeping pills; thyroid medication; tranquilizers; and

vitamins.

tell your doctor if you have or have ever had glaucoma, an enlarged

prostate, difficulty urinating, diabetes, seizures, an overactive thyroid

gland, or liver, kidney, or heart disease.

tell your doctor if you are pregnant, plan to become pregnant, or are

breast-feeding. If you become pregnant while taking nortriptyline, call your

doctor immediately.

if you are having surgery, including dental surgery, tell the doctor or

dentist that you are taking nortriptyline.

you should know that this drug may make you drowsy. Do not drive a car or

operate machinery until you know how this drug affects you.

remember that alcohol can add to the drowsiness caused by this drug.

tell your doctor if you use tobacco products. Cigarette smoking may decrease

the effectiveness of this drug.

What should I do if I forget a dose?

If you take several doses per day, take the missed dose as soon as you

remember it and take any remaining doses for that day at evenly spaced

intervals. However, if it is almost time for the next dose, skip the missed

dose and continue your regular dosing schedule.

If you take nortriptyline once a day at bedtime and do not remember to take

it until the next morning, skip the missed dose. Do not take a double dose

to make up for a missed one.

What side effects can this medication cause?

Side effects from nortriptyline are common:

upset stomach

drowsiness

weakness or tiredness

excitement or anxiety

insomnia

nightmares

dry mouth

skin more sensitive to sunlight than usual

changes in appetite or weight

Tell your doctor if any of these symptoms are severe or do not go away:

constipation

difficulty urinating

frequent urination

blurred vision

changes in sex drive or ability

excessive sweating

If you experience any of the following symptoms, call your doctor

immediately:

jaw, neck, and back muscle spasms

slow or difficult speech

shuffling walk

persistent fine tremor or inability to sit still

fever

difficulty breathing or swallowing

severe skin rash

yellowing of the skin or eyes

irregular heartbeat

What storage conditions are needed for this medicine?

Keep this medication in the container it came in, tightly closed, and out of

reach of children. Store it at room temperature and away from excess heat

and moisture (not in the bathroom). Throw away any medication that is

outdated or no longer needed. Talk to your pharmacist about the proper

disposal of your medication.

Update

> Is anyone familiar with Nortriptyline? Any comments?

[Guest guest]

http://www.psyweb.com/Drughtm/nortri.html

Nortriptyline ( Aventil, Pamelor )

----------------------------------------------------------------------------

----

Nortriptyline is a tricyclic antidepressants used to treat endogenous

depression, chronic skin disorders, depression, migraine headaches, panic

disorder, severe arthritis, bedwetting, AIDS, PMS, ADHD, ringing ears, and

with other drugs to manage chronic / severe pain.

----------------------------------------------------------------------------

----

CLASS: Secondary Tricyclic.

Generic name: Nortriptyline Hydrochloride.

Type: Antidepressant.

Strengths:

Oral Solutions:

10mg / 5 ml. ( 4% Alcohol )

Tables:

10mg, 25 mg, 50 mg, 100 mg.

Dosages: Actual dosage must be determined by a physician.

Normal dosage:

If under 18 years of age, Only under the care of a child psychiatrist!

18 to 60 years of age, 25mg to 50mg daily.

Over 60 years of age, Lower dosage increased cautiously.

Problems with:

Liver Function: Lower dosage, as needed.

Kidney Function: Lower dosage, as needed.

Test:

Before taking: Electrocardiogram.

While taking: Blood test to check drug level.

Dosages:

Oral:

Start: 25 mg 3 to 4 times daily.

Increases: 10 to 25 mg daily in 1 week intervals.

Maintenance: 50 to 100 mg in 24 hours.

Maximum: 150 mg in 24 hours.

Take With: Empty stomach and a full glass of water.

Full Benefits In: In a few days to a few weeks. If any unpleasant side

effects, they should appear right away.

Missed Dose(s): If you take this drug at bedtime and miss it do not take in

morning. If within one hour take, if over an hour skip and then continue on

your normal schedule.

Never Take a Double Dose!

If Stop Taking: Do not stop without consulting your physician and never

abruptly, reduce gradually.

Overdose symptoms include: Confusion, convulsions, hallucinations, heart

failure, loss of consciousness, lowered body temperature, sleepiness / deep

sleep, or tremors.

----------------------------------------------------------------------------

----

Warnings

The habit-forming potential is none. This drug if beneficial should be taken

about six months, in a few up to a year.

This drug may worsen the symptoms of a paranoid or schizophrenic person and

a person with bipolar disorder may switch phase.

Do not use this drug along with ECT. ( Electroconvulsive therapy. )

Do not take this drug if you are pregnant try some non-drug alternatives.

Do not take this drug if planning to become pregnant. Do not take if you are

breast-feeding.

Do not give this drug to anyone under the age of twelve. If over sixty only

use drug in small doses and with close monitoring of it's side effects (

e.g. Blood pressure lowering, confusion.

Do not use if: You had negative reactions to this drug or any drug of this

type in the past. If you have taken any monoamine oxidase ( MAO ) in the

past two weeks.

Inform your Doctor if: You had negative reactions to any drug or any drug

of this type in the past. If you have epilepsy. If you are taking any other

prescription or nonprescription drug. If you plan to be under anesthesia or

having any surgery in the next few months, also if you will be undergoing

any medical tests.

----------------------------------------------------------------------------

----

Nortriptyline ( Symptoms or Effects )

Common: Blurred vision, constipation, cramps, disorientation, drowsiness,

dry mouth, headache, low blood pressure, or sensitivity to bright lights.

Rare: Anxiety, black tongue, confusion, convulsions, hair loss, increased

appetite, insomnia, intestinal blockage, racing heartbeat / palpitations,

males developing breast, nightmares, odd taste, ringing in ears, seizures,

sexual problems, swelling testicles, skin rashes / allergies, tingling,

weight gain / loss, or yellowing skin / whites of eyes.

See physician always: Low blood pressure, confusion, swelling testicles,

seizures, males developing breast, sexual problems, skin rashes / allergies,

or yellowing skin / whites of eyes.

See physician if severe: Anxiety, blurred vision, constipation, cramps,

headache, disorientation, drowsiness, dry mouth, intestinal blockage, racing

heartbeat / palpitations, insomnia, increased appetite, nightmares, odd

taste, ringing in ears, tingling, sensitivity to bright lights, or weight

gain / loss.

See physician NOW: Confusion or skin rashes / allergies.

Stop taking and see physician NOW: Seizures, yellowing skin / whites of

eyes.

How it works:

Restores levels of norepinphrine and serotonin.

[Guest guest]

Hi in Hawaii!

Thought that I would answer you seeing that I was mentioned in

your post, although I am not familiar with your history.

Because what you briefly mentioned sounds similar to my

situation (an acute attack of pancreatitis a few years ago with

subsequent, unrelieving pain) I am wondering if you mind telling

me a little more about how you developed CP, what efforts you

made to get to a diagnosis and what finally convinced your

doctors and yourself that CP was the correct one?

I know that I am being selfish by using other people's sufferings

to benefit me - so please understand that I sympathize with you!.

I am hoping, though, to someday return the favor: To be able to

help someone else through my frustrating and often agonising

experiences of the last three years.

I am not familiar with nortryptiline but was taking elavil like

another person mentioned. It too gave me good sleep but when I

stopped taking it, I had unbelievably bad nightmares the first two

weeks off from it. And I wasn't taking that much to begin with:

aobut 12.5 mg every night. But when I did take it, ohhhhh the

warm and fuzzy sleep that I had!

laurie

[Guest guest]

Ruby,

I am so sorry that Floyd has had such a horrible stay at that one

hospital. I would certainly see about possible legal action you could

take against that nurse who gave him meds in his tube after being

specifically told not to. If she can't follow a doctor's instructions

she really shouldn't be a nurse. Just my personal opinion there. Why

didn't they have him on IV feeding if they weren't giving him even ice

chips or sips of water (called NPO by nurses). I am always on an IV if I

am NPO. The body just can't handle not getting some sort of fluid.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

Gosh, Conny...thankyou so much for those lovely words about Immi and me....made

me go all emotional it did!

I'm so glad and the rest of your family are on the mend!

Soto you and yours...little and his chunky sister bless her!!

Eileen x

colson45 olsonconn@...> wrote:

Hi, Everyone

I am glad to hear that everyone had a good Christmas. We survived,

but only just! As I told you before, had to go the ER

Christmas night for an IV, but he his back on his feet and eating

like there is no tomorrow, thank goodness. Of course, children must

always share everything so my daughter's boyfriend, who is on his two

week's leave from Iraq became desperately ill from this same bug and

also had to go to the hospital for treatment. He, too, has recovered

and is up and around. I spent yesterday down with fever and gastic

issues, but am better today. We just hope that this is the end. I

intend to spend today disinfecting my home with lysol and bleach and

hoping that this is over for us. Oh, and just for fun, we had our

family reunion, 25-30 people, in the 3 days after Christmas. What

were we thinking?

! 13lbs, 11 oz. Oh, my gosh! Who would have thought it

just a few weeks ago. I am so impressed with him and with what Dr. H

can do for a kid. Way to go Jodi R.! Way to go, !

I looked at Immi's photos. What a beautiful kid. I love the way her

mom talks about her, too. She is so witty and the love she has for

her just shines through her words.

Anyway, it is on to the new year! I think I will spend a few minutes

in the next day praying that each of us have a happy year filled with

progress, GROWTH , and health for our kids. And that each of us

have the strength and good health ourselves to keep on fighting and

working for these kids and their siblings. I think I will also pray

that Dr. Harbison be blessed with the things she needs to keep on

going and working and blessing RSS kids.

I wish all of you everything you need and some of what you want in

the new year. God bless us, every one.

Love from Conny, great-aunt to , 21 months old and his sister,

Kristel, 9 chubby months old.

[Guest guest]

conny....I sent a little cartoon with happy new year on it........if you didn't

get it my message wouldn't have made sense.....mind you my messages never make

much sense! Happy New Year anyway....

Eileen

EILEEN REID eileenreid2003@...> wrote:

Gosh, Conny...thankyou so much for those lovely words about Immi and me....made

me go all emotional it did!

I'm so glad and the rest of your family are on the mend!

Soto you and yours...little and his chunky sister bless her!!

Eileen x

colson45 olsonconn@...> wrote:

Hi, Everyone

I am glad to hear that everyone had a good Christmas. We survived,

but only just! As I told you before, had to go the ER

Christmas night for an IV, but he his back on his feet and eating

like there is no tomorrow, thank goodness. Of course, children must

always share everything so my daughter's boyfriend, who is on his two

week's leave from Iraq became desperately ill from this same bug and

also had to go to the hospital for treatment. He, too, has recovered

and is up and around. I spent yesterday down with fever and gastic

issues, but am better today. We just hope that this is the end. I

intend to spend today disinfecting my home with lysol and bleach and

hoping that this is over for us. Oh, and just for fun, we had our

family reunion, 25-30 people, in the 3 days after Christmas. What

were we thinking?

! 13lbs, 11 oz. Oh, my gosh! Who would have thought it

just a few weeks ago. I am so impressed with him and with what Dr. H

can do for a kid. Way to go Jodi R.! Way to go, !

I looked at Immi's photos. What a beautiful kid. I love the way her

mom talks about her, too. She is so witty and the love she has for

her just shines through her words.

Anyway, it is on to the new year! I think I will spend a few minutes

in the next day praying that each of us have a happy year filled with

progress, GROWTH , and health for our kids. And that each of us

have the strength and good health ourselves to keep on fighting and

working for these kids and their siblings. I think I will also pray

that Dr. Harbison be blessed with the things she needs to keep on

going and working and blessing RSS kids.

I wish all of you everything you need and some of what you want in

the new year. God bless us, every one.

Love from Conny, great-aunt to , 21 months old and his sister,

Kristel, 9 chubby months old.