Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 Here ya go Judy.. The address to join is http://health.groups.yahoo.com/group/Neurosarcoidosis/ you can find us here.. Please rejoin we want to hear from you and how you're doing.. Thanks, -- cancel my membership completely ro try to fix yahoo's problem Maybe if you do that and remove me in every possible, I can rejoin as yahoo has not been any help.I have not received a daily digest in 4 or 5 months.Anyway I am very down, I feel so guilty that my son has sarcoidosis.His CT scan was a mess.Life is very difficult for me now. I am gpoing to a lymph edema specialist. My legs are wrapped in 5 layers of wraps and 1 way stretch aces with 1/2 in foam between the layers front and back both legs and thighs. Then I get to wear bicycle shorts to help hold up the dressings.On tuesday and thursdays I go in and she takes off all the wraps and gives me a lymphatic massage. Which is so light you'd think butterflies are doing it. Most of all I just feel miserable the NS is still flaring in my spine. Some mornings I wake up and am unable to get out of bed without bob's help.I think that I just feel like the living dead. To much pain everywhere.When I went to the doctor who is so great to me, as he was leaving the room he said he would pray for our family. He is a sweetheart.The pressure wraps on my legs are doing wonders. when we take them off I can'y believe these are my legs they have reduced in size by over 50%.Needless to say this feels great in our 02 degree weather with sweltering humidity.Anyway when I am removed in everyway possible please send me an emailso I can rejoin. Cuz when I go to my groups I am listed in any group.but When you look in your list I am still there to reveive a daily digest. Hopefully this will work.Judy in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 Judy, I have removed you from the list.. You are free to rejoin now and we hope that you do.. your name has also been removed from the database.. Hope this works.. -- cancel my membership completely ro try to fix yahoo's problem Maybe if you do that and remove me in every possible, I can rejoin as yahoo has not been any help.I have not received a daily digest in 4 or 5 months.Anyway I am very down, I feel so guilty that my son has sarcoidosis.His CT scan was a mess.Life is very difficult for me now. I am gpoing to a lymph edema specialist. My legs are wrapped in 5 layers of wraps and 1 way stretch aces with 1/2 in foam between the layers front and back both legs and thighs. Then I get to wear bicycle shorts to help hold up the dressings.On tuesday and thursdays I go in and she takes off all the wraps and gives me a lymphatic massage. Which is so light you'd think butterflies are doing it. Most of all I just feel miserable the NS is still flaring in my spine. Some mornings I wake up and am unable to get out of bed without bob's help.I think that I just feel like the living dead. To much pain everywhere.When I went to the doctor who is so great to me, as he was leaving the room he said he would pray for our family. He is a sweetheart.The pressure wraps on my legs are doing wonders. when we take them off I can'y believe these are my legs they have reduced in size by over 50%.Needless to say this feels great in our 02 degree weather with sweltering humidity.Anyway when I am removed in everyway possible please send me an emailso I can rejoin. Cuz when I go to my groups I am listed in any group.but When you look in your list I am still there to reveive a daily digest. Hopefully this will work.Judy in PA Quote Link to comment Share on other sites More sharing options...
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