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When my son first started the diet he was very out of control. I cried for 2

weeks praying that it was withdrawal. He was wild, aggressive, screaming,

and having nightmares. For us he definitely went through withdrawal but

after the initial 2 weeks the first thing we started to notice was the way he

was talking. He started to use expressive language and used it correctly.

That was the first clue that I knew it was going to help him. Good luck.

MA

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Hi everyone:

I'm new to the list and just starting to remove milk as of today. My

son Will, 3 has just been diagnosed with PDD/NOS.

I'd love to hear any stories of how your children reacted when taken

off milk. We will tackle the rest of the dairy products within a

couple of weeks and then onto gluten.

Any advice?

thanks - janowski, Medina, NY

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Hi -

Welcome to the list. This is the best place to be when doing this

diet. We have had great success with this diet and approached it like

you are, first took away milk, then all milk products then wheat and

then all things with gluten in it. It took awhile but it was less

overwhelming that way.

We are now 100% GFCF, but still have made mistakes. Most recent was

not carefully reading a label and therefore not noticing " natural

butter flavor " which would be BUTTER! Darn it. Oh well, the good

thing about our mistakes has been that it confirms that we are doing

the right thing. We always notice when Vico (our darling boy) is a

bit " off " kind of spacy and tantruming more and we start to look at

his food really closely, starting with whatever was the newest thing

we gave him and every single time we find that we have messed up and

allowed some hidden gluten or casien into his diet agian. So... we

know this diet is helping him.

Anyway - welcome to this list - if you haven't already done so read

Karyn Seroussi, Unravelling the Mystery of Autism and PDD and

, Special Diets for Special Kids (you can get both at

Amazon.com) These were vital for us when learning about the diet.

Visit the GFCFdiet.com web site and use their lists as your shopping

list. Document what your child eats and behavior so you can figure

out any other offending foods.

Good luck and welcome.

Moira

mom to Vico (4 ASD) and Culzean (11 months)

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, we slowly took Evan off milk and then the rest of dairy and the

slowly took away gluten. The only thing we noticed on reaction was that he

was a lot more stimming for a couple of weeks. Someone mentioned once that

it might be because their world is not so foggy and they are noticing more

things.

Betty

new to the diet

> Hi everyone:

> I'm new to the list and just starting to remove milk as of today. My

> son Will, 3 has just been diagnosed with PDD/NOS.

>

> I'd love to hear any stories of how your children reacted when taken

> off milk. We will tackle the rest of the dairy products within a

> couple of weeks and then onto gluten.

>

> Any advice?

>

> thanks - janowski, Medina, NY

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On Thu, 29 Mar 2001 18:13:05 -0000 juliem65@... writes:

> Hi everyone:

> I'm new to the list and just starting to remove milk as of today.

> Any advice?

>

> thanks - janowski, Medina, NY

*

Hi , ye s definetly get the book Special Diets for Special Kids by

. I must have read it over and over and then highlighted parts

about products and foods so I could find it more easily when I had to

look something up again. You're doing it the right way - gradually. My

son will be totally GFCF this April and is doing very well. He is 6

years old and DX with autism. However he reads and is doing very well

academically and verbally has really come so far in this past year. Is

it the diet? Well I feel so. I had him allergy teasted and avoid all

those food items, avoid all Gluten and casein, and also give LJ no

preservatives, artificial colors or artificial flavors. As far as

supplements it seems its a big thing with so many on this diet, but again

each child is individual and I feel my son doesn't need any. I only give

him a chewable multi vitamin, but I am sure many on thisa list can help

you if you have any supple. questions. I get alot of good recipes on

this list and I order many items from Miss Robens. You can call them at

1- and ask them to send you a catalog. Each item is coded to

let you knoe if it is GF, CF, soy free, corn free, etc. and orders come

in about 2 to 3 days. Well any questions just fire away as someone on

here will help you all the time.

Good luck to you and your little one

on Long Island, New York

*

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  • 4 weeks later...
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Hi - We actually did the gluten and dairy elimination at the same time.

However, our son's interaction with us began to improve after about 2 weeks.

The dietary changes have proven every effective for us and brought back

to the planet Earth!

And with so many different milks out there (we like potato milk the best),

you should be able to find one that suits your family just fine. We actually

don't drink any at all, we just use it for baking purposes. Took a few

months, but the rest of the family got used to no milk in the house and we

certainly don't miss it. Allergies for all of us are vastly improved and my

kids are NEVER SICK any more. Perfect attendance at school, much to their

disappointment!! Oh well. They will thank me later, I hope...

Felicia

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