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Re: Fw: :(

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We start next wednesday. I'll make sure to let you all know how it

goes. Pray hard that he just loves it and thrives in that water! :)

I don't think it does go down from 12-14 does it? I could see it

going down to 8 only because that's bed time and how many hours a

child of 3-4 should at least be sleeping, but I would think, the 12

hours, before bedtime put them on, and when he wakes up take them off.

I keep in the bar shoes after dinner and then through to after

breakfast. He's not standing during most of that time anywyas.

Let me know what you find out.

> >

> > > Poor Everett, now that he walks so well his DBB is starting to bum

> him out

> > > during the wake hours he wears it. He gets up and tries to walk

> away.

> > > Can't. Falls over. Although last night he made it two steps

> before he

> > > crashed. Tries to get on his little riding toy. Can't cuz the bar

> won't let

> > > him straddle it. ... Other things..... I dunno, maybe this is

> harder on

> > > me to watch him WANT to but not be able to.

> > >

> > > Any ideas what is an average age Dr. P reduces the hours down from

> 14?

> > > Everett is 16 months old and we should see Dr. P next month if

> weather lets

> > > us travel.

> > > s.

> > >

> >

> >

> >

> >

> >

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I emailed Dr P a couple of months ago when Connor was 18 months with some

pictures of his feet and he said he was well corrected and it would be ok to

do 12 hours but I think I might just keep him in his normal 13ish hours

until he is 2. Just to be in the safe side. They go on about 7ish and come

off about 8ish am. I have to say he now can walk the room in his foot

brace!!! But it doesn't really bother him having them on. He has his

breakfast and then they come off. I think 12-14 is the norm until they are 4

or so anyway...........

Rach, Steve & Connor 21 months

-- Fw: :(

> Poor Everett, now that he walks so well his DBB is starting to bum him out

> during the wake hours he wears it. He gets up and tries to walk away.

> Can't. Falls over. Although last night he made it two steps before he

> crashed. Tries to get on his little riding toy. Can't cuz the bar won't

let

> him straddle it. ... Other things..... I dunno, maybe this is harder on

> me to watch him WANT to but not be able to.

>

> Any ideas what is an average age Dr. P reduces the hours down from 14?

> Everett is 16 months old and we should see Dr. P next month if weather

lets

> us travel.

> s.

>

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Hey ee,

This what Dr. P wrote to us back in May when I e-mailed him regarding

Zoe's bar time.

Quote

May 28, 2004

We have observed that after three months of full time brace wear,

night and naptime for a total of 16-18 hours

are sufficient to prevent a relapse. Once the child is walking about

12-14 hours is adequate. I see no reason to have

the child wear the brace 23 hours a day until she is crawling.

Straight last shoes are usually more comfortable and

are adequate to maintain the correction. Reverse last shoes are not

necessary.

I.V. Ponseti, M.D.

Unquote

I asked him a few things, but you can see he said 12-14 hours when

they walk. Maybe you can drop him a note and see if you can reduce

it now.

Like you said, it is probably more upsetting to see.

Louisa

Rachael 6-27-99

Zoe 2-22-04 RCF FAB 16/7

>

> > Poor Everett, now that he walks so well his DBB is starting to

bum him out

> > during the wake hours he wears it. He gets up and tries to walk

away.

> > Can't. Falls over. Although last night he made it two steps

before he

> > crashed. Tries to get on his little riding toy. Can't cuz the

bar won't let

> > him straddle it. ... Other things..... I dunno, maybe this is

harder on

> > me to watch him WANT to but not be able to.

> >

> > Any ideas what is an average age Dr. P reduces the hours down

from 14?

> > Everett is 16 months old and we should see Dr. P next month if

weather lets

> > us travel.

> > s.

> >

>

>

>

>

>

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I'm not sure it goes down much either, just hoping I guess. He puts them on

from 7 pm to 9 am next morning - but he gets up about six, so that's three

hours of the morning he's crawling aroun in them getting mad about it. I've

become a lot more strict about it than I used to be, not sure why, but I am

sticking to the 14 hours even if it could be closer to 12 with no bad results.

I have to caution myself to not quit the race before we win it, don't take short

cuts with the DBB. Just because his feet are doing great is not a reason to

slack off - all the more reason to stick to it! There's been a lot of relaps

stories on here lately, it was a reality check for me.

s.

We start next wednesday. I'll make sure to let you all know how it

goes. Pray hard that he just loves it and thrives in that water! :)

I don't think it does go down from 12-14 does it? I could see it

going down to 8 only because that's bed time and how many hours a

child of 3-4 should at least be sleeping, but I would think, the 12

hours, before bedtime put them on, and when he wakes up take them off.

I keep in the bar shoes after dinner and then through to after

breakfast. He's not standing during most of that time anywyas.

Let me know what you find out.

> >

> > > Poor Everett, now that he walks so well his DBB is starting to bum

> him out

> > > during the wake hours he wears it. He gets up and tries to walk

> away.

> > > Can't. Falls over. Although last night he made it two steps

> before he

> > > crashed. Tries to get on his little riding toy. Can't cuz the bar

> won't let

> > > him straddle it. ... Other things..... I dunno, maybe this is

> harder on

> > > me to watch him WANT to but not be able to.

> > >

> > > Any ideas what is an average age Dr. P reduces the hours down from

> 14?

> > > Everett is 16 months old and we should see Dr. P next month if

> weather lets

> > > us travel.

> > > s.

> > >

> >

> >

> >

> >

> >

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OK, thanks for that

s.

Fw: :(

> Poor Everett, now that he walks so well his DBB is starting to bum him out

> during the wake hours he wears it. He gets up and tries to walk away.

> Can't. Falls over. Although last night he made it two steps before he

> crashed. Tries to get on his little riding toy. Can't cuz the bar won't

let

> him straddle it. ... Other things..... I dunno, maybe this is harder on

> me to watch him WANT to but not be able to.

>

> Any ideas what is an average age Dr. P reduces the hours down from 14?

> Everett is 16 months old and we should see Dr. P next month if weather

lets

> us travel.

> s.

>

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Dr Ponseti reduced our time to 10-12 hours a month ago. I sent him a

video of walking, etc because he still seemed to be quite

over-corrected / duck-footed. Dr P's opinion was that his feet should

have started to pull in more by this age. He told us to reduce the

angle to about 50 deg and reduce wear time to night only, 10-12 hours.

He also said that will wear them till he is 3, but I will certainly

check that out carefully with him when it gets to around that time to

make sure it's safe. will be two in 10 days time, we are

planning a big party!

and

24th Jan 2003, bilateral cf

www.clubfoot.co.za

Re: Fw: :(

OK, thanks for that

s.

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Poor baby, your right it must be such a heartache to see him struggle

to do something and not be able. Soon enough he'll be doing that and

more DDB free!

KK

>

> > Poor Everett, now that he walks so well his DBB is starting to

bum him out

> > during the wake hours he wears it. He gets up and tries to walk

away.

> > Can't. Falls over. Although last night he made it two steps

before he

> > crashed. Tries to get on his little riding toy. Can't cuz the

bar won't let

> > him straddle it. ... Other things..... I dunno, maybe this is

harder on

> > me to watch him WANT to but not be able to.

> >

> > Any ideas what is an average age Dr. P reduces the hours down

from 14?

> > Everett is 16 months old and we should see Dr. P next month if

weather lets

> > us travel.

> > s.

> >

>

>

>

>

>

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