Guest guest Posted July 3, 2007 Report Share Posted July 3, 2007 Hi Everyone! I haven't posted much but frequently check in. This group is so helpful. When I read the postings here I no longer feel alone. My neurologist is still not convinced I have NS but as he says, " you're really leaning toward it " He says he doesn't think it's NS because I don't have consistant fevers. He still wants to test me for everything else under the sun. I had a LP on Friday. That was the most horrible experience I think I have ever had. They couldn't get a sample at first and had to go in 4 or 5 times before my fluid would come out. It was so painful. They said I was the most difficult one they have done in a long time and they do 3-4 a day everyday. Leave it to me. I of course got the miserable spinal headache and just today have slight relief. I went to the Hospital Sunday and recieved fluids and pain meds for it. I wanted to cry except my head hurt too bad. I also had a CTA today to check if I have an aneurysm causing the double vision and headaches that I developed out of the blue almost 3 weeks ago. Then after a hopefully relaxing 4th I go in for a PET scan of my brain on the 5th. I have been having problems with getting lost on my way home from town and generally not knowing where I am going. That is a scary feeling. The last round of testing I had (20+ tubes of blood drawn etc.) resulted showing adrenal insufficiencies. The doc didn't explain this yet so I will be going back over that to see what it means. My ace was within normal. I sure hope we figure out what is going on soon. This is really frustrating to be getting worse but not know why. I was told one night by a doc in the ER that sometimes we are better off not knowing what causes our pain. Unbelevable. I am one that wants to know. Jodi Quote Link to comment Share on other sites More sharing options...
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