Pat and gammaglobuin

[Guest guest]

Do you have an immunoligist available to you? We never met with our

geneticist about Wyatt's immune problems. We saw a GI doc first who

suspected the immune problems and then went straight to an

immunologist who did quite a few tests- immune system and

vaccination reactions, etc. Afterwards we informed our geneticist

of the problem. So I don't think you need to wait to see Dr. Cohen

about it. If your insurance lets you, you can make an appointment

with an immunologist. One last note, our ped. didn't think the

numbers were a problem. The immunoligist who see's quite a few kids

with multiple problems did. I went with the immunologists advice.

Not that my ped isn't fabulous, but sometimes they don't see how one

problem for a kid like Wyatt can blossom into a bigger problem.

Geri-Anne and Wyatt, Complex I-

-- In Mito , " patsparks66 " wrote:

> Thanks for the information.

>

> We have been talking about the use of a daily antibiotic to try to

> keep well, or the gamaglobulin. We won't go back to see Dr.

> Cohen till next summer unless needed before then. We haven't had

any

> testing for the immune problem except what was done when she had

her

> testing for the Mito. Her IgM level was below normal low. She

had

> it redone a few months later because a different doctor thought

maybe

> it wasn't an accurate result and that time it was even lower. Dr.

> Cohen hasn't suggested anything yet. Try to avoid sick people to

cut

> down on infections, this is hard when you go to school with 2300

> other kids. We'll keep researching this and discussing it with

her

> Dr. here at home. Thanks again for your help.

>

> Pat

>

>

>

>

> > > My 15 year old daughter has a mitochondrial disease. She gets

> sick

> > > often and every little thing pulls her down so much. Her

> > > pediatrician was curious about whether or not they use

> gamaglobulin

> > > to help with kids like her. I have never read anything about

it

> > > with the Mito. I myself took gamaglobulin shots for two years

> when

> > > I was a baby because I stayed sick and in the hospital. I

didn't

> > > know if they even did these anymore. Can anyone help me with

> this?

> > >

> > > Pat