Re: Hi, I'm new

[Guest guest]

Welcome to the group. I'm sorry you have the mito diagnosis, but glad

you found us.

Mito is very variable. Some have severe symptoms and some have mild

symptoms and everything in between. Did your neurologist diagnosis you

from symptoms or testing? Did he/she put you on the mito cocktail?

laurie

> My neurologist gave me this brand new shiny label of Mito yesterday

> morning. Not surprisingly,I have mixed feelings about this.

>

> Nice to have the " CFS, but in the grey area " , " a bit of IBS " , " subtle

> ADD " , " Myoclonic Epilepsy " , diagnoses over the last 15 years all

> rolled into one. I was already resigned to being incurable and getting

> worse, so while I'm reading scary things on the web about mito, I can

> remind myself I'm obviously not dead yet. And I much prefer

> discovering I'm a Mutant to wondering if some of it's hypochondria.

>

> I figured out pretty early that I had an energy deficiency, and that

> any stress taken off any system is a good thing. I've been involved in

> somatic studies all this time, and graduated as a Feldenkrais teacher.

> I don't practice, but use the skills for myself every day. I'm looking

> forward to pooling knowledge to manage this thing better.

>

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