Re: I lost it (maybe I can help)

[Guest guest]

Hi Misty,

I am new to the group, and have never posted on this list before, as

we are not sure if my son has mito, and we are very new to the whole

idea. I am hoping I can help you with the appointment at JH. My

son has an appointment at JH on August 16th at 8:00 in the morning

with who I believe is Dr. Crawford. I was going to cancel that

appointment until I came across your post. I was thinking we could

call JH as a three way call together and I could cancel my

appointment then have them give the appointment directly to you. I

am actually canceling the appointment because we have found a

wonderful neurologist at land University along with my son's

immunologist. They may not have all the answers, but they are

willing to exhaust all avenues to find them. Please let me know if

I can help. You can email me directly at Januaryeg@....

Take care,

Brennen 4, CVID, IVIG, GERD w/ Failed Nissen Fundoplication, G tube

EO28, Multiple Food & Antibiotic Intolerance, Global Hypotonia,

Subluxation of Hips, Bone Changes, Seizure Disorder, White Matter

Abnormalities, Mild Kidney Hydronephrosis, Root Resorption of Teeth.

Taking Nexium, Singular, Trileptal, Zyrtec, Albuteral, Melatonin,

Diastat for prolonged seizures

le 5, Blessedly healthy, except for a little reflux and

environmental allergies