RE: Re: Neurosarcoidosis Specialist in Atlanta, GA?

[Guest guest]

Shauna, I saw Dr. Stern in 2002 to get a firm diagnosis. My local neuro here in Indiana was sure I had NS, but didn't want to treat me because all my tests were "normal." I paid out-of-pocket to see Dr. Stern, who had no doubt that I had NS & recommended immediate treatment. I went back the next year for follow-up. After he left Emory for land, I started seeing Dr. Baughman at the Univ. of Cincinnati. He told me last year that Stern had retired; it's a shame because he was very knowledgeable.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Neurosarcoidosis Specialist in Atlanta, GA?Date: Sat, 30 Jun 2007 17:46:36 -0000

I have Neurosarcoidosis since 2003. I live in atlanta and there are no neurosarcoidoisis doctors here since DR. Stern at Emory hospital left in 2004. I currently go to Emory still to a DR. Rafeal in the Pulumnary department. I am going to see him again in July. Maybe you could see him also. He has taken over my sarcoidosis and treats the lung kind but I still go to him because Emory Hospital is very good with treating me. If you would like his number let me know. I had some of the same symptoms as you but they have cleared up for the most part. Just recently I have been experiencing a few problems and that is why I am going back. Email me if you would like the number abnd more information. sglaspie (AT) hotmail (DOT) comShauna in Atlanta>> Hello everyone,> This group has already been helpful and educational to me and I just > joined today. I've been having symptoms since Dec 06 but it became > worst in Feb 07. First they thought a stoke, then brain tumor, brain > lesion, MS and now neurosarcoidosis. I'm a nurse of almost 20yr now > I'm the patient; a difficult role reversal. I have short term memory > loss, fatigue, severe daily headaches, occasional migraines, > difficulty with concentration and insight and I have difficulty having > a conversation, I just kinda stand there cause I don't know what to > say. I have exhausted my FMLA and now a true diagnosis as I fear > termination due to absence and declining performance. That's not how I > want to leave. I'm a single parent with 3 children therefore I must > work as much as I possiblity can and I need my insurance. Does anyone > have any suggestions for me re: SSDI and short/long term disability > and Medicare insurance. Does anyone know a NS specialist in the > Atlanta area or just a EXCELLENT Dr. that I can see? Thanks in advance > for your assistance and suggestions.>

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