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I was wondering if anyone is in the Michigan area. Hannah sees Dr

Carlson (Neuro) at U of M Ann Arbor,and Dr Sadjapour (MDA Clinic) but

they don't really tell me anything. They just say that she is doing

well for now and can't give me a more specific diagnosis or

prognosis. It gets so frustrating to drive 2 hours to hear that she

is doing well and come back in a year. I don't want to hear in a

couple of years that there was something that should have been done

but wasn't. She does take the carnitor and vitamins.

Another question that I had was that some of you talk about the

temper tantrums etc. that your kids have. I have an awful time with

the school system. Right now I am trying to go to mediation because

they eliminated some of her services so I signed her IEP as " disagree

and request mediation " The school sicked their lawyer on me and they

won't agree to mediation until I supply them with a detailed report

of the problems. Do any of you have some advice on how to get the

schools to cooperate and not hate your kid!!!

My third question is if anyone has had a child who matured early. I

haven't seen this listed as a symptom but I noticed that Hannah (age

7) is starting to get breasts already and it just seems way too

soon. Has anyone heard that this could be a side effect of the meds?

Sorry for the long post.

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