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Thanks for this link--it is excellent!! I had my list of tests that

I must have before going to Spain and just wanted to clarify which

ones are grouped together. Saved me the time of all the tedious

searching. This may be something to put in the files section.

Pammi

set to switch

10/15/01

Spain

> For those interested in the reasons for and results of various lab

> tests, try the following site.

>

> http://labtestsonline.org/

>

>

> Hanging on till 9/5 with Dr. Pomp and Mt. Sinai. Awaiting ins.

> approval.

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  • 2 weeks later...

This site should have the info you need

http://labtestsonline.org/

Good luck!

RNC, JD and not swimming with the sharks in Florida--in NYC

awaiting surgery 10/3.

> Had some blood tests done to see if I had to go back on my diabetes

meds

> after my DS. Now, you have to understand about my endocrinologist:

call his

> number and, naturally, get the list of # options. But you have to

wait 2 to

> 3 days just to get a call back to make an appointment or talk to th

P.A.

> Forget talking to the Dr. to find out lab results AND WHAT THEY

MEAN! Five

> days after I called for results, I got a paper telling me results,

but no

> indication of what norms are.

> The Glucose level I understood: 109 (not bad for no meds; pre-op

glucose was

> around 150-160, and that was while taking 2500 mg. Glucophage & 30

mg.

> Glynase daily!). But, I'm hoping, that someone out there can

interpret the

> following and let me know (in the immortal words of Ed Koch), " How'm

I

> doin'? "

> Glycohemoglobin result 5.9%

> Lipid panel

> Triglycerides 105

> Total Cholesterol 128

> HDL 44

> LDL 63

> Ratio 2.9

> Hepatic function panel: just got a check mark

> I'd love some enlightenment. Thanks

> Marcia

> Dr. Ren

> 7/13/01

> 280/52

> lost 14 lb. pre-op

> 237/44 as of today

>

> shadow44@o...

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Thanks, .

Marcia

> Re: lab results

>

>

> This site should have the info you need

> http://labtestsonline.org/

>

> Good luck!

>

> RNC, JD and not swimming with the sharks in Florida--in NYC

> awaiting surgery 10/3.

>

>

>

> ----------------------------------------------------------------------

>

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At 2:23 AM +0000 8/16/01, c50684@... wrote:

>

>

>... " How'm

>I

> > doin'? "

> >

> > Lipid panel

>> Triglycerides 105

>> Total Cholesterol 128

>> HDL 44

>> LDL 63

> > Ratio 2.9

> >

Your lipid panel is fantastically great!!! Everything is A+++.

--Steve

--

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Thanks, Steve. As usual, you make me feel great!!

Marcia

> Re: lab results

>

>

> At 2:23 AM +0000 8/16/01, c50684@... wrote:

> >

> >

> >... " How'm

> >I

> > > doin'? "

> > >

> > > Lipid panel

> >> Triglycerides 105

> >> Total Cholesterol 128

> >> HDL 44

> >> LDL 63

> > > Ratio 2.9

> > >

>

> Your lipid panel is fantastically great!!! Everything is A+++.

>

> --Steve

>

>

> --

>

> ----------------------------------------------------------------------

>

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> Had some blood tests done to see if I had to go back on my diabetes

meds

> after my DS. > Glycohemoglobin result 5.9%

>

Marcia - your glycohemoglobin looks really good. On my last labs,

they interpreted the scores this way

a score of 8 - additional action needed

7 = goal

6 = non-diabetic

I've been really lucky and never took another diabetes drug ( was on

glyburide, glucophage, actos, plus multiple insulin shots) from the

day I walked out of the hospital.

I want so much to think that i am " cured " , but in reality I will

always be at risk for diabetes - my father had it and he was thin.

But at least for now, I think of myself as " non-diabetic " !!

You are doing great, and doesn't it feel good to be free of all those

medications and possible complications?

Best wishes for continued success!

Ellen

DS 2/14/01 310

Dr. Anthone

8/16/01 231

- 79 lbs.

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> Had some blood tests done to see if I had to go back on my diabetes

meds

> after my DS. > Glycohemoglobin result 5.9%

>

Marcia - your glycohemoglobin looks really good. On my last labs,

they interpreted the scores this way

a score of 8 - additional action needed

7 = goal

6 = non-diabetic

I've been really lucky and never took another diabetes drug ( was on

glyburide, glucophage, actos, plus multiple insulin shots) from the

day I walked out of the hospital.

I want so much to think that i am " cured " , but in reality I will

always be at risk for diabetes - my father had it and he was thin.

But at least for now, I think of myself as " non-diabetic " !!

You are doing great, and doesn't it feel good to be free of all those

medications and possible complications?

Best wishes for continued success!

Ellen

DS 2/14/01 310

Dr. Anthone

8/16/01 231

- 79 lbs.

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I want so much to think that i am " cured " , but in reality I will

always be at risk for diabetes >>>>

This is an interesting subject to persue......how can we be at risk for

diabetes when its cured with the surgery?

Judie

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I think congratulations are in order

Your total cholesteral is fabulous!! Your LDL should always be

higher than the HDL and this is fabulous. THe website for the lab

tests is great--and will explain alot for you!!

The DS is working for you!! WHOO---Raaayyy!!!

Pammi

> > Glycohemoglobin result 5.9%

> > Lipid panel

> > Triglycerides 105

> > Total Cholesterol 128

> > HDL 44

> > LDL 63

> > Ratio 2.9

> > Hepatic function panel: just got a check mark

> >

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I think congratulations are in order

Your total cholesteral is fabulous!! Your LDL should always be

higher than the HDL and this is fabulous. THe website for the lab

tests is great--and will explain alot for you!!

The DS is working for you!! WHOO---Raaayyy!!!

Pammi

> > Glycohemoglobin result 5.9%

> > Lipid panel

> > Triglycerides 105

> > Total Cholesterol 128

> > HDL 44

> > LDL 63

> > Ratio 2.9

> > Hepatic function panel: just got a check mark

> >

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Judie,

I was quite skeptical of the claims that the DS " cures " diabetes. I've

always been told that there was no cure. The best answer I have gotten yet

is that the DS can postpone the onset of diabetes, but once you have had it,

it is always sort of " lurking " . Perhaps it is best to say that once you have

had it you are predisposed to it.

Whatever the case may be, I was a type 2 diabetic for about three years

before I had surgery. I was " diet controlled " ha! At any rate, not on any

medication. It took me a full 2 months to finally see my blood sugars go

into the normal range. At my 3-month checkup with Dr. A., my blood sugars

had been in the normal range, consistently, for long enough that he said I

didn't have to check them anymore. What a wonderful freedom that is!

Dawna

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This means you're doing fantastic!

P

> Had some blood tests done to see if I had to go back on my diabetes

meds

> after my DS. Now, you have to understand about my endocrinologist:

call his

> number and, naturally, get the list of # options. But you have to

wait 2 to

> 3 days just to get a call back to make an appointment or talk to th

P.A.

> Forget talking to the Dr. to find out lab results AND WHAT THEY

MEAN! Five

> days after I called for results, I got a paper telling me results,

but no

> indication of what norms are.

> The Glucose level I understood: 109 (not bad for no meds; pre-op

glucose was

> around 150-160, and that was while taking 2500 mg. Glucophage & 30

mg.

> Glynase daily!). But, I'm hoping, that someone out there can

interpret the

> following and let me know (in the immortal words of Ed

Koch), " How'm I

> doin'? "

> Glycohemoglobin result 5.9%

> Lipid panel

> Triglycerides 105

> Total Cholesterol 128

> HDL 44

> LDL 63

> Ratio 2.9

> Hepatic function panel: just got a check mark

> I'd love some enlightenment. Thanks

> Marcia

> Dr. Ren

> 7/13/01

> 280/52

> lost 14 lb. pre-op

> 237/44 as of today

>

> shadow44@o...

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Dawna,

I think your being a skeptic has to do with how the medical professon wants

us to think... " once you have it, youve got it for life. " Along comes the DS

surgery and you no longer have traces of it! What to think? I think the

malabsorption has alot to do with the fact we may never get it again if we

had it prior. Diabetes, congestive heart failure, arthritis in weight

bearing joints, etc are ALL diet related so the surgery does do something

that takes all of that away. My husband was border line diabetic and had

mild congestive heart failure.....none of those are present today....in

fact, the doc says there is nothing there to even indicate he ever had them!

If you are predisposed to getting it, how do you explain its gone after

surgery? Something in the surgery itself seems to " cure " it....no other way

to explain. How can it postpone diabetes if you had it and its gone now?

Just a couple questions to think about!

By the way, congrats that you no longer have it!! I bet you never do!!!!!!!

Hugs,Judie

Re: Re: lab results

> Judie,

>

> I was quite skeptical of the claims that the DS " cures " diabetes. I've

> always been told that there was no cure. The best answer I have gotten

yet

> is that the DS can postpone the onset of diabetes, but once you have had

it,

> it is always sort of " lurking " . Perhaps it is best to say that once you

have

> had it you are predisposed to it.

>

> Whatever the case may be, I was a type 2 diabetic for about three years

> before I had surgery. I was " diet controlled " ha! At any rate, not on

any

> medication. It took me a full 2 months to finally see my blood sugars go

> into the normal range. At my 3-month checkup with Dr. A., my blood sugars

> had been in the normal range, consistently, for long enough that he said I

> didn't have to check them anymore. What a wonderful freedom that is!

>

> Dawna

>

> ----------------------------------------------------------------------

>

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  • 1 year later...

In a message dated 2/17/2003 4:32:41 PM Central Standard Time,

GRANTWIT@... writes:

> I asked her what labs were

> going to be done...she stated a CBC, UA, and Potassium. I asked why

> the Potassium? She said it was standard. I told hr, no, and I am

> not rtaking a diuretic, so why was it being done?

---------------------------------------

Why would you NOT want potassium labs run? It's important for us to know

where we stand on this.

Carol A

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In a message dated 2/17/2003 4:32:41 PM Central Standard Time,

GRANTWIT@... writes:

> I asked her what labs were

> going to be done...she stated a CBC, UA, and Potassium. I asked why

> the Potassium? She said it was standard. I told hr, no, and I am

> not rtaking a diuretic, so why was it being done?

---------------------------------------

Why would you NOT want potassium labs run? It's important for us to know

where we stand on this.

Carol A

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  • 3 months later...
Guest guest

Hi-

Your lab results (at least the ones I understand) show worsening GD. If you

have a doc wedded to the idea of getting you so sick you will beg him for

RAI, you might want to consider a change of doctor. You must have pretty bad

hyper symptoms, with these numbers!

Terry

>

> Reply-To: graves_support

> Date: Tue, 10 Jun 2003 03:52:39 -0000

> To: graves_support

> Subject: lab results

>

> Hi all,

> I'm posting my most recent lab results along with all the previous

> ones and would appreciate any opinions as to where I'm at with this

> disease, how severe is it at this point (according to the numbers in

> my blood work), etc. To refresh you on my situation, I was diagnosed

> this past Feb 03; I'm not on any ATDs as my doctor wouldn't prescribe

> them (prefers RAI of course). I am on Atenolol 25mg. I'm also

> taking the tinctures bugleweed/motherwort/lemonbalm. So here they

> are with most recent on top:

>

> 5/22/03

> TSH <0.01 (0.35-5.50)

> THYROXINE, FREE DIRECT 4.29 (0.75-2.00)

> GGT 78 (2-45)

> LIVER-AST 35 (3-45)

> LIVER-ALT 48 (3-50)

> TSI 143 (125 OR LESS)

> ANTITHYROID ANTIBODIES

> THYROID PEROXIDASE AB 13.7 (<35)

> ANTI-THYROGLOBULIN ABS <20.0 (<41)

>

>

> 3/25/03

> TSH <0.01 (0.35-5.50)

> THYROXINE, FREE DIRECT 3.22 (0.75-2.00)

> WBC 4.2 (4.1-11.3)

> GGT 116 (2-45)

> LIVER-AST 34 (3-45)

> LIVER-ALT 46 (3-50)

>

> 2/21/03

> TSH <0.01 (0.35-5.50)

> THYROXINE, FREE DIRECT 2.88 (0.75-2.00)

> TSI 111 (125 OR LESS)

> GGT 89 (2-45)

> LIVER-AST 38 (3-45)

> LIVER-ALT 52 (3-50)

> SEDIMENTATION RATE 15 (0-20)

>

>

> 2/5/03

> ANTITHYROID ANTIBODIES

> THYROID PEROXIDASE AB (TPO) <10.0 (<35)

> ANTITHYROGLOBULIN ABS <20.0 (<41)

>

>

> 1/28/03

> TSH <0.01 (0.35-5.50)

> T3 UPTAKE 40 (23-36)

> THYROXINE, FREE DIRECT 3.83 (0.75-2.00)

> WBC 4.9 (4.1-11.3)

> SEDIMENTATION RATE (ESR) 34 (0-20)

> GGT 149 (2-45)

> LIVER-AST 50 (3-45)

> LIVER-ALT 91 (3-50)

>

>

> THYROID UPTAKE/SCAN RESULTS: 6-HR RADIOIODINE UPTAKE 33% (NORMAL 5-

> 25%); 24 HR VALUE IS 50% (NORMAL 10-35%)

> MULTIVIEW IMAGING SHOWS THYROID GLAND TO BE SLIGHTLY GENEROUS IN SIZE.

> MODERATE THYROID HYPERFUNCTION DUE TO DIFFUSE TOXIC GOITER OF GRAVES.

>

> By the way, could anyone help me with using the lab trackers form you

> have in the files here?? I just don't know how to make the

> information into graphs after inserting the info in each cell.

>

> Thanks!

> Chris

>

>

>

>

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list do not have the endorsement of

> the listowner. I have no input as to what ads are attached to emails.

> ------------------------------------------------------------------------------

> --------

>

>

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Guest guest

Actually, Terry, the only symptoms I'm aware of are shakiness at this

point. I'm taking atenolol and that has resolved the racing heart.

You're right about my doc insisting on RAI. My primary care doctor

also agrees. I think I talked with you about this before. . I

can't get another doctor because my insurance won't cover any unless

I'm referred by the primary. Unless, the herbal remedies make a

difference within the next coupla months, I most likely will have to

submit to RAI as they give me no other choice. I don't want to

continue to get worse.

Chris

> Hi-

>

> Your lab results (at least the ones I understand) show worsening

GD. If you

> have a doc wedded to the idea of getting you so sick you will beg

him for

> RAI, you might want to consider a change of doctor. You must have

pretty bad

> hyper symptoms, with these numbers!

>

> Terry

>

> > From: " chaceeagle " <chaceeagle@y...>

> > Reply-To: graves_support

> > Date: Tue, 10 Jun 2003 03:52:39 -0000

> > To: graves_support

> > Subject: lab results

> >

> > Hi all,

> > I'm posting my most recent lab results along with all the previous

> > ones and would appreciate any opinions as to where I'm at with

this

> > disease, how severe is it at this point (according to the numbers

in

> > my blood work), etc. To refresh you on my situation, I was

diagnosed

> > this past Feb 03; I'm not on any ATDs as my doctor wouldn't

prescribe

> > them (prefers RAI of course). I am on Atenolol 25mg. I'm also

> > taking the tinctures bugleweed/motherwort/lemonbalm. So here they

> > are with most recent on top:

> >

> > 5/22/03

> > TSH <0.01 (0.35-5.50)

> > THYROXINE, FREE DIRECT 4.29 (0.75-2.00)

> > GGT 78 (2-45)

> > LIVER-AST 35 (3-45)

> > LIVER-ALT 48 (3-50)

> > TSI 143 (125 OR LESS)

> > ANTITHYROID ANTIBODIES

> > THYROID PEROXIDASE AB 13.7 (<35)

> > ANTI-THYROGLOBULIN ABS <20.0 (<41)

> >

> >

> > 3/25/03

> > TSH <0.01 (0.35-5.50)

> > THYROXINE, FREE DIRECT 3.22 (0.75-2.00)

> > WBC 4.2 (4.1-11.3)

> > GGT 116 (2-45)

> > LIVER-AST 34 (3-45)

> > LIVER-ALT 46 (3-50)

> >

> > 2/21/03

> > TSH <0.01 (0.35-5.50)

> > THYROXINE, FREE DIRECT 2.88 (0.75-2.00)

> > TSI 111 (125 OR LESS)

> > GGT 89 (2-45)

> > LIVER-AST 38 (3-45)

> > LIVER-ALT 52 (3-50)

> > SEDIMENTATION RATE 15 (0-20)

> >

> >

> > 2/5/03

> > ANTITHYROID ANTIBODIES

> > THYROID PEROXIDASE AB (TPO) <10.0 (<35)

> > ANTITHYROGLOBULIN ABS <20.0 (<41)

> >

> >

> > 1/28/03

> > TSH <0.01 (0.35-5.50)

> > T3 UPTAKE 40 (23-36)

> > THYROXINE, FREE DIRECT 3.83 (0.75-2.00)

> > WBC 4.9 (4.1-11.3)

> > SEDIMENTATION RATE (ESR) 34 (0-20)

> > GGT 149 (2-45)

> > LIVER-AST 50 (3-45)

> > LIVER-ALT 91 (3-50)

> >

> >

> > THYROID UPTAKE/SCAN RESULTS: 6-HR RADIOIODINE UPTAKE 33% (NORMAL

5-

> > 25%); 24 HR VALUE IS 50% (NORMAL 10-35%)

> > MULTIVIEW IMAGING SHOWS THYROID GLAND TO BE SLIGHTLY GENEROUS IN

SIZE.

> > MODERATE THYROID HYPERFUNCTION DUE TO DIFFUSE TOXIC GOITER OF

GRAVES.

> >

> > By the way, could anyone help me with using the lab trackers form

you

> > have in the files here?? I just don't know how to make the

> > information into graphs after inserting the info in each cell.

> >

> > Thanks!

> > Chris

> >

> >

> >

> >

> >

> >

> >

> > -------------------------------------

> > The Graves' list is intended for informational purposes only and

is not

> > intended to replace expert medical care.

> > Please consult your doctor before changing or trying new

treatments.

> > ----------------------------------------

> > DISCLAIMER

> >

> > Advertisments placed on this yahoo groups list do not have the

endorsement of

> > the listowner. I have no input as to what ads are attached to

emails.

> > ------------------------------------------------------------------

------------

> > --------

> >

> >

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Guest guest

That is totally ridiculous. Yes, you will get worse. The liver numbers show

the normal affects of Graves' and ATDs fix this.

If you are taking over the counter herbs they do NOT work. Perscription

herbs do work while Graves' is mild.

You are not asking for anything odd or wrong. You are more educated than the

doctors you are seeing in regards to Graves', by the sound of your posts.

All you need to do now is figure out how to work the system you are

temporarily caught in.

Think about it. If these doctors do not understand THIS, then they will NOT

be able to manage proper testing and replacement thyroid hormones after they

kill your thyroid.

You are going to have to find a way to a new doctor THEN or NOW. You can do

this WITH a thyroid or without one.

-Pam L -

3 1/2 years Graves', TED, and PTU. Remission due to SLOW reduction of PTU

(despite an incompetent endo ! ), improved lifestyle, excellent nutrition,

herbs, and looking at the big picture.

Pills alone only help the symptoms. We must help our bodies to heal.

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Guest guest

Hi Pam L is right about the difference between prescription herbs and

over the counter herbs - you need to at the very least get in to see a real

ND who can prescribe the right strength of herbs for you.

Now Pam says that the herbs only work if Graves is mild and I'm proof that

it works even if your Graves is pretty severe - but herbs DO take time to

work - they took several months to get my numbers down. I had lost almost 30

pounds and was very weak and had to take 60-80 mg of propranolol a day to

have a somewhat decent resting heartbeat. I also took L-Carnatine which

blocks the use of thyroid hormone at the cell level and that brought relief

to all of my symptoms but my bloodwork still looked horrible because the

hormone was still there, just had no way to get used up.

Your labs are showing a progressive worsening, and I do think you need to do

something, even though you say you don't have many symptoms.... Like fire

your primary and start over, or go see an ND or someone that does some

energy work - acupuncture, NMT, homeopathy, something. You don't want to do

permanent damage and the longer you live with this the longer it's going to

take to heal.

It's your body and YOU are in charge of it, not your doctor and not your

insurance company. Unfortunately this is something a lot of us have to fight

for and it's no fun, but it has to be done because it's your health you are

talking about - and not something to mess around with. And, oh this is

making me mad for you - don't let them force you into RAI when you have

hardly any symptoms to start with!!! Fire all your docs and start searching

for one that will work with you and get healthy again!

Pam B.

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Guest guest

I am really between a rock and a hard place with this right now. The

only time I can change my Primary doc is during our open enrollment

in October. Also can't go to the other types of docs you mentioned

because my insurance won't cover it. I HAVE to do everything thru my

health insurance because I'm just not in a financial position to do

otherwise. That's why I'm trying the herbs that I order through the

internet. I started them in March-how long do you think it takes

before making some difference? I think I will try the l-carnatine

that you mentioned. Do you think that it would be helpful?

Thanks,

Chris

>

> Hi Pam L is right about the difference between prescription

herbs and

> over the counter herbs - you need to at the very least get in to

see a real

> ND who can prescribe the right strength of herbs for you.

>

> Now Pam says that the herbs only work if Graves is mild and I'm

proof that

> it works even if your Graves is pretty severe - but herbs DO take

time to

> work - they took several months to get my numbers down. I had lost

almost 30

> pounds and was very weak and had to take 60-80 mg of propranolol a

day to

> have a somewhat decent resting heartbeat. I also took L-Carnatine

which

> blocks the use of thyroid hormone at the cell level and that

brought relief

> to all of my symptoms but my bloodwork still looked horrible

because the

> hormone was still there, just had no way to get used up.

>

> Your labs are showing a progressive worsening, and I do think you

need to do

> something, even though you say you don't have many symptoms....

Like fire

> your primary and start over, or go see an ND or someone that does

some

> energy work - acupuncture, NMT, homeopathy, something. You don't

want to do

> permanent damage and the longer you live with this the longer it's

going to

> take to heal.

>

> It's your body and YOU are in charge of it, not your doctor and not

your

> insurance company. Unfortunately this is something a lot of us have

to fight

> for and it's no fun, but it has to be done because it's your health

you are

> talking about - and not something to mess around with. And, oh

this is

> making me mad for you - don't let them force you into RAI when you

have

> hardly any symptoms to start with!!! Fire all your docs and start

searching

> for one that will work with you and get healthy again!

>

> Pam B.

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Guest guest

You are between a rock and hard place - but have you tried calling the

insurance company and explained to them what is going on? That you know

there are 3 treatment options but your doctors are only offering one and

this is serious stuff and you NEED a new doctor ASAP? Can't they make an

exception? Do they have an allowance for second opinions? Everyone should

have the right to a second opinion, even if their primary won't give them a

referral to one. Can you get a family member to talk your primary into a

second referral if it's just too stressful for you to do yourself? There has

to be a way to get a new endo, short of your current one retiring or

something.

It took about 2-3 months for the herbs to start lowering my levels and a

total of about 6 months to get them into normal range. I think the

L-Carnatine is a great band-aid - it will help with symptoms but will not do

anything to heal the real problem - but it will let you feel better while

the herbs are taking their time to work. The problem for me was once the

herbs finally kicked in I was on a really large dose of the L-Carnatine and

it made me hypo (not because I didn't have enough hormone, but because my

body wasn't using it) so you will have to watch out for that. The other

problem is that unless your doctor realizes what L-Carnatine is doing, he is

going to see your T3 go up and up, because it will start sitting in your

blood with no where to go - your cells will be blocking it's use.... so your

doc may all of a sudden insist on something drastic if your blood count

rises, even if you are feeling pretty good. Does that make sense?

Here is the link to the L-Carnatine I was using:

http://www.iherb.com/lcarni500.html

and here is a link that explains what it is and what it's used for:

http://www.healthandage

com/html/res/com/ConsSupplements/CarnitineLCarnitinecs.html

Some questions for you: Where are you getting the herbs from and how much of

them are you taking? Are you taking them 3 times a day, evenly spaced out?

And have you made major changes to your diet like eliminating coffee and

soda and iodine? Are you doing any stress reduction exercises like

meditation or yoga?

Pam B.

-- Re: lab results

I am really between a rock and a hard place with this right now. The

only time I can change my Primary doc is during our open enrollment

in October. Also can't go to the other types of docs you mentioned

because my insurance won't cover it. I HAVE to do everything thru my

health insurance because I'm just not in a financial position to do

otherwise. That's why I'm trying the herbs that I order through the

internet. I started them in March-how long do you think it takes

before making some difference? I think I will try the l-carnatine

that you mentioned. Do you think that it would be helpful?

Thanks,

Chris

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Pam,

I will have to check with my insurance company on the questions you

propose. That is, when I can get myself calm enough to speak with

them rationally. I already had a run-in with them over WHEN I'm

ALLOWED (by their standards) to get refills on the Atenolol. They

only allow refills when there's only 7 days left before I run out. I

nearly went thru the roof when speaking with them by phone about that

one! I personally don't see what right they have to determine that-

if a doctor writes a perscription with refills, it shouldn't matter

WHEN they're refilled, in my opinion, but that's not how they see it.

Unfortunately I don't have anyone close by that can make the phone

call for me.

I get my herbs online at HerbalAdvisor and I-Herb. They are

tinctures and yes, I do take them 3 times a day, at a dosage of 30-40

drops per the instruction on the bottle. Not exactly evenly spaced--

I take a dose in the morning before work, in the afternoon when I get

home from work, and at night before I go to bed. I have not

eliminated coffee or sodas from my diet (didn't know that had an

effect!), but I try to eat healthy. Although, I do have a horrible

weakness for sweets, but even there I try to eat fruit or no sugar

added ice creams or juice bars. I do yoga occassionally, and I

exercise a lot, which I feel does help with my stress. I have to

admit though, my stress level and anxiety seems difficult to

decrease, let alone get under control, but I try.

Thanks for those websites, I'll check them out.

Chris

> You are between a rock and hard place - but have you tried calling

the

> insurance company and explained to them what is going on? That you

know

> there are 3 treatment options but your doctors are only offering

one and

> this is serious stuff and you NEED a new doctor ASAP? Can't they

make an

> exception? Do they have an allowance for second opinions? Everyone

should

> have the right to a second opinion, even if their primary won't

give them a

> referral to one. Can you get a family member to talk your primary

into a

> second referral if it's just too stressful for you to do yourself?

There has

> to be a way to get a new endo, short of your current one retiring or

> something.

>

> It took about 2-3 months for the herbs to start lowering my levels

and a

> total of about 6 months to get them into normal range. I think the

> L-Carnatine is a great band-aid - it will help with symptoms but

will not do

> anything to heal the real problem - but it will let you feel better

while

> the herbs are taking their time to work. The problem for me was

once the

> herbs finally kicked in I was on a really large dose of the L-

Carnatine and

> it made me hypo (not because I didn't have enough hormone, but

because my

> body wasn't using it) so you will have to watch out for that. The

other

> problem is that unless your doctor realizes what L-Carnatine is

doing, he is

> going to see your T3 go up and up, because it will start sitting in

your

> blood with no where to go - your cells will be blocking it's

use.... so your

> doc may all of a sudden insist on something drastic if your blood

count

> rises, even if you are feeling pretty good. Does that make sense?

>

> Here is the link to the L-Carnatine I was using:

> http://www.iherb.com/lcarni500.html

>

> and here is a link that explains what it is and what it's used for:

> http://www.healthandage

> com/html/res/com/ConsSupplements/CarnitineLCarnitinecs.html

>

> Some questions for you: Where are you getting the herbs from and

how much of

> them are you taking? Are you taking them 3 times a day, evenly

spaced out?

> And have you made major changes to your diet like eliminating

coffee and

> soda and iodine? Are you doing any stress reduction exercises like

> meditation or yoga?

>

> Pam B.

>

> -- Re: lab results

>

> I am really between a rock and a hard place with this right now.

The

> only time I can change my Primary doc is during our open enrollment

> in October. Also can't go to the other types of docs you mentioned

> because my insurance won't cover it. I HAVE to do everything thru

my

> health insurance because I'm just not in a financial position to do

> otherwise. That's why I'm trying the herbs that I order through the

> internet. I started them in March-how long do you think it takes

> before making some difference? I think I will try the l-carnatine

> that you mentioned. Do you think that it would be helpful?

> Thanks,

> Chris

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