HELP ICD-9 Codes CoQ10 Coverage

[Guest guest]

Hi all,

I need your help please.

Could you tell me what ICD-9 code you used to get your CoQ10 covered by

insurance? We have a Mitochondrial Myopathy (probably considered

Unspecified since the mutation, etc was not found). (Possibly Mito

Myopathy Complex I deficiency).

Our peds doctor had put 729.1 (myalgia and myositis, unspecified), but

I want to make sure this will work for our kind of mito before we

submit it.

There is New Code: 277.87 Disorders of mitochondrial metabolism

Kearns-Sayre syndrome

Mitochondrial encephalopathy, lactic acidosis and stroke-like episodes

syndrome (MELAS)

Myoclonus with epilepsy and with ragged red fibers syndrome (MERFF)

Mitochondrial neurogastrointestinal encephalopathy (MNGIE)_

Neuropathy, ataxia and retinitis pigmentosa syndrome (MARP)

Add Excludes: disorders of pyruvate metabolism (271.8)

Leber’s disease (377.16)

Leigh’s encephalopathy (330.8)

Reye’s syndrome (331.81)

BUT the problem with this one is our family doesn't appear/test to have

any of the above-listed mitos, other than the sections that says:

Disorders of mitochondrial metabolism.

THANK YOU SO MUCH FOR YOUR HELP IN THIS MATTER, AS I AM RUNNING OUT OF

TIME TO GET THIS SUBMITTED.

Shirley, mom to and Jordan

P.S. I HAVE NOT BEEN ABLE TO GET MY EMAIL MESSAGES FOR THE LAST FEW

DAYS AND TODAY, OFF AND ON, I HAVE BEEN ABLE TO GET SOME. I DID NOT

GET AUG. 2 TO TODAY. I AM HOPING THIS WILL MAKE IT AND I WILL RECEIVE

YOUR RESPONSES. THANKS