Re: h pylori

November 1, 2001

I was diagnosed with H Pylori a couple of years ago through blood work not a

breath test. Have not heard of that. Checked for that because they

couldn't figure out what was wrong & why I couldn't get well. Now we know

it was the RP.

I was told that once you test positive for H Pylori it is always in your

system & you will always be positive. Sorry I can't be of more help.

Sue (aka Susiecue) which I will go by to help some of the confusion over all

the Sue's.

>

November 1, 2001

I was diagnosed with H Pylori a couple of years ago through blood work not a

breath test. Have not heard of that. Checked for that because they

couldn't figure out what was wrong & why I couldn't get well. Now we know

it was the RP.

I was told that once you test positive for H Pylori it is always in your

system & you will always be positive. Sorry I can't be of more help.

Sue (aka Susiecue) which I will go by to help some of the confusion over all

the Sue's.

>

July 5, 2005

Hi Dolores,

I was wondering if any of your doctors have suggested a muscle biopsy to

determine the type of Mito that you might have??

And do you know what labs they have done that are coming back and leaning

towards a Mito diagnosis??

It seems like your doctors are all together as a team and taking real good

care of you. I was wondering if they suggested sending you to an MDA Clinic ?

I do hope that your doctors get to the bottom of this for you and that you

don't have to start all over again.

Have a great night. God Bless You

Hugs,

Ann-Marie

At 08:09 PM 7/5/2005, you wrote:

>To:

>

>Subject: Re: h pylori

>

>Yes, even my pain medication has a tylenol base, so it's heck if you do

>and heck if you don't! Dr. Feagan told me that so many of the gastro

>problems are all related to Mito and it seems that all of my labs are

>coming back leaning toward a definite Mito diagnosis. So far I have my

>neurosurgeon, my orthopaedic doctor, my neurologist, my

>hematologist/genetics doctor and now Dr. Feagan my gastro all are very

>adamant that I do have Mito. Oh well, time will tell and if I could find

>a way to get to KU a lot of things would be definite one way or the other

>and if it's NO then I have to start all over again! I'm not really

>looking forward to that process all over again. Thanks, Dolores

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July 5, 2005

so is there any kind of common over the counter med i can take for my

muscle pain or should i just check out MSM and see if it works?

btw, what are IMHO and YMMV short for?

thanks for the info,

kent

> Ibuprofen is related to aspirin - the newer anti-inflammatory

drugs,

> like Vioxx etc., have less of an effect on the GI tract, they are

COX-

> 2 inhibitors (selective such that they don't attack the stomach as

> much). Your doctor can tell you which ones are still on the market

> and might be appropriate. I've also found that smaller doses of

> Tylenol and ibuprofen work well for me - children's doses. I use

> either VERY intermittently, and ibuprofen only if I have a fever

> (unfortunately I've had a low-grade fever lately, of unknown

origin).

>

> All of these issues with anti-inflammatory and analgesic drugs is

why

> I started taking methyl sulfonyl methane for my arthritis. Don't

> think it'll help headaches though, I use Breathe Right strips to

> minimize headaches (helps keep air flow in sinuses, killing those

> bugs who love it warm, IMHO, I'm not a medical doctor). The

amazing

> thing that I've found with the Breathe Right strips is that they

work

> pretty quickly in terms of reducing pain, YMMV...

>

> Take care,

> RH

>

July 5, 2005

Hey, I get lost too!!! Never used to but I do now. The older I get the

harder it is for me to follow directions.

I hope they find out why your skinned boo-boo's aren't healing. Are they

itchy? It almost sounds like it might be psoriasis, but that doesn't result

from a cut or scrape. It sounds like it hurts and is uncomfortable.

The needle biopsy might be a good idea for you. Maybe you can have a family

member or good friend go with you to KU if your doctors feel it is

necessary for you to go to one of the clinics for a biopsy or other tests.

You said " it is hard to say where you would end up on your own " , but just

think all the FUN and new people you meet on your way!!! :-)

Hang in there!!! It will get better

Hugs,

Ann-Marie

At 12:45 AM 7/6/2005, you wrote:

>They all keep suggesting that I go to KU as there are several clinics that

>had been suggested to me and also the possibility of a muscle biopsy, but

>they said it would have to be a needle biopsy as I don't heal? I have a

>place on my right chin that I skinned Noember 17th and it still hasn't

>healed, it is not seeping at this time but that doesn't mean that where

>there are still raw places that it won't just break open and start all

>over again? I originally jusy barely skinned my chin, now it is almost

>the size of a quarter, when I mention it to my PCP, she says it won't kill

>me and we will get to that the next time I come in, but we never do? The

>same with this place on my rght arm that Dr. Feagan sent off somewhere for

>some reason as it stays raw and seeping a good deal of the time? I have

>always had a problem with things not healing but never before this long a

>period of time. I don't have a way to get to KU and I wouldn't have any

>idea how to get to where I would/should be as

>I can get lost at Stormont in Topeka. I guess I'll just have to play a

>wait and see game for awhile longer. I see Dr. Welch again in August and

>I'll see what he has in mind. I know my husband and I were both lost at

>Research in 1996 when I had to have my Gamma-Knife for my brain

>tumors. It's hard to say shere I would end up on my own? Dolores

>

>Ann-Marie Mc

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July 6, 2005

Kent

I take Anaprox (NSAID) for my joint pain which helps somewhat for

muscle pain. I also take Lamictal and a muscle relaxant which helps

more. (these are scripsts). The thing that helps the most is to adapt

how I do things. I sit to cook, clean, do laundray, wash dishes, etc.

I do still walk from place to place in the house. Standing causes me

more muscle pain and cramping than walking, but I still can't walk

far.

I hope you find something that works for you.

laurie

> so is there any kind of common over the counter med i can take for my

> muscle pain or should i just check out MSM and see if it works?

>

> btw, what are IMHO and YMMV short for?

>

> thanks for the info,

> kent

>

> > Ibuprofen is related to aspirin - the newer anti-inflammatory

> drugs,

> > like Vioxx etc., have less of an effect on the GI tract, they are

> COX-

> > 2 inhibitors (selective such that they don't attack the stomach as

> > much). Your doctor can tell you which ones are still on the market

> > and might be appropriate. I've also found that smaller doses of

> > Tylenol and ibuprofen work well for me - children's doses. I use

> > either VERY intermittently, and ibuprofen only if I have a fever

> > (unfortunately I've had a low-grade fever lately, of unknown

> origin).

> >

> > All of these issues with anti-inflammatory and analgesic drugs is

> why

> > I started taking methyl sulfonyl methane for my arthritis. Don't

> > think it'll help headaches though, I use Breathe Right strips to

> > minimize headaches (helps keep air flow in sinuses, killing those

> > bugs who love it warm, IMHO, I'm not a medical doctor). The

> amazing

> > thing that I've found with the Breathe Right strips is that they

> work

> > pretty quickly in terms of reducing pain, YMMV...

> >

> > Take care,

> > RH

> >

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

July 6, 2005

Hi Laurie,

How do you " sit to clean " ? With Lupus (s/p stress fracture of the femur), I'm

constantly struggling to keep up things at home. I have figured out how to sit

and cook (at least to some extent) and do laundry, dishes, etc. But, cleaning

remains a challenge.

Laurie Fitzgerald laurie.fitzgerald@...> wrote:

Kent

I take Anaprox (NSAID) for my joint pain which helps somewhat for

muscle pain. I also take Lamictal and a muscle relaxant which helps

more. (these are scripsts). The thing that helps the most is to adapt

how I do things. I sit to cook, clean, do laundray, wash dishes, etc.

I do still walk from place to place in the house. Standing causes me

more muscle pain and cramping than walking, but I still can't walk

far.

I hope you find something that works for you.

laurie

> so is there any kind of common over the counter med i can take for my

> muscle pain or should i just check out MSM and see if it works?

>

> btw, what are IMHO and YMMV short for?

>

> thanks for the info,

> kent

>

> > Ibuprofen is related to aspirin - the newer anti-inflammatory

> drugs,

> > like Vioxx etc., have less of an effect on the GI tract, they are

> COX-

> > 2 inhibitors (selective such that they don't attack the stomach as

> > much). Your doctor can tell you which ones are still on the market

> > and might be appropriate. I've also found that smaller doses of

> > Tylenol and ibuprofen work well for me - children's doses. I use

> > either VERY intermittently, and ibuprofen only if I have a fever

> > (unfortunately I've had a low-grade fever lately, of unknown

> origin).

> >

> > All of these issues with anti-inflammatory and analgesic drugs is

> why

> > I started taking methyl sulfonyl methane for my arthritis. Don't

> > think it'll help headaches though, I use Breathe Right strips to

> > minimize headaches (helps keep air flow in sinuses, killing those

> > bugs who love it warm, IMHO, I'm not a medical doctor). The

> amazing

> > thing that I've found with the Breathe Right strips is that they

> work

> > pretty quickly in terms of reducing pain, YMMV...

> >

> > Take care,

> > RH

> >

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

July 6, 2005

I try to go short distances with just Mother's cane that I use, I still have her

walker under the bed in case I have to go back to it again. I find my biggest

aid is my " computer chair " , it's good for my legs to push myself around in the

computer chair when I am having too many problems bouncing off the walls (ha).

I have to be extra careful if I try to water my plants (on the plant stands or

sitting on the porch in front of the plant stands) as it is very easy for me to

get overbalanced. I have fallen a couple of times when my ferns weren't all

hanging in one spot near the porch post and fortunately only hurt my dignity.

One night when they were forecasting 60 to 70 mph winds, my son called to see if

I was listening to the weather so I asked him if he thought perhaps I should try

to take my ferns down and he virtually lost it, he said that all I was going to

accomplish was landing on my fanny with a 30 lb fern sitting on my lap in the

wind, rain and hail so to leave the da--

things alone and to call him if they blew down and he would come and clean off

the porch and buy me more as those are old anyway, subject closed, goodbye!!

The ferns made it fine thru the wind, rain and hail and so did I by just waiting

and watching to see if they were still there. I do pretty good most of the time

and I " toddle " where I need to go and usually get there without problems, as

long as I don't have to go too far. I do have my limitations and I try to make

myself remember that. Dolores

Laurie Fitzgerald laurie.fitzgerald@...> wrote:

Kent

I take Anaprox (NSAID) for my joint pain which helps somewhat for

muscle pain. I also take Lamictal and a muscle relaxant which helps

more. (these are scripsts). The thing that helps the most is to adapt

how I do things. I sit to cook, clean, do laundray, wash dishes, etc.

I do still walk from place to place in the house. Standing causes me

more muscle pain and cramping than walking, but I still can't walk

far.

I hope you find something that works for you.

laurie

> so is there any kind of common over the counter med i can take for my

> muscle pain or should i just check out MSM and see if it works?

>

> btw, what are IMHO and YMMV short for?

>

> thanks for the info,

> kent

>

> > Ibuprofen is related to aspirin - the newer anti-inflammatory

> drugs,

> > like Vioxx etc., have less of an effect on the GI tract, they are

> COX-

> > 2 inhibitors (selective such that they don't attack the stomach as

> > much). Your doctor can tell you which ones are still on the market

> > and might be appropriate. I've also found that smaller doses of

> > Tylenol and ibuprofen work well for me - children's doses. I use

> > either VERY intermittently, and ibuprofen only if I have a fever

> > (unfortunately I've had a low-grade fever lately, of unknown

> origin).

> >

> > All of these issues with anti-inflammatory and analgesic drugs is

> why

> > I started taking methyl sulfonyl methane for my arthritis. Don't

> > think it'll help headaches though, I use Breathe Right strips to

> > minimize headaches (helps keep air flow in sinuses, killing those

> > bugs who love it warm, IMHO, I'm not a medical doctor). The

> amazing

> > thing that I've found with the Breathe Right strips is that they

> work

> > pretty quickly in terms of reducing pain, YMMV...

> >

> > Take care,

> > RH

> >

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

July 6, 2005

Internet-ese:

IMHO = in my humble opinion

YMMV = your mileage may vary

The first is kind of " I'm not a doctor etc., and if I was, I couldn't

prescribe/recommend something over the internet without meeting you

and doing an exam anyway " . Like " I'm not an expert, but " ...

The second means " it works for me, but it might not work for you - I

sure hope it does! "

Hope this wasn't too basic in terms of descriptions!

Take care,

RH

> > Ibuprofen is related to aspirin - the newer anti-inflammatory

> drugs,

> > like Vioxx etc., have less of an effect on the GI tract, they are

> COX-

> > 2 inhibitors (selective such that they don't attack the stomach

as

> > much). Your doctor can tell you which ones are still on the

market

> > and might be appropriate. I've also found that smaller doses of

> > Tylenol and ibuprofen work well for me - children's doses. I use

> > either VERY intermittently, and ibuprofen only if I have a fever

> > (unfortunately I've had a low-grade fever lately, of unknown

> origin).

> >

> > All of these issues with anti-inflammatory and analgesic drugs is

> why

> > I started taking methyl sulfonyl methane for my arthritis. Don't

> > think it'll help headaches though, I use Breathe Right strips to

> > minimize headaches (helps keep air flow in sinuses, killing those

> > bugs who love it warm, IMHO, I'm not a medical doctor). The

> amazing

> > thing that I've found with the Breathe Right strips is that they

> work

> > pretty quickly in terms of reducing pain, YMMV...

> >

> > Take care,

> > RH

> >

July 6, 2005

To repeat my MSM story in short, I went to the ER with severe pain

from lordosis and spinal osteoarthritis (due to previous back

surgery). Shots of narcotic drugs didn't help the pain at all (maybe

mito affects that), and they sent me home in severe pain. I decided

to try 750 mg of MSM, randomly I picked the Source Naturals brand (I

found out later that other brands don't work for me), and found

relief within a few days.

Now when I have an episode, I take 1500 mg for a few days and

everything gets back in order. I play hockey at least once a week,

with no pain, so I think it's doing a good job!

Try to find a methyl sulfonyl methane supplement that has molybdenum

in it as well, as sulfur supplementation can affect molybdenum stores.

http://store.sourcenaturalscatalog.com/sn1079.html

Take care,

RH

> > Ibuprofen is related to aspirin - the newer anti-inflammatory

> drugs,

> > like Vioxx etc., have less of an effect on the GI tract, they are

> COX-

> > 2 inhibitors (selective such that they don't attack the stomach

as

> > much). Your doctor can tell you which ones are still on the

market

> > and might be appropriate. I've also found that smaller doses of

> > Tylenol and ibuprofen work well for me - children's doses. I use

> > either VERY intermittently, and ibuprofen only if I have a fever

> > (unfortunately I've had a low-grade fever lately, of unknown

> origin).

> >

> > All of these issues with anti-inflammatory and analgesic drugs is

> why

> > I started taking methyl sulfonyl methane for my arthritis. Don't

> > think it'll help headaches though, I use Breathe Right strips to

> > minimize headaches (helps keep air flow in sinuses, killing those

> > bugs who love it warm, IMHO, I'm not a medical doctor). The

> amazing

> > thing that I've found with the Breathe Right strips is that they

> work

> > pretty quickly in terms of reducing pain, YMMV...

> >

> > Take care,

> > RH

> >

July 7, 2005

RH,

thanks. no, not too basic. when i was a child, computers were as big

as a room, and pc's were unheard of. however, since asking, i have

found a website that explains all the abbreviations.

kent

> > so is there any kind of common over the counter med i can take

for

> my

> > muscle pain or should i just check out MSM and see if it works?

> >

> > btw, what are IMHO and YMMV short for?

> >

> > thanks for the info,

> > kent

> >

July 7, 2005

RH,

thanks. no, not too basic. when i was a child, computers were as big

as a room, and pc's were unheard of. however, since asking, i have

found a website that explains all the abbreviations.

kent

> > so is there any kind of common over the counter med i can take

for

> my

> > muscle pain or should i just check out MSM and see if it works?

> >

> > btw, what are IMHO and YMMV short for?

> >

> > thanks for the info,

> > kent

> >

July 7, 2005

Laurie,

i tried the naproxin for two weeks and it didn't touch the pain. does

it take longer than that? maybe i just wasn't patient enough (i am

known for my impatience.)

kent

> Kent

>

> I take Anaprox (NSAID) for my joint pain which helps somewhat for

> muscle pain.

July 7, 2005

RH

I think you know what you mean by the moist bandages, but not sure.

Are you talking about the ones that look like you are putting tape

only on the wound and the moisture of the wound makes it puff up and

protect the boo-boo. I have used these and really like them.They have

to be put on immediately (before any hint of a scab appears) and kept

on until completely healed (at least for me) and can't be used with

stitches or staples. Vit E works very well for reducing scaring. I use

to have a bottle of pure Vit E for just that purpose, but now just

open a gel-cap and squeeze it out.This needs to be done during the

healing process. My problem is that my skin will break and I don't

even know it and I get scabs when there hasn't been any bleeding or

oozing. It would make for a lot of bandages. My first open biopsy, the

hospital used this kind of bandage (before available in stores). They

had big sheets of it and cut what they needed. The problem I had was

that the wound started bleeding and filled the bandage, causing it to

leak. It also make it impossible to put enough pressure on the wound

to stop the bleeding, so off it had to come. I'm allergic to most

tape, but this kind works well for me.

laurie

> Have you (or anyone else) tried any of those scar-reducing

> formulations, or the moist bandages? I am thinking of trying to

> reduce my muscle biopsy scar with it, but haven't really heard of

> anyone trying either of them. The moist bandages would be used

> during the healing process, and the scar-reducing formulations seem

> to be used after the scar is formed and healing has stopped.

>

> Take care,

> RH

July 7, 2005

Here's an example of what I meant by moist bandage:

http://www.conmed.com/sportpatch/moist.html

I had a bad reaction to the surgical dressing (looked like the same

thing they do surgery through, like a thin tape), and I'm sensitive

to many adhesives and bandages too.

Have you tried to use cocoa butter regularly to minimize scrapes? My

mom had a bad skin condition on her hands, which I get infrequently,

and I use cocoa butter and 100% aloe to get it back in shape.

I wonder if taking MSM might help with your skin fragileness - my 80-

year-old godmother swears that she has more hair AND her hair is

returning to its natural red color from the MSM. (I guess I am quite

a cheerleader for MSM, but last week I had a bad arthritis pain

attack and got back in shape in two days by doubling my dose (to 1500

mg). Pain was severe enough to debate going to the ER, that is if I

thought they could help me).

Take care,

RH

> > Have you (or anyone else) tried any of those scar-reducing

> > formulations, or the moist bandages? I am thinking of trying to

> > reduce my muscle biopsy scar with it, but haven't really heard of

> > anyone trying either of them. The moist bandages would be used

> > during the healing process, and the scar-reducing formulations

seem

> > to be used after the scar is formed and healing has stopped.

> >

> > Take care,

> > RH

July 7, 2005

Thnaks so much as I have the opportunity to have someone take me past Walgreens

today. Just in the nick of time for me to be able to check this out so I will

know what I am talking about. Dolores

ohgminion rakshasis@...> wrote:Here's an example of what I meant by

moist bandage: