Re: newly diagnosed PDD-NOS...

[Guest guest]

> (3years, 3 months) was diagnosed PDD-NOS on March >

> Questions: has anyone tried non-dairy creamers? Mine says 100%

milk free but I'm wondering if it caused a reaction?

>

> Carrot juice: we seemed to see a reaction to that the next

day...very stimmy, withdrawn, emotional. So we are also doing phenol

free! Anyone else see a reaction to that?

>

> IEP questions: we have our IEP on April 12th and the people are

coming to my home to meet this Friday. How should I prepare?

My intention is to try to get them to pay for a home-based program

and do private preschool in addition.

,

Welcome! It sounds like your little and my Brett (turned 3 on

Feb 3) are in the same boat. This is a great source of info; I can't

imagine trying to do the diet (and otherwise cope with an autistic

child) without this group!

Anyway, to answer your questions:

Non-dairy creamer probably has whey or some other " bad " stuff in it.

Read the ingredients carefully, and check out the gfcfdiet.com

website if you're unsure.

Can't help you about the carrot juice; Brett wouldn't touch it with a

10 foot pole!

We ALSO have our 2nd IEP meeting on the 12th of April! At our first

one, the only thing the school system had to offer us was one hour of

speech and a one-hour consultation from a special needs preschool

teacher. We are doing 26 (soon to be 38!) hours of ABA at home, and

have Brett in a regular preschool three mornings each week with a

private facilitator. At the advice of a good friend (who is a

special ed teacher), we attached an addendum to our IEP stating that

we were signing it as a SMALL part of Brett's total educational plan,

and that we thought the things we were doing on our own were helping

him much more than the 2hours of services they had planned. That

note ended up changing our original IEP into an " interim " IEP.

Anyway, that started things moving, and we had the county autism

specialist come to evaluate our home ABA program and to observe Brett

and his facilitator at school.

My advice on the home (and school?) visit is to be as straightforward

as possible about the positive effects of your program, and how it

has helped . I would also be sure that she is qualified for the

right level of services; in our district, kids can be

either " significantly developmentally delayed " or " autistic " and the

latter is entitled to many more services.

I could go on for days, but I need to get my older son to karate. If

you'd like to discuss the IEP issue further, email me at

sueswanson@.... I could even send you the addendum to our IEP

that seemed to open some doors.

Good luck!

Sue

[Guest guest]

I use a non-dairy creamer but it says caseinate right on the ingredients so

double check yours.

MA

[Guest guest]

> Questions: has anyone tried non-dairy creamers? Mine says 100% milk free

but I'm wondering if it caused a reaction? <

Rich's dairy free is suppose to be ok.

a

[Guest guest]

All I know is they both (corn syrup and hydrogenated oils) make go

crazy! For this reason we stay away from, store bought stuff ourselves. I

use Smuckers All Natural peanut butter as it contains no hydrogenated oils

and we avoid anything with corn syrup like the plague. Neither contain

gluten or casein so not every child has a problem with them, this is

something we found out quite a ways into the diet.

> From what I understand from Dr. Weil, partially hydrogenated oils

> and high fructose corn syrup are bad for you--unfortunately, manufacturers

> put these in everything at the regular grocery store. we completely avoid

> these.