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will the testing ever end?

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Hi Everyone! I haven't posted much but frequently check in. This

group is so helpful. When I read the postings here I no longer feel

alone. My neurologist is still not convinced I have NS but as he

says, " you're really leaning toward it " He says he doesn't think

it's NS because I don't have consistant fevers. He still wants to

test me for everything else under the sun. I had a LP on Friday.

That was the most horrible experience I think I have ever had. They

couldn't get a sample at first and had to go in 4 or 5 times before

my fluid would come out. It was so painful. They said I was the most

difficult one they have done in a long time and they do 3-4 a day

everyday. Leave it to me. I of course got the miserable spinal

headache and just today have slight relief. I went to the Hospital

Sunday and recieved fluids and pain meds for it. I wanted to cry

except my head hurt too bad. I also had a CTA today to check if I

have an aneurysm causing the double vision and headaches that I

developed out of the blue almost 3 weeks ago. Then after a hopefully

relaxing 4th I go in for a PET scan of my brain on the 5th. I have

been having problems with getting lost on my way home from town and

generally not knowing where I am going. That is a scary feeling. The

last round of testing I had (20+ tubes of blood drawn etc.) resulted

showing adrenal insufficiencies. The doc didn't explain this yet so

I will be going back over that to see what it means. My ace was

within normal. I sure hope we figure out what is going on soon. This

is really frustrating to be getting worse but not know why. I was

told one night by a doc in the ER that sometimes we are better off

not knowing what causes our pain. Unbelevable. I am one that wants

to know.

Jodi

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