Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 To My dear Family: I want to wish everyone out there a very happy and healthy new year. Skinny or heavy, short or tall, we just need to keep ourself focused on being happy within ourself. I know i'am and I don't remember when I was this happy looking in the mirror. I have alot more to go bur I know I'am on the right road. God Bless you all and be safe. C Lap RNY 10/1/03 300/250/150???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 To My dear Family: I want to wish everyone out there a very happy and healthy new year. Skinny or heavy, short or tall, we just need to keep ourself focused on being happy within ourself. I know i'am and I don't remember when I was this happy looking in the mirror. I have alot more to go bur I know I'am on the right road. God Bless you all and be safe. C Lap RNY 10/1/03 300/250/150???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 Tracie, Thank you for the information. It makes sense I couldn't find any info if there isn't any. I am no longer on antihistimines or cough syrup. I have been on Prednilosone all along (currently 3 drops right eye and one left, Azopt for glocoma. I have asked about the restasis just this week and Dr Hodges says my dry eye is too bad for it. He did a 5 minute test, can't remember the name of it, and my eyes are producing almost no tears. This is so frustrating not to get results I got when I first started Remicade. I to have noticed that at about 3 weeks everything gets worse, but mostly I have trouble with the eye swelling. I have resolved that my brain and joints might not work but this is hard to overlook. Is the Enbrel or Humira in addition to the Remicade or in place of it? And Methotrexate? Take care and good luck with your increased dosage. It is a fine line we walk...God Bless Ruth > > Ruth, > > There is absolutely nothing in print on Remicade for eye health issues. > > With the pneumonia, did you end up on antihistimines and are you still using > them even maybe in a cough syrup? The reason I ask is that antihistimines > will dry up your eyes even more. > > I would suggest you talk with the Ophthalmologist about Pred Forte Drops to > get the inflammation down in your eyes and the lacrimal glands that line the > inside eye lids (they are part of the conjuctival structure.) This will help > with the dry eyes. > The other eye drop that is excellant with dry eyes from inflammatory disease > is Restasis. It too is a prescription. > > I haven't heard from Kim-- but hope to soon. > > I've been getting the Remicade each 28 days, and for 23-24 days, I do pretty > well. This week, where I'm at day 26-my mental confusion and neuropathy pain > is back-- so, my Rheumi and and I decided to increase the strength to > 7mg/kg--- instead of getting the infusions closer together. This week will be the > first with the new strength, so will see how it goes. > > If the Remicade continues to feel like it's not helping you, then you may > want to have them give you Enbrel or Humira. all 3 of these are the Biologicals > or BRM's. (Biological Response Modifiers.) They all act on suppressing the > TNF A and B cells, and this is what we seem to need to decrease the > inflammation. > > Have your MD's talk with Dr. Sharma and they can get more info on how to work > with the Remicade. The Foundation for Sarcoidosis Research is Dr. Sharma and > Dr. Baughman's Foundation for this disease. > > Do take care, > Tracie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 Hi Ruth, Just to let you know, Tracie is away for a little wedding anniversary vacation so it may be a day or two before she gets back to you. I'm not sure if anyone else has had any experience with iritis? Let's hope Tracie gets back rested and recooperated. Debbie T.Co-Moderatorolehomepla wrote: Hi Everyone...Happy NEW Year to everyone...I hope it has been a good year so far for you.I don't read or post because my computer does not co-operate often. Since having pneumonia in Nov and having to go 9 weeks without Remicade I am not responding as well to it now. My memory is very bad; my right eye still had inflamaion and I am producing almost no tears and I look like ...will like H***. Rheumatolist says my knees are shot and the plantar faschtis has returned so I am hobbling along, but Hey I am hobbling along...Tracie I noticed on one of the post I did get that your Remicade dose is 7mg/kg. I am hoping to go up to 5mg/kg this month and dc the pred. I'd rather have the sympotoms that the side effect..even though I only take 5 mg of pred. I am taking the Remicade mostly for my eye problems yet I can't get it back under control. I use pred drops and drops for the glacoma as well as artifical tears and jell at night but thing just are not getting better. I have tried to look for doseage of Remicade for Iritis to take to my dr to back up my asking for the increase but haven't found anything. I know you are busy but do you have any suggestion? My Rheumatologis says I can continue on the treatment every 28 days bcause it is all expermental.Has anyone else had the ongoing iritis? Has anyone heard from Kim? I haven't heard from her in several weeks. Does anyone know if she is in Ohio yet?I pray for you all everyday...HugsRuth>> ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH CHATS: WEDNESDAY 9PM EST. 8PM CENTRAL. 6PM PST SUNDAY 12 MIDNIGHT EST. 11PM CENTRAL. 9PM PST OPEN CHATS: THURSDAY 9PM EST. 8PM CENTRAL. 6PM PST SUNDAY 4PM EST. 3PM CENTRAL. 1PM PSTCHATROOM LINK: http://www.emxpc.net/chat/index.php Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 OOPS I am sorry , I guess she's already back.. Sorry for that one Ruth. I am glad she helped you! Debbieolehomepla wrote: Tracie,Thank you for the information. It makes sense I couldn't find any info if there isn't any. I am no longer on antihistimines or cough syrup. I have been on Prednilosone all along (currently 3 drops right eye and one left, Azopt for glocoma. I have asked about the restasis just this week and Dr Hodges says my dry eye is too bad for it. He did a 5 minute test, can't remember the name of it, and my eyes are producing almost no tears. This is so frustrating not to get results I got when I first started Remicade. I to have noticed that at about 3 weeks everything gets worse, but mostly I have trouble with the eye swelling. I have resolved that my brain and joints might not work but this is hard to overlook. Is the Enbrel or Humira in addition to the Remicade or in place of it? And Methotrexate? Take care and good luck with your increased dosage. It is a fine line we walk...God BlessRuth>> Ruth,> > There is absolutely nothing in print on Remicade for eye health issues.> > With the pneumonia, did you end up on antihistimines and are you still using > them even maybe in a cough syrup? The reason I ask is that antihistimines > will dry up your eyes even more. > > I would suggest you talk with the Ophthalmologist about Pred Forte Drops to > get the inflammation down in your eyes and the lacrimal glands that line the > inside eye lids (they are part of the conjuctival structure.) This will help > with the dry eyes. > The other eye drop that is excellant with dry eyes from inflammatory disease > is Restasis. It too is a prescription. > > I haven't heard from Kim-- but hope to soon.> > I've been getting the Remicade each 28 days, and for 23-24 days, I do pretty > well. This week, where I'm at day 26-my mental confusion and neuropathy pain > is back-- so, my Rheumi and and I decided to increase the strength to > 7mg/kg--- instead of getting the infusions closer together. This week will be the > first with the new strength, so will see how it goes. > > If the Remicade continues to feel like it's not helping you, then you may > want to have them give you Enbrel or Humira. all 3 of these are the Biologicals > or BRM's. (Biological Response Modifiers.) They all act on suppressing the > TNF A and B cells, and this is what we seem to need to decrease the > inflammation. > > Have your MD's talk with Dr. Sharma and they can get more info on how to work > with the Remicade. The Foundation for Sarcoidosis Research is Dr. Sharma and > Dr. Baughman's Foundation for this disease. > > Do take care,> Tracie>~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH CHATS: WEDNESDAY 9PM EST. 8PM CENTRAL. 6PM PST SUNDAY 12 MIDNIGHT EST. 11PM CENTRAL. 9PM PST OPEN CHATS: THURSDAY 9PM EST. 8PM CENTRAL. 6PM PST SUNDAY 4PM EST. 3PM CENTRAL. 1PM PSTCHATROOM LINK: http://www.emxpc.net/chat/index.php Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
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