Hey All...

[Guest guest]

Its been such a long time since I posted. I'll give an update...

I finished Nursing school. Im now an RN and I work in the

Pediatric ICU at the Children's Hospital here in Buffalo, NY. Ive

managed to overcome this neurosarcoidosis.

Being diagnosed 5 years ago was the worst thing that ever

happened to me...and beleive it or not...was the best thing too. It

made me the man I am today. After feeling sorry for myself because of

the limitations I had, I slowly got physically stronger, better, and

menatally I changed who and what I am!

I know that many people do not recover or even go into

remission. I kept that in mind everyday I was able to get up and care

for patients, everyday I got up early to study. Even though I have

not posted in a long while, Many of you " old timers " were on my mind.

Just wanted to say Hi...and now that I have time and some

additional knowledge, I hope to more active!

Jake

[Guest guest]

Hey, Jake, I'm glad you posted. I've wondered about you & how you were doing. I'm glad to hear that things are going well for you. Congratulations on your new career!

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Hey All...Date: Mon, 05 Feb 2007 15:20:29 -0000

Its been such a long time since I posted. I'll give an update... I finished Nursing school. Im now an RN and I work in the Pediatric ICU at the Children's Hospital here in Buffalo, NY. Ive managed to overcome this neurosarcoidosis. Being diagnosed 5 years ago was the worst thing that ever happened to me...and beleive it or not...was the best thing too. It made me the man I am today. After feeling sorry for myself because of the limitations I had, I slowly got physically stronger, better, and menatally I changed who and what I am!I know that many people do not recover or even go into remission. I kept that in mind everyday I was able to get up and care for patients, everyday I got up early to study. Even though I have not posted in a long while, Many of you "old timers" were on my mind.Just wanted to say Hi...and now that I have time and some additional knowledge, I hope to more active!Jake

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[Guest guest]

Jake, this is wonderful news! I am so happy for you and hope the

old Sarc Monster never finds you again! I know some people DO

go into remission and some never get sick from it again -- but these

are rare. I have a 3rd cousin that was diagnosed about 25 years

ago with Sarc in his lungs. He was put on a very high dose of

prednisone and has never had a flare up since! He is soooooo

lucky....unfortunately, it did not work for me that way. But.......

hey, I am better off than a lot of people so I keep telling myself

that and I was given a second chance at life last September

after being in the hospital for 75 days, so I am recovering slowly

but surely. You keep that good attitude -- stay well-- and it is

so good to see you posting!

Hugs,

Darlene

NS Co-Owner/Moderator

Its been such a long time since I posted. I'll give an update... I finished Nursing school. Im now an RN and I work in the Pediatric ICU at the Children's Hospital here in Buffalo, NY. Ive managed to overcome this neurosarcoidosis. Being diagnosed 5 years ago was the worst thing that ever happened to me...and beleive it or not...was the best thing too. It made me the man I am today. After feeling sorry for myself because of the limitations I had, I slowly got physically stronger, better, and menatally I changed who and what I am!I know that many people do not recover or even go into remission. I kept that in mind everyday I was able to get up and care for patients, everyday I got up early to study. Even though I have not posted in a long while, Many of you " old timers " were on my mind.Just wanted to say Hi...and now that I have time and some additional knowledge, I hope to more active!Jake