Just wanted to say thanks for being here

[Guest guest]

Hi everyone:

This is my first post, I found you a week or so ago and have been

skulking around reading posts ever since. The information is great

and it is so nice to find people who 'get it'. I have over the years

spent a good deal of time on other Sarc sites but there are so few of

us with NeuroSarc and nobody really understands what it's all about

until they get to 'feel the joy!', so thanks for being here!!!

The first thing that really connected for me was the discussions about

memory loss, I've been dealing with memory loss for at least a dozen

years and although I have, like most of you, found ways to cope, it's

still the pits. I hate the feelings of frustration and embarrasment

that come with having lost a piece of my mind. I'm not sure whats

worse though, forgetting something important like going to the bank

and causing money problems that should never have happened, loosing

the memory of something cute my grandsons did the other day, or the

looks on the faces of the people I care about when they realize I have

no idea what they are talking about when they tell me we had an

important conversation which is totally gone. Pretty much I hate it all.

I always tell people, (usually when I'm appologizing for something I

forgot about) that it almost 'feels' like there is a wall between me

and the memory that's missing and the only thing I can do is relax and

try to slowly work my way toward the memory. I don't know if that

makes sense, but that's the way it works with me anyway, sometimes if

I'm really lucky, I can imagine I am walking or driving toward

whatever it is Im trying to remember and if I don't allow myself to

get frustrated, and stay relaxed after an hour or two I can get to the

memory. This sure doesn't work every time but once in awhile it works

out. What's really pathetic is that when I do manage to recapture a

fragment of memory I'm so excited I want to tell everyone about my

'huge' accomplishment, but how do you explain something this weird to

someone who has never experienced this kind of problem.

Oh well, I'm really just rambling on about this, but it sure does help

knowing that there are other folks out there who have the same

problems, you know what they say about misery loving company!

Stu