Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Well Dr. Feldman has said I can take 's hours down to 12! He said that was pretty much standard. I am totally weary of that, and i think I will still go with 18. What do you think? I asked him what 's severity was, and he said he had very severe clubfeet. They are atypical as well. He said that if this had been 5 years ago, before he was doing the Ponseti method, would most definitely have needed surgery, probably around 3 months old. Thank God for Dr. Ponseti! However his feet are really beautiful now, and very supple. I am terrified of him relapsing. Dr. Feldman also mentioned that may possibly still need surgery around 3 years. He has said this before too, so I am really weary of too much time out of the DBB. Am I just being paranoid? I must say though, it is lovely to hold and cuddle him out of his brace. He is funny when he sits - has his legs straight out with his feet as far apart as the brace would be holding them! He has found his toes, and is sitting playing with them. Am I mistaken about the hours here? and 06/24/04 s ??/7 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 ummm... I think you know what I would say about that. I find it interesting that he's talking surgery at 3 yet only doing 12 hours after 23/7. ummm... I wonder if he'll be able to correlate the two someday? Like I say time and again, if you can... do the long hours while he's little because it's loads easier than doing it with a 3 year old. Exactly WHAT do they think they're saving us telling us 12hr/day before they're walking anyway? GRRRRR!!!!! Kori (and sure, apparently it IS standard now with all the docs re-inventing the wheel with this Method... so I guess he's right about that huh?) At 04:15 PM 1/27/2005, you wrote: >Well Dr. Feldman has said I can take 's hours down to 12! He said >that was pretty much standard. I am totally weary of that, and i think I >will still go with 18. What do you think? I asked him what 's >severity was, and he said he had very severe clubfeet. They are atypical >as well. He said that if this had been 5 years ago, before he was doing >the Ponseti method, would most definitely have needed surgery, >probably around 3 months old. Thank God for Dr. Ponseti! However his feet >are really beautiful now, and very supple. I am terrified of him >relapsing. Dr. Feldman also mentioned that may possibly still >need surgery around 3 years. He has said this before too, so I am really >weary of too much time out of the DBB. Am I just being paranoid? > >I must say though, it is lovely to hold and cuddle him out of his brace. >He is funny when he sits - has his legs straight out with his feet as far >apart as the brace would be holding them! He has found his toes, and is >sitting playing with them. > >Am I mistaken about the hours here? > > and 06/24/04 s ??/7 > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 ... It is standard to reduce to approx. 16 hours a day after the 23 hour period. Once started crawling, pulling up, and he is now almost walking... the doc reduced him to 12 hours. If is severe and atypical, the protocol might be different. Good luck. 2/9/04 DBB 12 hours Kearns linda07033@...> wrote: Well Dr. Feldman has said I can take 's hours down to 12! He said that was pretty much standard. I am totally weary of that, and i think I will still go with 18. What do you think? I asked him what 's severity was, and he said he had very severe clubfeet. They are atypical as well. He said that if this had been 5 years ago, before he was doing the Ponseti method, would most definitely have needed surgery, probably around 3 months old. Thank God for Dr. Ponseti! However his feet are really beautiful now, and very supple. I am terrified of him relapsing. Dr. Feldman also mentioned that may possibly still need surgery around 3 years. He has said this before too, so I am really weary of too much time out of the DBB. Am I just being paranoid? I must say though, it is lovely to hold and cuddle him out of his brace. He is funny when he sits - has his legs straight out with his feet as far apart as the brace would be holding them! He has found his toes, and is sitting playing with them. Am I mistaken about the hours here? and 06/24/04 s ??/7 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Um.....how long has your son been wearing the DBB prior to today's decrease? Is it going from 23 hours down to 12? That would definately concern me and I wouldn't go for it myself. s. Surprise!!!???? Well Dr. Feldman has said I can take 's hours down to 12! He said that was pretty much standard. I am totally weary of that, and i think I will still go with 18. What do you think? I asked him what 's severity was, and he said he had very severe clubfeet. They are atypical as well. He said that if this had been 5 years ago, before he was doing the Ponseti method, would most definitely have needed surgery, probably around 3 months old. Thank God for Dr. Ponseti! However his feet are really beautiful now, and very supple. I am terrified of him relapsing. Dr. Feldman also mentioned that may possibly still need surgery around 3 years. He has said this before too, so I am really weary of too much time out of the DBB. Am I just being paranoid? I must say though, it is lovely to hold and cuddle him out of his brace. He is funny when he sits - has his legs straight out with his feet as far apart as the brace would be holding them! He has found his toes, and is sitting playing with them. Am I mistaken about the hours here? and 06/24/04 s ??/7 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 Hi I too would be sceptical of the reduced hours, especially when you read about other babies wearing their DBB for much longer periods of time. I didn't find the group until Billy had been wearing his DBB 12/7 for a few months already. I'm not sure how bad Jonathon's feet were or how severe my son's CF were but we went from 23/7 to 12/7 after 3 months as well. Billy is now 9 months old and crawling with and without his DBB. He is even pulling himself up and trying to stand while he is crawling position. He has really only started bearing weight on his CF for the past month or so, before he was putting most weight on his good foot like the karate kid doing the crane thingy. BUT I can see for myself that 12 hours haven't done him any harm - I wouldn't want to leave them on for any longer if there isn't any greater benefit than the 12 hours. KWIM. But why surgery when he is 3? Anyway, as they say, go with your gut instinct. Sharon & Billy rcf DBB night time only. Kearns linda07033@...> wrote: Well Dr. Feldman has said I can take 's hours down to 12! He said that was pretty much standard. I am totally weary of that, and i think I will still go with 18. What do you think? I asked him what 's severity was, and he said he had very severe clubfeet. They are atypical as well. He said that if this had been 5 years ago, before he was doing the Ponseti method, would most definitely have needed surgery, probably around 3 months old. Thank God for Dr. Ponseti! However his feet are really beautiful now, and very supple. I am terrified of him relapsing. Dr. Feldman also mentioned that may possibly still need surgery around 3 years. He has said this before too, so I am really weary of too much time out of the DBB. Am I just being paranoid? I must say though, it is lovely to hold and cuddle him out of his brace. He is funny when he sits - has his legs straight out with his feet as far apart as the brace would be holding them! He has found his toes, and is sitting playing with them. Am I mistaken about the hours here? and 06/24/04 s ??/7 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 Why does he want to reduce hours if he is thinking could still need surgery in the future? Also, if his feet great and very supple what is making him think that? It seems a lot of docs are cutting hours more than we think they should. Even Dr. Dobbs told me that when we are done w/ 23/7 we could go down to 12-14. I asked him if he didn't want us to do 16-18 for a while and he joked " The more the merrier! " , he said we could certainly do more if I felt more comfortable but that he didn't think Sammy needed it. Sammy will only be six months then so I feel we will keep up the hours until he starts getting more into walking age. Jenna (4/7/01) & Sammy (9/25/04 unilateral right cf, Dobbs brace 23/7) > Well Dr. Feldman has said I can take 's hours down to 12! He said that was pretty much standard. I am totally weary of that, and i think I will still go with 18. What do you think? I asked him what 's severity was, and he said he had very severe clubfeet. They are atypical as well. He said that if this had been 5 years ago, before he was doing the Ponseti method, would most definitely have needed surgery, probably around 3 months old. Thank God for Dr. Ponseti! However his feet are really beautiful now, and very supple. I am terrified of him relapsing. Dr. Feldman also mentioned that may possibly still need surgery around 3 years. He has said this before too, so I am really weary of too much time out of the DBB. Am I just being paranoid? > > I must say though, it is lovely to hold and cuddle him out of his brace. He is funny when he sits - has his legs straight out with his feet as far apart as the brace would be holding them! He has found his toes, and is sitting playing with them. > > Am I mistaken about the hours here? > > and 06/24/04 s ??/7 > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 Two things - Dr Mosca also told us 12 hours, but more recently asked us what Ponseti told us to do ;-) lol Second, there is a small chance for EVERY cf child treated with Ponseti Method that they may have to have the ATTT done as a preschooler. Barring anything unusual about the foot/feet, each child has an equal chance of this when they leave the 23/7 period. In theory every doctor should be telling every patient it is possible Maybe someone can jump in here with the statistics. I know they are actually very low. Angel Re: Surprise!!!???? Why does he want to reduce hours if he is thinking could still need surgery in the future? Also, if his feet great and very supple what is making him think that? It seems a lot of docs are cutting hours more than we think they should. Even Dr. Dobbs told me that when we are done w/ 23/7 we could go down to 12-14. I asked him if he didn't want us to do 16-18 for a while and he joked " The more the merrier! " , he said we could certainly do more if I felt more comfortable but that he didn't think Sammy needed it. Sammy will only be six months then so I feel we will keep up the hours until he starts getting more into walking age. Jenna (4/7/01) & Sammy (9/25/04 unilateral right cf, Dobbs brace 23/7) > Well Dr. Feldman has said I can take 's hours down to 12! He said that was pretty much standard. I am totally weary of that, and i think I will still go with 18. What do you think? I asked him what 's severity was, and he said he had very severe clubfeet. They are atypical as well. He said that if this had been 5 years ago, before he was doing the Ponseti method, would most definitely have needed surgery, probably around 3 months old. Thank God for Dr. Ponseti! However his feet are really beautiful now, and very supple. I am terrified of him relapsing. Dr. Feldman also mentioned that may possibly still need surgery around 3 years. He has said this before too, so I am really weary of too much time out of the DBB. Am I just being paranoid? > > I must say though, it is lovely to hold and cuddle him out of his brace. He is funny when he sits - has his legs straight out with his feet as far apart as the brace would be holding them! He has found his toes, and is sitting playing with them. > > Am I mistaken about the hours here? > > and 06/24/04 s ??/7 > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 I am not familiar with this, does anyone have more info? I thought as long as you prevent relapse w/ bracing no further treatment would be required?? Thanks, > > Well Dr. Feldman has said I can take 's hours down to 12! He > said that was pretty much standard. I am totally weary of that, and i > think I will still go with 18. What do you think? I asked him what > 's severity was, and he said he had very severe clubfeet. They > are atypical as well. He said that if this had been 5 years ago, > before he was doing the Ponseti method, would most definitely > have needed surgery, probably around 3 months old. Thank God for Dr. > Ponseti! However his feet are really beautiful now, and very supple. I > am terrified of him relapsing. Dr. Feldman also mentioned that > may possibly still need surgery around 3 years. He has said > this before too, so I am really weary of too much time out of the DBB. > Am I just being paranoid? > > > > I must say though, it is lovely to hold and cuddle him out of his > brace. He is funny when he sits - has his legs straight out with his > feet as far apart as the brace would be holding them! He has found his > toes, and is sitting playing with them. > > > > Am I mistaken about the hours here? > > > > and 06/24/04 s ??/7 > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 Sorry it has taken a while to get back to this. In some children - and there is no way to predict which ones - there will continue to be an imballance of the muscles/tendons in the foot even after proper correction and bracing that can cause the foot to relapse late or that can cause it just to not sit right - usually sitting on the outside of the foot rather than flat I believe- that may require an ATTT. An ATTT is a transfer of a single tendon from the large toe to the third toe. This fully corrects the problem and nothing - including bracing - is needed afterwards. I really don't remember the statistics for ATTT, but it is a small number and that number is getting smaller all the time with the new bracing protocols calling for bracing into the 4th year, as well as the newer knowledge that sometimes casting alone will correct the problem even as late as 3 yrs. Your doctor was probably just trying to be open with you on the fact that there is never a 100% guarantee that *no* surgery will be needed. Here is an excerp from Dr Ponseti's web site regarding the ATTT: Relapses are common in severe clubfeet and are probably caused by the same pathology that initiated the deformity, but they may easily be corrected by manipulation and two to three plaster casts. When a second relapse occurs and the tibialis anterior muscle has a strong supinatory action, the tendon must be transferred to the third cuneiform. This transfer prevents further relapse and corrects the anteroposterior talcocalcaneal angle, thereby greatly reducing the need for tarsal release. I can say from my own experience that not even a second relapse requires the ATTT. It just depends on the foot and what is the cause of the relapse. And consider that this is referring to relapses the occur even though proper bracing was followed. Every case is different and you can never say for certain - until you are on the other side! - that bracing will be the end-all and do-all. I hope that helps some! Angel Re: Surprise!!!???? I am not familiar with this, does anyone have more info? I thought as long as you prevent relapse w/ bracing no further treatment would be required?? Thanks, > > Well Dr. Feldman has said I can take 's hours down to 12! He > said that was pretty much standard. I am totally weary of that, and i > think I will still go with 18. What do you think? I asked him what > 's severity was, and he said he had very severe clubfeet. They > are atypical as well. He said that if this had been 5 years ago, > before he was doing the Ponseti method, would most definitely > have needed surgery, probably around 3 months old. Thank God for Dr. > Ponseti! However his feet are really beautiful now, and very supple. I > am terrified of him relapsing. Dr. Feldman also mentioned that > may possibly still need surgery around 3 years. He has said > this before too, so I am really weary of too much time out of the DBB. > Am I just being paranoid? > > > > I must say though, it is lovely to hold and cuddle him out of his > brace. He is funny when he sits - has his legs straight out with his > feet as far apart as the brace would be holding them! He has found his > toes, and is sitting playing with them. > > > > Am I mistaken about the hours here? > > > > and 06/24/04 s ??/7 > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 Angel, Well explained. Yes, this helps. I have read this before, just not really absorbed the chances that even w/ proper bracing you can still have relapses that require the ATTT. Thanks again for the info. > > > Well Dr. Feldman has said I can take 's hours down to 12! He > > said that was pretty much standard. I am totally weary of that, and i > > think I will still go with 18. What do you think? I asked him what > > 's severity was, and he said he had very severe clubfeet. They > > are atypical as well. He said that if this had been 5 years ago, > > before he was doing the Ponseti method, would most definitely > > have needed surgery, probably around 3 months old. Thank God for Dr. > > Ponseti! However his feet are really beautiful now, and very supple. I > > am terrified of him relapsing. Dr. Feldman also mentioned that > > may possibly still need surgery around 3 years. He has said > > this before too, so I am really weary of too much time out of the DBB. > > Am I just being paranoid? > > > > > > I must say though, it is lovely to hold and cuddle him out of his > > brace. He is funny when he sits - has his legs straight out with his > > feet as far apart as the brace would be holding them! He has found his > > toes, and is sitting playing with them. > > > > > > Am I mistaken about the hours here? > > > > > > and 06/24/04 s ??/7 > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
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