update

[Guest guest]

Hey Connie!

Glad to hear you've all survived Christmas, and may the New Year bless you

all with good health!

God Bless you and yours!

HAPPY NEW YEAR!

Pat (g-ma to , RSS, 2 years old!!, 20# 5.2oz, 29 " , Prevacid, Zantac,

Singulair, GT)

[Guest guest]

Cori, I'm happy you're back at work. Are they okay with your job for now?

As to foods, even within the same office I get different answers. The

weight clinic gave me the original list which shows 4th week, chicken. I've

been eating it with no problem, but then this week when I saw the doctor,

she said no chicken or turkey yet. I think you just have to try things and

go at your own pace. I feel so bad you're having such a hard time with the

food. What about other sources of protein, like refried beans and cheese.

I started with that the 2nd week and it's been very comfortable. Lots of

beans have good protein and maybe for you this will help transition you into

the more solid foods. Peanut butter too worked for me.

Hate to tell you, but I've tasted many protein drinks in the past. All were

terrible. Then I went on a liquid protein diet through a doctor for 8-1/2

months. It was absolutely wonderful, but also very expensive. I've been

told they have even better ones now. I was told to supplement my food with

protein bars now, and so far they've been yucky, but I eat tiny pieces and

get through them. I have some new ones that were recommended but haven't

tried them yet.

FORTY-FIVE POUNDS GONE!!!! Yippee for you! Just take it slow with food,

and get yourself a protein counter book so you can decide on the best

sources of protein for you. With the milk problems, do I assume you also

have problems with cottage cheese. It's fairly high and easy to eat. Maybe

taking it a little slower in your transition from liquids to solids will

keep you from back-tracking again.

BTW, I had surgery the day after you. Keep us posted to how you're doing,

in between a very demanding job!

Joan

LAP RNY 11/18/03

Dr. Higa, Fresno, CA

282pre-op/275surg/239/140

[Guest guest]

Cori, I'm happy you're back at work. Are they okay with your job for now?

As to foods, even within the same office I get different answers. The

weight clinic gave me the original list which shows 4th week, chicken. I've

been eating it with no problem, but then this week when I saw the doctor,

she said no chicken or turkey yet. I think you just have to try things and

go at your own pace. I feel so bad you're having such a hard time with the

food. What about other sources of protein, like refried beans and cheese.

I started with that the 2nd week and it's been very comfortable. Lots of

beans have good protein and maybe for you this will help transition you into

the more solid foods. Peanut butter too worked for me.

Hate to tell you, but I've tasted many protein drinks in the past. All were

terrible. Then I went on a liquid protein diet through a doctor for 8-1/2

months. It was absolutely wonderful, but also very expensive. I've been

told they have even better ones now. I was told to supplement my food with

protein bars now, and so far they've been yucky, but I eat tiny pieces and

get through them. I have some new ones that were recommended but haven't

tried them yet.

FORTY-FIVE POUNDS GONE!!!! Yippee for you! Just take it slow with food,

and get yourself a protein counter book so you can decide on the best

sources of protein for you. With the milk problems, do I assume you also

have problems with cottage cheese. It's fairly high and easy to eat. Maybe

taking it a little slower in your transition from liquids to solids will

keep you from back-tracking again.

BTW, I had surgery the day after you. Keep us posted to how you're doing,

in between a very demanding job!

Joan

LAP RNY 11/18/03

Dr. Higa, Fresno, CA

282pre-op/275surg/239/140

[Guest guest]

hi cori, have u tried lite soy milk? there are decent prot shakes

out there, keep trying. try wlssuccess.com & vitalady for samples.

how about tuna?

wtg on the 45 lbs!

keep up the great work & hats off for your work as a firefighter &

paramedic! u go!

lori h.

> As to eatting... I dont know.... I have been moved back to

liquids 3x

> since my surgery. Everytime i try meats

(chicken,burger,ham,turkey) it doesnt

> matter i get sick.... Spicy foods forget, Milk has become a MAJOR

problem.....

> In the hospital i drank all types No trouble or dumping... Now

Soon as i

> swallow I get sudden chest pain and the runs..... I tried lactose

free milk.. No

> better... Yet I can eat pudding with no problem and add a little

to cream of

> wheat with no problem... ANY SUGGESTIONS?????? Pasta is another

downfall... I

> know some will say not suppose to be eatting that but others on

the group who

> know with my job I kinda have to break the pouch rules a bit when

i am

> working.

> I guess will just take alot longer for me to get meats

down... Right

> now I am happy with soups and the other liquids.... But will

hopefully

> eventually be eatting meats for more protien so i can stop these

god awlful protien

> drinks......

> Cori

> 11-17-03

> open RNY

> 305/260/145

[Guest guest]

hi cori, have u tried lite soy milk? there are decent prot shakes

out there, keep trying. try wlssuccess.com & vitalady for samples.

how about tuna?

wtg on the 45 lbs!

keep up the great work & hats off for your work as a firefighter &

paramedic! u go!

lori h.

> As to eatting... I dont know.... I have been moved back to

liquids 3x

> since my surgery. Everytime i try meats

(chicken,burger,ham,turkey) it doesnt

> matter i get sick.... Spicy foods forget, Milk has become a MAJOR

problem.....

> In the hospital i drank all types No trouble or dumping... Now

Soon as i

> swallow I get sudden chest pain and the runs..... I tried lactose

free milk.. No

> better... Yet I can eat pudding with no problem and add a little

to cream of

> wheat with no problem... ANY SUGGESTIONS?????? Pasta is another

downfall... I

> know some will say not suppose to be eatting that but others on

the group who

> know with my job I kinda have to break the pouch rules a bit when

i am

> working.

> I guess will just take alot longer for me to get meats

down... Right

> now I am happy with soups and the other liquids.... But will

hopefully

> eventually be eatting meats for more protien so i can stop these

god awlful protien

> drinks......

> Cori

> 11-17-03

> open RNY

> 305/260/145

[Guest guest]

Great job Maxine. You'll reach your goal, have confidence.

Take Care,

Open RYN 4-7-03

351/224/135

[Guest guest]

Great job Maxine. You'll reach your goal, have confidence.

Take Care,

Open RYN 4-7-03

351/224/135

[Guest guest]

keep up the great work ,maxine!

lori h.

> Saw my Dr today and so far I've lost 85lbs. I had my surgery 6-12-

> 2003. Hopefully by june of this year I'll be at my goal wish of

> 140lbs. Seems to coming off slower than at first but I'll take any

> loss. I've plateaued about 3 times so far and it was really

> discouraging. I can't do alot of aerobic exercising b/c I have a bad

> knee. I live in Baltimore and am just waiting for the THAW so that I

> can get out and walk again Just wanted to let ya'll know how I

> was doing. God Bless all of you and just " keep on Keepin on "

> Maxine

> 300/215/140

> Dr Magnunson

> s Hopkins Medical Center

[Guest guest]

keep up the great work ,maxine!

lori h.

> Saw my Dr today and so far I've lost 85lbs. I had my surgery 6-12-

> 2003. Hopefully by june of this year I'll be at my goal wish of

> 140lbs. Seems to coming off slower than at first but I'll take any

> loss. I've plateaued about 3 times so far and it was really

> discouraging. I can't do alot of aerobic exercising b/c I have a bad

> knee. I live in Baltimore and am just waiting for the THAW so that I

> can get out and walk again Just wanted to let ya'll know how I

> was doing. God Bless all of you and just " keep on Keepin on "

> Maxine

> 300/215/140

> Dr Magnunson

> s Hopkins Medical Center

[Guest guest]

It does get better Nora. I think I was four months out before I could eat

again. I still can't eat a lot mind you but I can eat without feeling full

on the second bite and without feeling discomfort. When we go out I usually

order an appetizer or a salad or a bowl of soup so that I don't waste so

much. Then I sometimes just share what hubby is having.

I don't think you are really feeling hungry. I think it is the dreaded

" Head Hunger " . I had that at first as well but over time it has gone away

and I can easily tell the difference now. Head Hunger I ignore and real

hunger I feed myself.

Time does make things better. The first 2 months after surgery I so

regretted having done it even though I was losing weight very fast. But now

things have gotten alot better and I am so glad I did it. You will be

amazed and the changes (both physical and emotional) that you will go

through over the next couple of months.

It will get better I promise.

Candi

update

Hi all,

Well I have been on Vaction at Disneyland for 5 days with my family. It is

nice to finally have my husband home. My girls are happy and things are

finally back to normal. It was hard at disneyland with eatting though. I

am

still having a hard time eatting. I am 7 weeks post opp. I throw up alot.

And it hurts sometimes too. I mean when the food goes down. I know i need

to take it really slow but sometimes i think it is not worth eatting

because

it hurts or i throw up. I have some good days. I don't reget any of this

but i

never knew how hard it is. When my family wanted a snack at disney i

couldn't i was fine with that it just makes it so hard when you go out any

where. I waste so much food it is unreal. I miss going out to dinner with

the

family. I just hate feeling this way. not knowing if i am going to eat and

if i

am going to throw up or be in pain when eating. eating is really

unejoyable

for me. I hope i am not alone.. please tell me this is kinda normal? I get

so

frustrated sometimes. i know my usband does to. he says this is getting

old

Nora you need to go slower and be more careful. I get so full so fast but

then in a couple of hours i am hungery again. i really don't eat alot. I

have

lost almost 50 pounds so far though. i do look good..I was 291 at the day

of

surgery now i am 246. i feel good. i work out everyday. i just need so

surport with this eating stuff. i get so hungery then i when i do it hurts

or i

throw up or i really only eat a tiny tiny bit. boy i think everything was

so

easy when i was on my HMR shakes... ok enough from me...

Nora

GB Lap

12-30-03

291-246-150

Dr. Owens

San Diego, CA

[Guest guest]

It does get better Nora. I think I was four months out before I could eat

again. I still can't eat a lot mind you but I can eat without feeling full

on the second bite and without feeling discomfort. When we go out I usually

order an appetizer or a salad or a bowl of soup so that I don't waste so

much. Then I sometimes just share what hubby is having.

I don't think you are really feeling hungry. I think it is the dreaded

" Head Hunger " . I had that at first as well but over time it has gone away

and I can easily tell the difference now. Head Hunger I ignore and real

hunger I feed myself.

Time does make things better. The first 2 months after surgery I so

regretted having done it even though I was losing weight very fast. But now

things have gotten alot better and I am so glad I did it. You will be

amazed and the changes (both physical and emotional) that you will go

through over the next couple of months.

It will get better I promise.

Candi

update

Hi all,

Well I have been on Vaction at Disneyland for 5 days with my family. It is

nice to finally have my husband home. My girls are happy and things are

finally back to normal. It was hard at disneyland with eatting though. I

am

still having a hard time eatting. I am 7 weeks post opp. I throw up alot.

And it hurts sometimes too. I mean when the food goes down. I know i need

to take it really slow but sometimes i think it is not worth eatting

because

it hurts or i throw up. I have some good days. I don't reget any of this

but i

never knew how hard it is. When my family wanted a snack at disney i

couldn't i was fine with that it just makes it so hard when you go out any

where. I waste so much food it is unreal. I miss going out to dinner with

the

family. I just hate feeling this way. not knowing if i am going to eat and

if i

am going to throw up or be in pain when eating. eating is really

unejoyable

for me. I hope i am not alone.. please tell me this is kinda normal? I get

so

frustrated sometimes. i know my usband does to. he says this is getting

old

Nora you need to go slower and be more careful. I get so full so fast but

then in a couple of hours i am hungery again. i really don't eat alot. I

have

lost almost 50 pounds so far though. i do look good..I was 291 at the day

of

surgery now i am 246. i feel good. i work out everyday. i just need so

surport with this eating stuff. i get so hungery then i when i do it hurts

or i

throw up or i really only eat a tiny tiny bit. boy i think everything was

so

easy when i was on my HMR shakes... ok enough from me...

Nora

GB Lap

12-30-03

291-246-150

Dr. Owens

San Diego, CA

[Guest guest]

Hi Pat,

I just hate to hear that B is back in the hosp. We'll keep him in

our prayers. Of course I can't help you with your question that

would be one that I would be writing to ask you about.

Take care and talk to ya soon,

le

[Guest guest]

I am so sorry that he is in the hospital, but glad that they took

him quickly.

It is possibly that his blood sugars were in the process of crashing

after the vomiting. THis is what happened when had an

episode while playing soccer. When a child's BSL crashes too low,

the body automatically reacts by having the liver release its store

of sugar -- this sky rockets the blood sugar.

's BSL were crashing at practice, and we gave her Gatorade.

The simple sugar combined with the liver's release sent her BSLs to

460!!!!!

> Hello to all,

>

> Just wanted to let you all know that went into the

hospital last night. He started throwing up, and when it became

apparent that he wasn't going to stop, his mom and other g-ma took

him into the ER.

>

> They did a really good job of getting the Drs to start an IV

before he was taken off feeds. So for today, he's on gut rest.

They're going to try restarting feeds tomorrow at a reduced rate, to

see what he can tolerate.

>

> One strange thing happened, and I was wondering if this ever

happened to any of your kids?? When they started the D10 IV,

's BS shot up over 290 within 30 min, They ended up

disconnecting him, and moving him down to D5. At 9am this morning

his BSLs were at 71 on the D5, so I'm wondering if they should move

him up to the D10 again??

>

> Any thoughts or suggestions would be appreciated.

>

> Take care,

> Pat (g-ma to , RSS, 26 months, 20# 7oz, 29.4 " , Prevacid,

Singulair, GT)

>

>

[Guest guest]

Pat,

Just saw your message and just wanted you to know that we are thinking of

you and your family and will keep you in our prayers. I really know how you

feel as Jonah just got out of the hospital. When you are going through the

hard time, you think it will never end, but then it does. Jonah is eating

more than he ever has I guess to catch up!!

Hang in there,

, Gene and Jonah

update

> Hello to all,

>

> Just wanted to let you all know that went into the hospital last

night. He started throwing up, and when it became apparent that he wasn't

going to stop, his mom and other g-ma took him into the ER.

>

> They did a really good job of getting the Drs to start an IV before he was

taken off feeds. So for today, he's on gut rest. They're going to try

restarting feeds tomorrow at a reduced rate, to see what he can tolerate.

>

> One strange thing happened, and I was wondering if this ever happened to

any of your kids?? When they started the D10 IV, 's BS shot up over

290 within 30 min, They ended up disconnecting him, and moving him down to

D5. At 9am this morning his BSLs were at 71 on the D5, so I'm wondering if

they should move him up to the D10 again??

>

> Any thoughts or suggestions would be appreciated.

>

> Take care,

> Pat (g-ma to , RSS, 26 months, 20# 7oz, 29.4 " , Prevacid, Singulair,

GT)

>

>

[Guest guest]

Pat,

Just wanted to add my prayers! I hope this is a " short " visit to

the hospital and he is on the road to recovery soon!

Beth H.

Mom to Matt

> Hello to all,

>

> Just wanted to let you all know that went into the

hospital last night. He started throwing up, and when it became

apparent that he wasn't going to stop, his mom and other g-ma took

him into the ER.

>

> They did a really good job of getting the Drs to start an IV

before he was taken off feeds. So for today, he's on gut rest.

They're going to try restarting feeds tomorrow at a reduced rate, to

see what he can tolerate.

>

> One strange thing happened, and I was wondering if this ever

happened to any of your kids?? When they started the D10 IV,

's BS shot up over 290 within 30 min, They ended up

disconnecting him, and moving him down to D5. At 9am this morning

his BSLs were at 71 on the D5, so I'm wondering if they should move

him up to the D10 again??

>

> Any thoughts or suggestions would be appreciated.

>

> Take care,

> Pat (g-ma to , RSS, 26 months, 20# 7oz, 29.4 " , Prevacid,

Singulair, GT)

>

>

[Guest guest]

hi pat!

sorry to hear that brandon is sick. hope he is doing better today.

my thoughts and prayers will be with you and your family. give him a

big hug from us when you can.

jodie

(nicholas-5 nonrss, christopher-3 rss 23lbs 33 " ght genotropin .6,

johnathon-8m nonrss)

[Guest guest]

Ken,

That is great news! But if he is growing, why are you stopping the

periactin? I am ramping Matt back up on his morning dose, which is

the hard one!

LEt me know, I am curious.

Beth H.

-- In RSS-Support , " kmerrith " wrote:

> Hi,

>

> My son has RSS. He will be 7 at the end of April.

>

> We saw his pediatric endocrinologist today for a follow up visit.

>

> In the past 4 months he has grown an inch and gained nearly 2

pounds.

> That is huge for him. Before we were lucky that he would gain 2

pounds

> a year and maybe do 2 inches a year. The doctor also said to stop

the

> periactin. We shall see how that works.

>

> So it was a good day. We even made it to the commuter train in

time.

> My son finally got his ride into Boston on the Purple train.

>

> Ken M

>

[Guest guest]

Great news Ken glad to hear you are finally getting some positive results.

Keep smiling.

Hugs to you, Janet and !

Debby

update

> Hi,

>

> My son has RSS. He will be 7 at the end of April.

>

> We saw his pediatric endocrinologist today for a follow up visit.

>

> In the past 4 months he has grown an inch and gained nearly 2 pounds.

> That is huge for him. Before we were lucky that he would gain 2 pounds

> a year and maybe do 2 inches a year. The doctor also said to stop the

> periactin. We shall see how that works.

>

> So it was a good day. We even made it to the commuter train in time.

> My son finally got his ride into Boston on the Purple train.

>

> Ken M

>

>

>

>

>

>

>

>

[Guest guest]

Ken,

Great news about ! We stopped 's periactin about a year ago.

He still struggles with weight gain, but he really has an appetite now.

Last Sunday we went out for brunch after church, and he ate a 3-egg

omelet, and potatoes, and fruit, and then he wanted dessert! This is

the same kid who was fed mostly through a G-tube for 6 years (at

least I think it's the same kid...)

- Joe

> Hi,

>

> My son has RSS. He will be 7 at the end of April.

>

> We saw his pediatric endocrinologist today for a follow up visit.

>

> In the past 4 months he has grown an inch and gained nearly 2 pounds.

> That is huge for him. Before we were lucky that he would gain 2 pounds

> a year and maybe do 2 inches a year. The doctor also said to stop the

> periactin. We shall see how that works.

>

> So it was a good day. We even made it to the commuter train in time.

> My son finally got his ride into Boston on the Purple train.

>

> Ken M

>

[Guest guest]

hi ken!!!

what great news for you guys!! i am glad that kevin is doing so well

and that he got to ride his purple train (we know how important

things like that are to a little boy!!!)

jodie

(nicholas-5 nonrss, christopher-3 rss 23lbs 33 " ght genotropin .6,

johnathon-8m nonrss)-

[Guest guest]

Hi Beth,

His doctor has always viewed periactin as a short term aid. She

been very conservative and limited in her use of medications. It

took a lot of pushing on our part to get him on growth hormone

than to increase the dosages.

She has been a little more liberal with periactin but each time he

appears to be eating ok she has been quick to see how he does

without it. Since we have always been conservative about the

use of any drug, this approach is fine with us.

Also, growth hormone has some appetite stimulating affects on

its own.

So we are hoping that we have some how primed his appetite

and are hoping it continues on its own. We shall see.

We tried this once before and he slowly lost his desire to eat and

his weight began to decline. However, his dose of growth

hormone was much much lower. So we are going to see if this

works.

Ken M

> > Hi,

> >

> > My son has RSS. He will be 7 at the end of April.

> >

> > We saw his pediatric endocrinologist today for a follow up

visit.

> >

> > In the past 4 months he has grown an inch and gained

nearly 2

> pounds.

> > That is huge for him. Before we were lucky that he would gain

2

> pounds

> > a year and maybe do 2 inches a year. The doctor also said to

stop

> the

> > periactin. We shall see how that works.

> >

> > So it was a good day. We even made it to the commuter train

in

> time.

> > My son finally got his ride into Boston on the Purple train.

> >

> > Ken M

> >

[Guest guest]

Hi deb,

Thanks and hugs back to you. I miss all your great advice.

How are you? Hope all is well.

Write when you can.

Ken M

> Great news Ken glad to hear you are finally getting some

positive results.

> Keep smiling.

> Hugs to you, Janet and !

>

> Debby

>

>

>

> update

>

>

> > Hi,

> >

> > My son has RSS. He will be 7 at the end of April.

> >

> > We saw his pediatric endocrinologist today for a follow up

visit.

> >

> > In the past 4 months he has grown an inch and gained

nearly 2 pounds.

> > That is huge for him. Before we were lucky that he would gain

2 pounds

> > a year and maybe do 2 inches a year. The doctor also said to

stop the

> > periactin. We shall see how that works.

> >

> > So it was a good day. We even made it to the commuter train

in time.

> > My son finally got his ride into Boston on the Purple train.

> >

> > Ken M

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

HI Joe,

Glad to hear from you.

All I can say is WOW. That is great !!!!!

We have had similar experiences with .

Thanks,

Ken M

> > Hi,

> >

> > My son has RSS. He will be 7 at the end of April.

> >

> > We saw his pediatric endocrinologist today for a follow up

visit.

> >

> > In the past 4 months he has grown an inch and gained

nearly 2 pounds.

> > That is huge for him. Before we were lucky that he would gain

2 pounds

> > a year and maybe do 2 inches a year. The doctor also said to

stop the

> > periactin. We shall see how that works.

> >

> > So it was a good day. We even made it to the commuter train

in time.

> > My son finally got his ride into Boston on the Purple train.

> >

> > Ken M

> >

[Guest guest]

Hey Ken,

Cool. I have really mixed feelings about periactin. I like that he

eats more, but hate the personality affects! Keep me posted!

Beth

> > > Hi,

> > >

> > > My son has RSS. He will be 7 at the end of April.

> > >

> > > We saw his pediatric endocrinologist today for a follow up

> visit.

> > >

> > > In the past 4 months he has grown an inch and gained

> nearly 2

> > pounds.

> > > That is huge for him. Before we were lucky that he would gain

> 2

> > pounds

> > > a year and maybe do 2 inches a year. The doctor also said to

> stop

> > the

> > > periactin. We shall see how that works.

> > >

> > > So it was a good day. We even made it to the commuter train

> in

> > time.

> > > My son finally got his ride into Boston on the Purple train.

> > >

> > > Ken M

> > >

[Guest guest]

Niki,

My thoughts and prayers are with you and your family. Please keep us updated.

DE

EDD#2 8/2/04

" wyldwind84 " WyldWind@...> wrote:

>

> ok, this was posted on my other email group, sorry, in my stress

>induced brain fart, I forgot I was in two groups!!

>

>---------------------------------------------------------------

>

>Hi everyone, please excuse any typos, I am using a laptop, and not

>familiar with it. Thank you for the message ! Thank you

>everyone for the well wishes!

>

>Ok, this is what is what happened: I took RJ in for his

>circumcision yesterday. We got done, and the doc said everything

>looked great. I had to stop over at my dads work to pick up some

>parts to our heat pump (the fan motor had burned up a week ago and

>we had no heat), stop and get a script filled for RJs pain meds, and

>then went home. It was maybe 2.5 hours from the time they did the

>surgery, til I went to change his diaper. His diaper was filled

>with blood. I called the urologist office, which was closed by this

>time, so had to wait for the doctor on call to call back. After 15

>minutes, and already there was a spot of blood showing on his diaper

>the size of a half dollar, I called his peds doctor, who called me

>back with in 5 minutes. He told me to take him into the pediatric

>ER. Just as I was getting to walk out the door, the urologist

>called back, and also said for me to go to the er, both docs said

>they would call ahead and let them know I was on the way, and what

>was going on. Before I left, I had called my parents to meet me up

>at the hospital, since Jake had a minor cold and was running a low

>grade fever, he couldn't come, Jim was going to stay home with him

>so he could get the heat pump fixed ( which he did, YEAH

>HEAT!!!!!). I got to the hospital, and I had brought the original

>diaper to show them the blood loss. We got back into the room

>quickly, and as soon as the peds doc touch Jakes penis, blood shot

>up like a fountain! It took 2 doctors putting pressure on his penis

>(back to back, not both at once)and about 15 minutes to get the

>bleeding stopped. My mom told me later that the urologist had

>called while we were in the exam room, and she heard the ER doc

>talking to him, and he sounded PISSED. Like the urologist didn't

>understand exactly HOW much bllod RJ had lost. About 15 minutes

>later, the urologist showed up, and pushed the foreskin down to

>reveal a good sized hemotoma ( I think I am spelling that correct).

>While all this was going on, we had been discussing blood cloting

>problems in our family. Luckily my mom was back in the exam room

>with me, so she was able to answer some of the questions better than

>I can. WE have a family history of a disease called " von

>willebrands disease " . Basically it is where the blood doesn't clot

>like it is suppose to, but it runs in cycles, and normally only has

>to having anything done about it when surgery is being performed.

>They pulled blood work to check his clotting factor (see results

>below). The urologist decided they were going to take him up the OR

>and remove the hemotoma, and put in a few stitches to keep it from

>opening back up. they also gave him some cryoprecipitate, which is

>basically frozen plasma to help bring his clotting factor up. When

>I found out that they were goihng to be doing all of this, I called

>Jim, who got things together for Jake to stay with my parents, since

>I was going to be up at the hospital with RJ, and he had to work, (

>it was volunteered for OT, which if he didn't work it, he would have

>been fired, and why sit up here and worry, when he can sit and worry

>there and make money doing it?) About midnight we got up to the

>room, and both of us collapsed into sleep. This morning the

>hemotologist came up to see us. RJs clotting factor was at 12% of

>normal last night. The doctor told us RJ has basically has one of

>two diseases: Van Willebrands disease, or hemophilia. Honestly, we

>are hopeing for the Van willabrands, since we woulnd't have to worry

>about meds daily. As of this afternoon, RJs clotting factor was up

>to 54%. THe hemotologist he having factor 8 given to RJ every 12

>hours, and there are 4 doses, so it looks like we are going to be

>here until Monday morning. I am current using the laptop the

>belongs to the hospital to check my email. I

>

>I hope that I was able to explain everything. I really need to get

>some sleep.. My head has already hit the desk 3 times, and it is

>leaving really nasty bruises. I will try to write again tomorrow

>when I find out something new. If anyone would like to call, my

>cell number is 1-. Just wait until Sunday after4noon to

>give me a chance to find out something new.

>

>

>TTFN,

>

>Niki, Jim, Jake and RJ

>

>

>

>

>

>

>

>

>

>

--

Have a great day!!

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