muscle aches?? what helps???

[Guest guest]

So we dont have a diagnosis yet. we go for our muscle biopsy preop

on monday. but according to all the bloodwork and scans, they are

pretty confident BRAndons (21 months) problems are mito.

This past week hes been miserable. i mean MISERABLE.

he is clearly hurting. he is completley happy laying down in his

crib, sitting in his high chair, or sitting on my lab getting his

legs rubbed.... otherwise hes mostly a complete bear.

I gave him motrin yesterday finally just to see if it was a pain

issue, or just 'terrible twos', and it made a HUGE difference. he

was a new baby. completely and totally happy.

so im certain hes hurting, and im pretty sure its mostly his legs.

I talked to the doc today, and she said given that his CK enzymes

are high, it stands to reason that he likely has sore muscles

(equivelent to the 'aches and pains' you get with the flu). BUT she

said we shouldnt use motrin unless he has a high fever (his temp has

been around 101 wich for him isnt high at all).

So I know alot of you deal with this, Im wondering what 'non

medicine' ways you have of dealing with sore muscles/joints,

particularily in young children... i can only give him so many leg

rubs and warm baths...

any advice??

I hate the idea of him wandering around in pain all the time....

Keely

[Guest guest]

Because of s fevers, we use motrin quite often, so they dont

want us using it unless is a dire need (we only use it if his fevers

get over 103)... as their worried about kidney or tummy problems (I

have kidney damage from overuse of ibuprofen as a teenager).

I talked to our pharmacist, and he said we could try A535, so were

giving it a shot tonite... see if it helps at all...

> Did they say why not to use the Motrin? I can understand not

over using it,

> but if it helps why not. Grace also gets a lot of leg pain. We

usually can

> tell because she just cannot keep her legs still when her body is

otherwise

> relaxed. Unfortunately I don't have much help, as we are doing

the same as

> you (massage, warm bath, motrin). She is awaiting orthotic foot

supports to

> be made for her (should be done soon) as some of her pain is

related to very

> week feet and ankles. I am hoping this will bring her some more

relief. Her

> orthopedic doctor said that it should help some, but probably not

totally.

> Hope you can find him some good help.

>

[Guest guest]

Keely,

Max is most of the time is in a lot of time , specially in her ankles, even more so at night. We have always done Motrin and also found that icing helps.

max does have orthodics, however, it does not seem to take the pain away. things got definately easier for us when Max started to talk and could tell us about her pain. Not that it made her pain any less.

regards,

rosy, mum to max 5