just need to connect again with those who understand

[Guest guest]

Its been a very long time since I've posted here. I was diagnosed in

1994 with sarcoidosis on my trigeminal nerve, it has spread to the

nerves in my head. I have a secondary location of it in my lungs. the

pain in my face and head is getting worse. Its to the point I can't

stand the shower to hit my head, even laying my head on a pillow is

becoming difficult. Sleep has been a problem for a while now, this is

just adding to it. I have applied for social security and been denied,

I have an attorny now so we are waiting for a hearing. In the mean

time I have no insurance and have a hard time finding a doctor willing

to take payments. I live with my parents who are retired and so are

income is not great. This is probably more than anyone wants to know.

I just needed to talk to someone who understands this disease. Its

wrecking havoc with my body in more ways than one.

Thanks for listening to the sleep deprived rantings of a not quite

sane person.

Kimber