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hey jodi!!

i was thinking about you guys when i went passed morristown hospital

on the way to johnathon's well visit at the ped. i am sorry to hear

he is not feeling well still!! if you need anything just let me

know, i was going to stop yesterday but i have been sick and i didnt

want to take the chance of passing something else on to max or you

even!! take care and give him a hug from me!!

jodie c

>

> Max is still in the hospital. I ran home to take a break and a

> shower. He is still not able to eat anything, but they started j-

> tube feedings after doing a contrast study to make sure everything

> was okay and in the right place. They started at 25cc/hour and

> upped it to 50cc/hour after 5 hours. After about 30 minutes, Max

> began to complain of nausea and started spitting/throwing up

again.

> Back to the 25. We will try upping the rate a bit more slowly in

> the morning. I had told the residents to up it slowly, but did

they

> listen? No. I'm only the mom who has been through this countless

> times. Some of them were barely in elementary school when we first

> started with Max and his pump feedings. (Scary thought, huh?)

>

> But Max is in okay spirits, so that is good. I'm comfortable with

> our single room, so that is good, too. I have to take tomorrow off

> from work again because there are too many details to work out at

> the hospital, but on Friday I will be going back. I need a break,

> too! I do think that Max will go home on Friday evening anyway.

At

> least I hope so!

>

> Jodi Z

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  • 9 months later...

Have a blast with w/e Kori!!

Lori

> We did get new shoes from three days ago... but they're too

> small. About half an inch too small. So he's making her new ones.

>

> But I'm seeing these rivets and the way the buckle swivels seems

like a

> really great improvement. The rivets aren't going to press into

the feet

> as far as I can tell either. I'm looking forward to her new pair

to try

> them out. She's still having issues with the shoes she's got and

I can

> hardly keep them on her anymore. ugh...

>

> did say I could cut out the back but I haven't yet. Hoping

for a good

> night tonight, we'll see. She's staying with grandma tonight so

who knows.

>

> Busy weekend here. Birthday party, company party for a friend,

and wedding

> rehearsal tomorrow night. Then dh's brother's wedding on Sunday.

Kenton

> is the ring bearer. Merek felt left out so I ended up buying him

a used

> tuxedo and now both my little men look so wonderful! Oh, and

tonight (in

> about an hour) I'm supposed to be at a bachelorette

> party. hummm... better get off the puter huh?

>

> Spater!

>

> Kori

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  • 5 months later...

glad to hear your doing good. Congrats on the weight loss. It is pretty exciting when the scale drops especially when the scale drops below the big 200. You will be there soon bet you can't wait for that day. Keep up the good work Roseda6bearz wrote: Good Morning all,Hi again my name is I had my surgery on December 7th. I'm now about 6 weeks out and doing pretty good. I started at 257 at surgery I was 237 and now I am at 203. So that is 54 pounds since the start and since surgery it is 34 pounds. I've only had one problem since surgery and that was tiredness and weakness and I found out it wasn't really normal I was getting dehydrated. Well I fixed that quickly and now I feel much better.Talk to you

soon,

Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever.

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Thanks Rose dropping under 200 is a huge milestone can't wait!!

> Good Morning all,

>

> Hi again my name is I had my surgery on December 7th. I'm

now

> about 6 weeks out and doing pretty good. I started at 257 at

surgery

> I was 237 and now I am at 203. So that is 54 pounds since the

start

> and since surgery it is 34 pounds. I've only had one problem

since

> surgery and that was tiredness and weakness and I found out it

wasn't

> really normal I was getting dehydrated. Well I fixed that quickly

and

> now I feel much better.

>

> Talk to you soon,

>

>

>

>

>

>

>

>

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You're doing great, keep up the good work and you'll be in One-der-land before you know it. Take care. Donnada6bearz wrote: Good Morning all,Hi again my name is I had my surgery on December 7th. I'm now about 6 weeks out and doing pretty good. I started at 257 at surgery I was 237 and now I am at 203. So that is 54 pounds since the start and since surgery it is 34 pounds. I've only had one problem since surgery and that was tiredness and weakness and I found out it wasn't really normal I was getting dehydrated. Well I fixed that quickly and now I feel much better.Talk to you soon, Donna JordonDSJordon@...

Yahoo! Photos – Showcase holiday pictures in hardcover Photo Books. You design it and we’ll bind it!

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  • 1 year later...
Guest guest

Dear NS-friends,

Just a quick update. Thank a lot for all your information about Infliximab.

Tomorrow I'll go to the South of the Netherlands, Thursday I'll get my first Infliximab infusion.I keep my fingers crossed...

Take Care and a big hug from the Netherlands,

Yvonne

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Guest guest

Yvonne,

I do hope that your infusion went well. I know for me it has helped tremendously. I had to twik the dosage and the amount of time between doses-- for me, it's 7mg/kg and every 28 days-- and that seems to work well for 24 days. Those last 4 days my lymphnodes think it's party time-- and so they swell up and feel like marbles. Not a fun time at all.

It's good to hear from you, do take care, and let us know how the Remicade works for you.

Blessings,

Tracie

NS Co-owner/moderatorGet a sneak peak of the all-new AOL.com.

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